LymeNet Flash: need legal assistance to fight BOE

This is topic need legal assistance to fight BOE in forum General Support at LymeNet Flash.

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Posted by TerrySymonds (Member # 6878) on :

My 11 year old daughter has recently been diagnosed with Lyme. She is unable to attend school but the school doctor will not authorize a home tutor because her western blot was not positive. The doctor who diagnosed her called the school doctor and he hung up on her. I want to take legal action against the doctor and the BOE. We are in NJ. I need the name/names of any lawyer that would be helpful in this situation. Thank you.

Posted by CaliLymer (Member # 6509) on :

Hi,

I don't have much help, but would love to know how this turns out. Im sure there are plenty of who have at least considered legal action.

CaliLymer

Posted by bg (Member # 46416) on :

Welcome Terry to the board. I too don't have any info for you, but here are the newbie links & perhaps you might find something there!

Welcome to this 24/7 support group board!
Here's TREEPATROL's and tincup's combination newbie links.

Print off the links then check them off as you read as you could spend several months reading all of this.

print & read Dr. Barrascono's info first; you will come back to this often.

Betty G., Iowa

Posted by minoucat (Member # 5175) on :

So sorry to hear it, how stressful. I don't know of anyone in NJ, but here is a law firm in PA that knows about Lyme -- there seems to be a growing brotherhood (sisterhood? Siblinghood?) of LD lawyers who know each other and maybe you can get recommendations here: http://selagylaw.com

Don't know if you saw this link in Medical -- these are moms with expertise in the educational system: http://flash.lymenet.org/ubb/Forum1/HTML/031286.html

New members links http://flash.lymenet.org/ubb/Forum1/HTML/029917.html

And some other places you might find help:

Parents of kids with Lyme http://health.groups.yahoo.com/group/Lyme_Aid_Parents/

Lyme Warriors http://health.groups.yahoo.com/group/Lyme_Warriors/

New Jersey support group links http://www.lymenet.org/SupportGroups/UnitedStates/NewJersey/

Good luck.

And how is your health? You OK?

[This message has been edited by minoucat (edited 04 February 2005).]

Posted by lymemomtooo (Member # 5396) on :

Terry, welcome to the Hell of lyme..sorry you are here, but it is the place for help..

Be prepared to go to war because if is the only thing that really helps.

Request that the school do all types of tests.. Psychological, Occupational Testing, you could even have the pe teacher do some fine motor skill tests..Put every request in writing..Demand an IEP if anything turns up..Wear them down until they are on your side..Keep at it and do not let up..Research non-verbal learning disabilities..It is hard to convince them but probably all lyme kids have this..

Request a list of the school dr's credentials to determine if he has any knowledge of chronic lyme disease.

Just be a pain in the a$$..It is your kid so become a panther..A few of us have tried the nice route and been really messed with..You are already being messed with..

Just noticed your location..My mom was good friends with the Byrd family..One of the sons was a ranger and had lyme disease at least 20 years ago..Think he is ok now. Lyme disease has been there awhile.
Good luck. lymemomtooo

[This message has been edited by lymemomtooo (edited 04 February 2005).]

Posted by Lymetoo (Member # 743) on :

Welcome Terry! I hope you beat this nightmare! What a crazy school!

here are some links betty meant to post:

Tincup's Links for new members
http://flash.lymenet.org/ubb/Forum1/HTML/009342.html

Dr. Joseph J. Burrascano's Guidelines http://www.ilads.org/burrascano_1102.htm

Rose's 15 Facts for Newcomers http://flash.lymenet.org/ubb/Forum1/HTML/011977.html

Camp A and Camp B http://flash.lymenet.org/ubb/Forum1/HTML/021395.html

Abbreviations for Lyme-speak
http://flash.lymenet.org/ubb/Forum1/HTML/020494.html

Making the most of your LLMD visit
http://flash.lymenet.org/ubb/Forum1/HTML/020605.html

Success Stories http://flash.lymenet.org/ubb/Forum1/HTML/022173.html

Western Blot explanation: http://flash.lymenet.org/ubb/Forum1/HTML/022767.html

More info: http://www.ilads.org/

[img]http://www.omsoft.com/danq/Smilies/welcom16a.gif[/img

------------------
oops!
Lymetutu

Posted by TerrySymonds (Member # 6878) on :

Thank you - I'll keep you posted

quote:
Originally posted by CaliLymer:
Hi,
I don't have much help, but would love to know how this turns out. Im sure there are plenty of who have at least considered legal action.
CaliLymer

Posted by TerrySymonds (Member # 6878) on :

Thanks for your input. The links did not show up. Could you send them to me. [email protected] Thanks again.

quote:
Originally posted by bettyg:
Welcome Terry to the board. I too don't have any info for you, but here are the newbie links & perhaps you might find something there!
Welcome to this 24/7 support group board!
Here's TREEPATROL's and tincup's combination newbie links.

Print off the links then check them off as you read as you could spend several months reading all of this.
print & read Dr. Barrascono's info first; you will come back to this often.
Betty G., Iowa

Posted by treepatrol (Member # 4117) on :

WELCOME To LYMENET

Here's more goodys! A typical response to newcomers.

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Post for a LLMD in Seeking a Doctor. Ps remember I am not a Dr, just a fellow sufferer.
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Posted by Barrie (Member # 1796) on :

In our school district in MD, we only need documentation that the child is unable to attend school for whatever reason. We have several kids out for mental health reasons and all kinds of reasons. My daughter was not even diagnosed with anything when it became physically impossible for her to attend school. That is basically what her doctor wrote. She was still going through all kinds of tests. Even though her doctor didn't think it was lyme, she (not a LLMD) still knew my daughter was very sick . We didn't know what was wrong with her. The public school has to provide an education and if your daughter cannont attend school, I don't see how they can legally not provide for her. If you have a doctor's documentation that for whatever reason (joint pain, severe fatigue, whatever) that she can't attend school, I don't see why you need an actual diagnosis. After hearing so many people's horror stories about dealing with their schools, I realize how fortunate we were. I was the squeaky wheel though. I called and bugged them so much, they were probably just glad not to hear from me any longer. When my daughter started to get better, she was on partial days for a year and a half. All I needed was a letter from the doctor (Dr. Jones) stating that is what she needed. I work in the public schools and here, we are so afraid of parents. All it would take is a call to the principal, nicely, but, suggest legal action. Here that would get the ball moving very quick. I am sorry that it isn't like that other places. It didn't happen for me over night, but eventually, we got the IEP, accomadations and the schedule we wanted. Good luck, I know having a child with Lyme is a full time job dealing with doctors and schools. Hope your daughter is feeling better soon. If your daughter would like to communicate with someone who has been there/done that, my duaghter would be glad to email with her. She went from a child who could barely walk to almost back to normal. I know how fast the sick kids can get isolated from their peers. Best of luck.