LymeNet Flash: Can Lyme really be cause of daughter's unrelenting 2 yr. fever?

This is topic Can Lyme really be cause of daughter's unrelenting 2 yr. fever? in forum General Support at LymeNet Flash.

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Posted by SuZ-Q (Member # 5903) on :

Our 13 year old daughter was hospitalized by a tick bite at age 6, but not diagnosed until age 12. Tests also confirmed Bartonella. At age 11, her symptoms dramatically increased and she developed an unrelenting fever. Her fever usually stays in the 100-102 range, but has been as high as 104.4(prior to treatment).

Most of the time, her fever hovers around 100, but about 1 week out of every 4-6 weeks it jumps up to 102 or more and she misses several days of school. Last year she was on home-bound status from November-April. Sometimes her fever spikes seem to correlate to introduction of a new anti-biotic, but not always. Right now she is on an anti-viral and temps are running around 101+. She has gotten to where she can function pretty well as long as her fevers are under 101. Her other symptoms include sore throat and ears, joint pain, severe neck and back pain, sensitivity to light, headache, ADD, moodiness, balance issues, short-term memory loss, twitching and trembling(occassional) and a few other minor problems.

I would like opinions as to whether or not this prolonged fever is all coming from the TBD's or possibly something else. She has been on orals for over a year and had been on alotof abx at lower doses the previous year. Our LLMD seems to be getting a little concerned. Recently had CT scans of chest and abdomen which were normal and tests for viral infections which came out negative. Are there other sources of the fever we need to test for to rule out or should we assume the fever is all coming from the Lyme/Bart? This has gone on for so long and we are feeling quite desparate for answers. Any opinions would be most welcome and appreciated!!!!!!!!!

Thanks!
Suzy
Oops, this should have gone in medical. Guess I forgot where I was-sorry!

[This message has been edited by SuZ-Q (edited 29 January 2005).]

Posted by brainless (Member # 6771) on :

Yes, I believe Lyme can cause long term fevers. Has she been tested for coinfections?

Has she seen Dr Jones?

Posted by SuZ-Q (Member # 5903) on :

She tested positive for Bartonella and treated. She has been on Mepron twice for possible Babesia.

I have repeatedly tried to get through to Dr. Jones via telephone, and waited on hold for about 30 minutes long distance on a couple of occassions. Maybe I should try again. I was told Dr. C in PA is good with kids and very thorough - on her waiting list.

I thought that after a year of treatment we would be making more progress on the fever. I keep wondering if some kind of brain involvement could have messed up her internal thermostat which is located in the hypothalmus. Maybe I'm just being a worry-wort mom.

Thanks for your input!!

Posted by Lymetoo (Member # 743) on :

Hey Suzy, I thought you were going to re-post this over in Medical. You'll get twice as many responses over there.

------------------
oops!
Lymetutu

Posted by MADDOG (Member # 18) on :

Hi,Sounds like babbs to me. MADDOG

Posted by lla2 (Member # 2364) on :

I think you should get into see dr. JOnes asap...if you can't reach him via phone..fax him all the info you just wrote down..he'll make an appt. and probably send you the kits to test her ahead of time...he's wonderful...

it certainly sounds like lyme, and babs , and bart to me..both my kids had all those symptoms..dr.. jones 'cured' them..he's wonderful..my daughter is off to college this semester after missing her whole sophomore year of high school, that's how bad she was!

his fax number is 203-772-0682 if you have to write it all down...THEY WILL CALL YOU BACK!

best,

Lisa

Posted by HaplyCarlessdave (Member # 413) on :

I'm not sure of symptoms of Bartonella, but I had Ehrlichia and babesia which caused fevers similar to what you report.
As the disease progressed though, for me the fevers stopped, even though I was very sick- more of a chronic stage, at that time. It might have been because one of the infections (ltme, probably) took over my "temp-control center" (thyroid, perhaps).
DaveS