Do you have a doctor [DUCK] who misdiagnosed you? Didn't diagnose you at all? Abused you verbally? Has no clue when it comes to Lyme?
Throw him/her into the Alligator Pit!!!
No names please...only initials!
Alligators LOVE ducks!!! Posted by Lymetoo (Member # 743) on :
Posted by 3greatkids (Member # 3838) on :
Well,I'll make a go of it,since this STILL makes me so mad.
I kept returning to my duck,same problems,knees hurt,legs feel like they weigh a ton,headaches.
He treated me for the 3week Doxy course and was satisfied I had completed ala CDC.
On one of the trips, into see this duck, I took a very concise and well written medical study.It covered Lyme basics and how the bacteria can actually go into CYST form,replicate and remain w/ you.Thus my pain,agony and pleas for help.That article really saved me,made me believe in the Lyme diag.
Dr. Duck glanced over the handout and proceeded to tell me,"I could have convinced myself of having a BRAIN TUMOR,after reading some of the journals while in med.school!" As if to say,hey stay away from my territory,that's only for qualified Med. school Ducks to read!!
He also noted on my file,patient feels like she is in the ozone.This of course was LYME BRAIN FOG!!!He blamed it on the pain meds.,which at the time,yes I was taking,did those pain meds. touch the pain of Lyme....NO!!!!!
I avoid this Duck at every turn,my hubby sees him and does a great jab job sometimes to make DR. DUCK feel special and oh so caring. Posted by Lymetoo (Member # 743) on :
up
Posted by Lymetoo (Member # 743) on :
UP FOR MORE FOOD!!!
Posted by cantgiveupyet (Member # 8165) on :
hahah, this is great, thanks lymetoo, i needed a laugh.
I would like to throw duck AM and nuero duck B. thanks to both of them lyme attacked my bladder and i live in misery everyday.
Their diagnosis was ocular migraines........hmmm dont think that causes frequent urination.
stupid ducks Posted by pq (Member # 6886) on :
glad you resurrected this thread, lymetoo.
this used to be a very long thread, or am i thinking of the thread that said something to the effect of "whats the worst thing the duc, or even a bad "llmd" said to you "
back later to splice in some "good ones" into this thread.
no end/limit to the mental/physical sadism that these low-lifes will inflict. most often, the viciousness is deliberately so, and absolutely does NOT stem from genuine, but rather from calculated ignorance!
Posted by daniella (Member # 6753) on :
I LOVE the Aiggator pit!...Can't we use their real names?..PLEASE ? PLEASE?
daniella Posted by Lymetoo (Member # 743) on :
No, daniella, We don't want any lawsuits!
pq...Yes the other one was LONG. I think it got lost when the board changed last year. So I made a new one. Can't live without the Alligator Pit!! Posted by pq (Member # 6886) on :
in a few days i'll splice in what i've written up. too bad the last one got lost.
Posted by HEATHERKISS (Member # 6789) on :
I know the last one had everyones details! It was sooooo funny.
a great way to let of some steam.
Posted by AZURE WISH (Member # 804) on :
I think we are going to need more alligators I have a TON of ducks to toss in. Posted by cantgiveupyet (Member # 8165) on :
Into the pit goes my gyn NP. Today she thought that seeing a 'calming specialist' aka hypnotist woudl help me with my anxiety during exam.
Hello...maybe for a non lyme patient....but i am in PAIN!!!! hypnosis isnt going to cut it.
im fed up.
Posted by Silverwolf (Member # 9196) on :
Here 'gators got a juicy morsel for ya, Dr E, who just hto't I was an uneducated dunce and he was 'god'. Geesh 'Doc' the Urinary infection had to come from somewhere,and you didn't even bother to check...
Well I don't have a full diagnosis yet,but it has never gone away...and my bladder is now 'worn out'and I don't find 'IC' one bit amusing. You could have saved me so much misery if you'd just checked a few things out all those years ago. Ducky meet yer due. Posted by iceskater (Member # 8655) on :
Does the joke " it is hard to be objective when you are up to your a@@ in alligators apply here?"
Posted by Bluetick (Member # 8467) on :
Dr. G - stupid, rude neurologist who told me that I should just have a glass of wine and my double vision and vision loss would be cured. Come to find out it was optic neuritis! Thanks for nothing!
Posted by trueblue (Member # 7348) on :
Here, gator, gator, gator...
This is from about 7 years ago...
Duck K Internist and complementary medicine, sounded like a good choice for a primary.
I go in for a sore throat... mention I have Lyme and he tells me he knows all about Lyme. He discusses Lyme with me for a while. Spills that he studied under one of the evil Ducks S..
Then asks me how come I know so much about it.
I answer that I've had Lyme a long time and have done a lot of reading. He tells me not to read so much! Posted by gael1111 (Member # 8816) on :
Really good thread lymetoo. Thanks for letting us vent.
THE MORAL OF THE STORY
Here duck, duck, "I would like to invite you out for lunch for taking such good care of me," said Mr. Alligator.
" But Mr. Alligator, I am afraid you will bite me." Dr. Duck replied.
"Oh no, I would never do that", said Mr. Alligator. So Dr. Duck accepted the invitation to go out to lunch with Mr. Alligator.
As they were both enjoying a delicious lunch, Mr. Alligator held out a piece of fruit for Dr. Duck to try.
As Dr. Duck leaned over to taste the piece of fruit, Mr. Alligator bit off Dr. Ducks' Hand.
Dr. Duck was just aghast and screamed "why did you bite off my hand,I trusted you not to hurt me"!
Exactly my point Dr. Duck, now you know how I feel. Posted by WildCondor (Member # 434) on :
Has anybody been feeding this beast? he is starving!
Posted by HEATHERKISS (Member # 6789) on :
I'd like to re-feed the gators.
(since the old post is gone)
To the dermatologist / allergist in Somers Point in Southern New Jersey who gave me steriods 2x and four different antihistamins which I took for years.
I had chronic hives and was allergic to almost anything I ate. Also had explain weird rashes I had previously.
Gators you might want to take peptobismo before you eat this rich rich rich duck!
Please don't spit him back up again. Chew him to pieces.......... Hope you are hungry.......
Posted by Lymetoo (Member # 743) on :
Dr P in Missouri who said in the long term I would find out that HE is right and my LLMD is WRONG.
I hate to tell him, but he LOST the battle on that one!!
Posted by 5dana8 (Member # 7935) on :
here's some more food for the alligator pit:
I throw in one IFD duck,who 20 years ago, told me to go home and take vitamins.
Into the pit goes on neuro duck who said I had CFIDS. And let me suffer another 7 years.
Into the pit one duck who told me in the very beginning,even though I was getting better, to stop the abx -"it is confusing the picture."
I'd like to throw myself into the pit for being so stupid to actually listen to him.
Wow that felt good!
Posted by WildCondor (Member # 434) on :
Excellent job with the feeding tonight!
Sadly, I have a newly adopted gator who is very hungry and starving from his journey.
Please feed him, his name is Neptune.
Posted by hopeful123 (Member # 3244) on :
Posted by Nancy-FL (Member # 7986) on :
Here's one for Neptune or any other hungry gator.
When my husband was first diagnosed (by the Bowen test) and was being treated by our family doctor, and prior to our finding an LLMD, the family doctor suggested we see a neurologist about headaches. The neurologist had no knowledge of Lyme and sent us on to the Infectious Disease "Specialist". That DUCK waved the Bowen test results in the air and said, "I've never heard of these people, and I follow the Yale protocol for Lyme." He drew blood for a Western Blot on that Friday afternoon, after we told him that my husband was taking antibiotics. Of course the results were negative, so the DUCK said that there was nothing to treat. We later learned that blood should always be drawn on a Monday, Tuesday, or Wednesday morning, flown to the lab, and that if the patient was taking antibiotics, it would produce negative results. On the second visit to get the test results we took DUCK a whole packet of information about Lyme, which I feel sure he trashed as soon as we left the office. Open your mouth, Neptune!
Posted by Nebula2005 (Member # 8244) on :
Dr. PJ, an ER doc and close family friend, also the only doctor to whom I showed the residual EM rash, way back in 1989. "It's nothing," he said. "Leave it alone."
We are no longer friends so he is unable to confirm its existence. (My husband doesn't remember.)
In his case, we'll need a really big gator with an excellent digestive system to consume his huge ego and swollen head.
Then hold me back so I don't throw myself in after him as punishment for not having enough sense to go to a "real" doctor, IF such a thing has ever existed,
and for continuing to suffer with this IMAGINARY disease with no end in sight and for having to suffer through seeing all the other ducks who I foolishly consulted in the last 16 years.
But first, let me line the rest of them up. . .
Posted by cantgiveupyet (Member # 8165) on :
I would like to send the office manager from my urologist office to the pit!!!
She told me today based on my age i am not disabled. That IC can only be diagnosed when mast cells are found...if they arent there then you dont have IC.
Not sure why the head urologist and the fellow told me i had the start of IC, nor why a hydro is done...if they can diagnose based on biopsy.
This gator better chew her up cause im about ready to drive to the office and do it myself.
Posted by hopeful123 (Member # 3244) on :
actually, i have a doctor who didn't treat long enough or understand lyme...but he was sooooo nice, it's hard to throw him in the pit.... but, here goes...dr. l. ----- nice don't mean much, no more!!!
this is me
Posted by tabbytamer (Member # 3159) on :
quote:Originally posted by trueblue: He tells me not to read so much!
Well, at least he takes his own advice
Have you heard this one? My family doc that I went to see while still experiencing those first few weeks of initial Lyme and showing him where my weired bug bite was told me I was sick because I was home schooling my 3rd grade son.
Sorry Dr W, you were so nice, but if you had just prescribed abx then, I wouldn't be permanently disabled now. So, off to the gators you go!
Posted by just don (Member # 1129) on :
Here goes my folks next door neighbor. He is a physicians asst. and did a test on me 'once', didnt 'know' where he sent it and didnt see how THAT made a difference.
Now when ever he sees me he says I "CANT" have lyme, I tested you, it failed(cdc standards), I read too much junk on the internet, dont read or believe ANYTHING you read THERE!!!
I copied Dr B.s guidelines so he could update himself and 'learn' a little. All he screeched (in his whiney little voice) when I gave it to him IS, """When am I suppose to read all THIS"""???
I wish I had told him, makes a good sidekick partner to the Budweiser(s) he snuggles up to every night. He is a VERY accomplished beer drinker!!! Can smell it on him 24/7. AND he has a great beer gut!!
Nice knowing you B., hope you dont make the alligator drunk with 'your' inner contents. Cant sicken the gators cuz I am still --just don--
PS> Do gators get lyme??? From swallowing it???
Posted by Lymetoo (Member # 743) on :
Hungry alligators are waiting for more DUCKS!!!!!
Posted by chroniccosmic (Member # 7789) on :
OOOOH, let me help!
1. Dr. A--neurologist, saw her twice, very full of herself, once I said "sensitive to light" gave me the quickest neuro exam ever and declared the problem was migraines. Would not even consider anything else.
2. Dr. B--talked to me for oh, about 3 minutes, handed me an RX for antidepressants and told me to go get some fresh air and sunshine.
3. Dr. W--diagnosed me with CFS and saw him for 3 years prior to getting tested for lyme on my own through Igenex. He refused to test me for lyme and when I went in with my results and my daughters (CDC positive) he got mad and acted like a big baby. Said "why should I treat you, seems like you got it all figured out"!
Need I go on??? Posted by HEATHERKISS (Member # 6789) on :
Posted by 3greatkids (Member # 3838) on :
Run,RUN AWAY,when you hear these words...
WAIT AND SEE!
Look at the children w/ tick bites this past week and the DUCKS say, WAIT and SEE.
Ya think they would wait and see about the mole on your nose?
This wait and see stuff has to stop.
Posted by hiker53 (Member # 6046) on :
Dr. A ("A" as in ADMITTANCE to the ALLIGATOR PIT--for telling me that I was simply depressed. I had vertigo, couldn't walk straight, and high ear pressure
Dr. F--very nice doctor, but he said I would need disability, and then said he would never sign the disability forms, because he was not a specialist.
Dr. S--who refused to do the Lyme test because I had no symptoms.
The alligator should have a feast for awhile on these 3 of the 13 doctors I saw before diagnosed.
Hiker
Posted by Mary J (Member # 4234) on :
Dr R.M. Rheumatologist. Briefly poked me in several spots in my back, left me to freeze while he took a personal phone call in the next room for 35 mins, came back in to announce "There's nothing wrong with you and you certainly don't have Lyme disease (with a smirk and a shake of his head)".
Dr T.K. Rheumatologist. "Lyme disease? Who told you you have Lyme disease?" I tell her name of LLMD and she says "You had better go now as I feel sick!".
There's 2 for the pit. Thanks doctors for not helping me.
Posted by Lymetoo (Member # 743) on :
Rheumies are great, aren't they! Posted by Lymeindunkirk (Member # 7118) on :
Have any of you ever gone to www.ratemds.com ? YOu can rate a doctor there. Try it.
Posted by Lymetoo (Member # 743) on :
ME- i ate two arbys roast beef sandwiches and got what i think is a reaction....got a headache, flu like symptoms that lasted about a week.
Dr I- why did you eat TWO
me- cause im starved all the time and cannot gain any weight at all.
well, lets get a CT of your chest and colonoscopy...it could be lymphoma.
Posted by notcrazykate (Member # 10458) on :
What a fantastic thread!! I hope the gators are hungry!
Dr. C - primary duck who referred me to several specialty ducks. Had the EXACT same conversation with me a year ago when I first saw her for symptoms that she did a 2 months ago (and both times insisted I probably had MS). Apparently she couldn't read my file. Rolled her eyes at me when I said I wanted to be tested for lyme.
Dr. S - cohort of Dr. C, prescribed anxiety meds, antidepressants, ADD meds and therapy upon the request of my mother WITHOUT EVEN TALKING TO ME!
Dr. P - neurologist who, while generally sweet, didn't test my spinal fluid for everything she apparently should have. Also, during the procedure, couldn't get the **** needle in my spine!!
Dr. C - optometrist who told me that the floaters in my vision were nothing to be concerned about and would "just go away."
Dr. D - dermatologist who has treated my 'eczema' for years with hydrocortisone cream and cortisone shots
And I saved the best for last... enjoy dessert, gators.
Dr. D - UM rheumatologist who diagnosed me with fibromyalgia without doing a tender point exam, told me there was no disease with my symptom patterns and told me that everyone feels like I do from time to time.
*whew* That's kind of a load off!
so long, duckies!
Posted by tdtid (Member # 10276) on :
Wow!!! Looks like Ducks all over the country. I have so many I could toss, but the worst of all was my primary care physician.
Started out telling me I had Fibro, sent me for pain counciling, numerous neurologists, and another specialist that said I had Degererative Disk Disease and sent me for epidural steroid shots...
Then when I come back in and can't walk, I'm numb in parts and pained in others, trembling in my right arm, he runs a head MRI.
Tells me it isn't a stroke or M.S. Then asks me to do things like touch his finger with the hand I'm using to hold my self up since I had no balance ...
and when I end up on the floor, he gets angry, says my MRI if fine and there is no reason in the world that I can have neurological problems if my MRI is clean.
He told me to go straight to the E.R. to admit myself for physiactric analysis, and when my husband mentioned lyme, he says "I can't take this anymore", and walks out the door.
So he followed it up with a certified letter to my husband and a C.C. to me saying he was canceling my husbands physical in a couple weeks because it was obvious we don't respect his medical judgements.
Talk about a brain dead duck! Hope that Duck C. won't upset Alligators tummy! Better get alligator some Pepto Bismol for this one.
Cathy
Posted by Lymetoo (Member # 743) on :
quote:Originally posted by tdtid: He told me to go straight to the E.R. to admit myself for physiactric analysis, and when my husband mentioned lyme, he says "I can't take this anymore", and walks out the door.
So he followed it up with a certified letter to my husband and a C.C. to me saying he was canceling my husbands physical in a couple weeks because it was obvious we don't respect his medical judgements.
Talk about a brain dead duck! Hope that Duck C. won't upset Alligators tummy! Better get alligator some Pepto Bismol for this one.
Cathy
Sheesh! Poor gators!! Posted by Lymetoo (Member # 743) on :
quote:Originally posted by notcrazykate: Dr. D - UM rheumatologist who diagnosed me with fibromyalgia without doing a tender point exam, told me there was no disease with my symptom patterns and told me that everyone feels like I do from time to time.
*whew* That's kind of a load off!
so long, duckies!
Posted by heiwalove (Member # 6467) on :
the worst and cruelest duck i ever saw was actually a psychiatrist, Dr. B. i was forced to see her, because my family committed me to a psych ward without my consent (long story -- this was when i was extremely ill with lyme and no one, not even my mother, believed me. they all thought i was crazy).
anyway, i was armed with my LLMDs phone number and my highly positive igenex results, but Dr. B could've cared less. she didn't believe chronic lyme disease existed, she told me i was very, very mentally ill and that i had convinced myself i was physically sick with lyme disease, and diagnosed me as 'severely delusional'; her exact diagnosis was 'somatic delusional disorder.' she put me on heavy doses of both depakote (i've never in my life been bipolar) and clozaril (a really intense anti-psychotic; when you're on this drug, you must get your white cell count tested weekly to make sure it doesn't plummet to a dangerous and potentially fatal level).
Dr. B. also refused me any of the lyme meds and supplements i was taking previously. she got the state court to commit me to six months in a psychiatric ward for my 'severe delusions,' and if i hadn't been transferred out of her care to another psychiatrist, she would have forced me into electroconvulsive therapy as well.
of course, her theory that i was 'delusional' was happily bolstered by an ID duck (dont remember his name) who gave me an ELIZA (came out negative, of course), asked me if my joints hurt, examined me for all of two minutes, and told me 'there is no way in hell you have lyme disease.' a true and admitted steere-ite, the worst of the worst. according to him, igenex is a 'quack' lab and all our LLMDs are 'quack' doctors. right.
so, added to the alligator pit: Dr. B and unnamed ID duck, both hailing from the lyme-endemic state of MN!
Posted by KENNEDY (Member # 9628) on :
I have one for the pit I went to my family doc with a bulls-eye rash and was given "the doxy 21 day cure". He said that he wouldn't even run the tests for lyme because they were so unreliable.
WHAT ABOUT CO-INFECTIONS? That wasn't even brought up. That was in June 06 and Aug.06 I had found a llmd and I tested positive for lyme.
"So much for the 21 day cure". Posted by 3greatkids (Member # 3838) on :
Dr. F. Pediatric researcher,protector of kids.....
Stating Chronic Lyme is a MYTH!!!!!!!
Man -o man,if I could throw him in a pit.Maybe when he meets his maker,the pit will be available.
I'd like to send a pit bull over in someones direction. Yum, tasty,Years of suckin up and making those $$$$$,ala tax payers makes em extra tasty.Right Roxie,sweet pit bull.
Sure tell me what to say,I'll feed em the bait....Chronic Lyme is a myth..... Posted by Lymetoo (Member # 743) on :
OMG!! Those gators have not been fed for several months now! Please make your contributions ASAP!!! Posted by Geneal (Member # 10375) on :
We have plenty of gators in Louisiana as well as ducks to feed them.
Thanks to Dr. B -- told me I had post traumatic stress disorder, sent me home with paxil.
Thanks to Dr. L -- thought it might be CHF!!??? No evidence to support this.
Thanks to Dr. M --finally ran a Western Blot on me, along with about 15 other tests. She turned into a duck when she tried to dx me with diabetes, fibromyalgia, etc.
Thought that 6 weeks of antibiotics should cover me since I was her 3rd Lyme patient.
When asked about co-infections she said she had tested me. I have the results. No co-infection testing.
Thanks to the ER doctor--was very handsome, but sent me home with xanax and told me I should get a Lupus test.
Oh, by the way....I asked every one of those doctors to do Lyme testing on me as I had so many of those symptoms and rheumatoid arthritis and ana were neg.
I was told that I didn't have that, or couldn't have that as it is not in this area.
Hope those gators chew real hard.
Geneal
Posted by wiserforit (Member # 9732) on :
Didn't know about the pit! Woo-hoo! Here goes:
I push Dr. RS, who said that unless I had a bullseye rash and the tick who bit me, he wouldn't test for Lyme. Told me I had allergies.
I push Dr. BK, the ER doctor who told me I had mono and nothing more.
I shove Dr. BI, who was so stoned after a night of playing with his band that he couldn't keep his eyes open and they kept rolling to the back of his head during my examination. He agreed with the ER doc... just mono. I found out two weeks later that his practice was shut down and he was on probation for narcotics use. HE WAS STONED OUT OF HIS MIND! He served his probationary time in rehab and is practicing again. Just turned away two other friends with Lyme by suggesting they go to psychiatrists.
I toss the infectious disease specialist who told me "You probably have MS...but at least it's not cancer." That from a woman -- shame on her!
I toss the neurologist who said I had a pinched nerve that made my hands and feet numb.
I shove the internist who said that my ELISA was negative so my symptoms were stress.
I toss the opthamologist who said that like a fine wine, I was aging and that was why floaters and light sensitivity were occuring.
Can I toss in the internists who told me I had the stomach flu when I actually had a ruptured appendix?
Oh, and the list goes on! The gators must have stomach aches by now!
wiserforit
Posted by wiserforit (Member # 9732) on :
WOW! I have to add to the above that this Alligator Pit is cathartic!
wiserforit
Posted by Lymetoo (Member # 743) on :
quote:Originally posted by wiserforit: WOW! I have to add to the above that this Alligator Pit is cathartic!
wiserforit
That's the main reason it's here. From time to time, we bring it back up for the newbies. It's pretty awesome, huh??!!
I LOVED the way you pushed and shoved those folks to the gators. Hope the gators survived all those you shoved in there, because we have to keep them around for the next ones coming along!! Posted by HEATHERKISS (Member # 6789) on :
I'd like to shove in the female Pharmasist at CVS in Aberdeen in to the aligator pit.
She says my husband and I are the only people she has ever heard of taking long term antibiotics for lyme.
But before I push her into the pit I'd like to kick her @$$!!!!!!!!!!!!! Posted by Lymetoo (Member # 743) on :
quote:Originally posted by HEATHERKISS: I'd like to shove in the female Pharmasist at CVS in Aberdeen in to the aligator pit.
She says my husband and I are the only people she has ever heard of taking long term antibiotics for lyme.
But before I push her into the pit I'd like to kick her @$$!!!!!!!!!!!!!
Has she been living in a hole somewhere?? Now she's in the PIT!!! Posted by wiserforit (Member # 9732) on :
At LLMD's request, I had a local dermatologist look at what has become hundreds of blisters/bumps all over the tops of my hands and fingers. My skin is not sun burned, just itchy and bumpy...
I wanted to know if it was a Doxy skin reaction to rule out allergy.
________________________
Derma Duck: How do you know you have Lyme?
Me: Positive Lyme tests, myriads of doctors, sickness for a long time, got a tick that bit me...
Derma Duck: But you've been on antibiotics way too long, you should be better by now. You aren't going to one of those wacky Lyme Clinics are you?
Me: No.
Derma Duck: How do you know you aren't?
Me: I've been through 23 doctors and gained enough wisdom from the experience to be able to discern which doctors are knowledgeable and professional versus the ones that only think they are....[I was practicing restraint...]
Derma Duck: Well there are camps that say...
Me: Yes I know. Camp A; Camp B. Which one are you from?
Derma Duck: Oh, me? I'm not in a camp. You have eczema.
Me: Could I have burned my hands driving while on Doxy?
Derma Duck: Oh sun won't hurt your hands on Doxy...
___________________________ AHHHHH!
Waste of time! Plus the guy was smacking this huge wad of gum in his mouth the whole time! Plus he looked like the red-headed mean-doctor on SCRUBS.
SO.... I suppose if the bumps are just on my hands and not all over my body, I should just continue the Doxy?
In the meantime, my brain is herxing like crazy and I'm dizzy and emotional...BUT...strong enough not to have dived across the desk to strangle the Derma Duck!
wiserforit
Posted by HEATHERKISS (Member # 6789) on :
Definately think that all derma's should go back to school to study rashes from the tick borne desease book of hell!!!!!!!!
Gators here are all our dermatologists old school books. They are probably over a hundred years old. Good fiber.
Posted by bejoy (Member # 11129) on :
To every duck, and duckette who ever left me as a confused 20 something year old freezing in a skimpy hospital gown, sitting on an exam table for 45 minutes, crying my miserable eyes out,
then had the nerve to ask, "What's the matter with you!?!," before handing my uninsured waitress pocket a bill for services...you are now LUNCH! Posted by Lymetoo (Member # 743) on :
UP
Posted by SarahL (Member # 11452) on :
Ah, my trusted and like-able Dr. Stephanie B. of Knoxville, who strung me along with FMS, put me on steroids over and over, pushed narcotics on me (I won't take them!) and most recently told me:
Lyme is a disease that people cling to when they need a big drama in their life. AND that there's no lyme in NC. She doesn't know what a herx is and hasn't studied lyme in 15 years (she admits this!), but she feels she can tell me that I have FMS and *nothing* else.
I really wanted to trust her, but this woman has shown that she would let me suffer and maybe even die before admitting she is wrong.
I'm sad to throw her in, but after today's condescending talk with her, I still want to.
I hope no one here ever runs into her.
Posted by trueblue (Member # 7348) on :
Heh, he looks pretty happy; guess she went down well.
He's still looking a bit hungry though. Posted by Robin123 (Member # 9197) on :
Ok, True, I'll feed the gator -- had no idea this site existed!
The rheumatologist I went to for meds. He tried to undiagnose me. I already had a Western blot test with 4 positive bands, and a phenomenal clinical response to a month of clindamycin. And a remembered tickbite on my foot and 25 years of symptoms.
He sent out for an ELISA and it came back negative. Good news, he sez, you're negative. I told him it misses much of the time, and besides, the 2nd line on the sheet said a negative test result does not rule out Lyme.
BTW, I don't like to call a doctor a doctor if they're unwilling to recognize Lyme disease. I call them a mister. Or a ms, I guess.
So would I call a duck a muck, then? Mucky duck. Ducky muck. Mock duck. The possibilities... Posted by ks mom (Member # 11626) on :
hello gators! brought by some duck with a bunch of side dishes !!
Thanks dr. d [my son insists on calling you Dr. Death for reasons we cant go into here] for making patients wait WEEKS[sometimes months for those pesky patients who wouldnt just go away] before you would order a test or even give a much needed meds. You couldnt even give a simple antibiotic to a kid who had a raging fever and an obvious infection from a bite unless the mom threatened an ER trip. You KNEW he had lyme but gave his naive mom every reason in the book as to why it wasnt. Thanks to your greediness my son has had to grow up not knowing what its like to not have pain everyday. I wont even go into what you did for me or a dozen other people we knew. I hope the kick back money was worth it to you!!
To the insurance idiots who thought the kick back program was a novel idea.......in you go!! To the insurance execs who make treating patients next to impossible and for all the hell you gave our beloved Dr. G in Pa...the extra shove!!
Enjoy the feast my gator friends as I am sure there are more to come!!
Sincerely, a ks mom who wont give up!
Posted by Lymetoo (Member # 743) on :
quote:Originally posted by trueblue: Heh, he looks pretty happy; guess she went down well.
He's still looking a bit hungry though.
Posted by Robin123 (Member # 9197) on :
Lymetoo, that's CROFL(cat rolling on floor laughing)
Posted by Ruth Ruth (Member # 11059) on :
Ok,
I'll feed the gator the first dermatologist ... who blinked like an owl in daylight when my first response to his steriod prescription was to ask, "but what if I don't want to take those?" As if I couldn't possibly question his recommendation!
Oh, how I wish I had followed my intuition and avoided all the damage done!
Happy eating, dear gators!
Posted by heiwalove (Member # 6467) on :
I've got another gator for y'all. his name is Frank and he's STARVING!!!
Posted by ks mom (Member # 11626) on :
Hey Frank! You look mighty hungry! You are closer to DC than I am....run over to the FDA and start chomping on those regulators that want to take away our rights to vitamins and supplements!
[duck disease seems to be pretty prevelant over there and needs to be eraticated! ]
ks mom
Posted by Lymetoo (Member # 743) on :
quote:Originally posted by ks mom: ....run over to the FDA and start chomping on those regulators that want to take away our rights to vitamins and supplements!
Ditto!!
Robin, You're right about that green kitty!! Posted by MysteryGirl44 (Member # 10201) on :
Dr. W. Dr. S Dr. A
& many more. one was a pediatrician, one was neurologist, and one was an infectious disease doctor. i'll message you their names if you need them so that you don't go to them and risk not being helped.
Posted by ByronSBell 2007 (Member # 11496) on :
Dr. W- said I wanted to become an anorexic,was depressed, and I had gotten a girl pregnant... Dr. D- said I had a migraine and was not happy with my life Dr. R- said I was depressed and needed to go eat DR. H- said I had post viral syndrome and will eventually get well Dr. V- said I had chronic fatigue syndrome, was perfectly healthy just depressed Dr. H- said I needed a girl friend Dr. B- said I had west nile virus Dr. P- said my lyme test was bogus, lyme doesn't exist, gave me a pain killer and said go to school Dr. A- lyme doesn't exist, need to take advil and a anti nausea drug everyday
Posted by idducksrdumb (Member # 11691) on :
Per my post on 4/24/07:
J.C. - USC (Southern Cal) ID Dept. Avoid at all costs, unaware Bb has cyst form. Claims to have treated LD in NY.
Posted by ks mom (Member # 11626) on :
oh frank......got another morsel for ya!
dumb duck just called and is all happy that the test [ELISA] came back negative.
waiting for the rocky mountain spotted fever test to come back. apparently the ELISA can test for both lyme and this??
told her I knew the lyme would be negative. asked her about the CBC panel.
she is waiting for them to call her back with those numbers. [apperantly they dont READ that nugget of a blood test anymore]
dumb duck.
Posted by Lymetoo (Member # 743) on :
quote:Originally posted by ks mom: dumb duck just called and is all happy that the test [ELISA] came back negative.
Thanks, idducksrdumb!!
Posted by Kayda (Member # 10565) on :
Adding BIL's DUCK to the Alligator Pit. BIL is a hunter, found a tick on his skin. Tick was engorged. He got a rash. DUCK told him he doesn't have Lyme.
Apparently this DUCK is psychic because without one single test, he knows the tick didn't carry Lyme, he knows that the rash is not Lyme related, and he knows BIL will not develop symptoms.
DUCK never saw the tick. DUCK practices in a Lyme endemic state. A state heavily populated by deer.
This DUCK deserves to go into the alligator pit!!!!
Kayda
Posted by HaplyCarlessdave (Member # 413) on :
Should the doc who first treated me be thrown to the 'gators? Well, I'm not so sure. He was very good for many things; it's just that most docs are kind of conditioned to believe ducks from certain, ah, ..'well respected'... institutions.
Thus it's particularly tragic when one of those ducks loses sight of real science and insists, with the assistance of certain elements of the corporate dictatorship, and to the detriment of thousands of of patients' well being, that he is right, and that everyone else is wrong.
It takes courage to do anything right. Many "LLMDS" have that little extra bit of courage; we should be very happy for thaT.
But maybe an alligator pit is a little severe for those ducks that are simply a little to yellow bellied to question the "powers that be"... On the other hand, many patients are suffering.
But if a doc goes too far the other way, patients may suffer then, too. It's a hard gig, to be sure, but not without its compensation, which, for the moment comes way too much off the backs of those who can least afford it! But I digress...
DaveS
(breaking up the post for easier reading for many here)
[ 04-09-2017, 01:14 AM: Message edited by: Robin123 ]
Posted by Lymetoo (Member # 743) on :
up for the newbies!
Posted by merrygirl (Member # 12041) on :
Well I am brand new to this board. I was diagnosed this week. I would like to kick all the rude ignorant docs I have encoutered in the pit after I have tortured them a little.
to all those that underestimated my pain and symptoms. You all SUCK.
If another doc tells me to lose weight and take anti depressants they are going to get it.
And to the on call doc that I called begging for help last night that said he couldn't help me and that I must have personal problems and need antidepressants, and to put my baby on my lap and pray,because I was not sick just tired.
You better watch out and you are lucky I am only drop kicking you into a pit of crocks. Maybe then you can pray and take antidepressants you stupid jerk. How did you graduate from medical school anyway?
Posted by merrygirl (Member # 12041) on :
Sorry I am angry. This felt good though. thanks for the thread...now if we could only make this real.....lol
Posted by mrsdizzy (Member # 11690) on :
Dr. A.M in central Florida for telling me that my "nuero-transmitters were mis-firing".
Posted by dlp252 (Member # 10711) on :
Well, I'm feeling in a throwing mood...so into the pitt goes Dr. M.S. in California.
Went to see her a year ago January, for extreme lightheadedness, nausea, heart palpitations, diarrhea, headaches, extremely low blood pressure (and resulting feeling of passing out), joint pain, etc.
This was a couple of months after having a stubborn case of strep throat, an ear infection and a sinus infection and being on several rounds of antibiotics.
Picture the setting: It was late in the day...they squeezed me in...she was getting ready to out of town.
My blood pressure was something like 87/60, she says, that doesn't seem so bad.
I say it's much lower than my normal reading (around 110/70) and I have the dizzyness and feeling of passing out.
She says, well, I don't have your chart here, but it seems okay.
She takes my pulse and says, it seems fine.
The dizzyness is probably inner ear, take dramamine for the nausea and don't move suddenly. Say WHAT?!
Then she says, I could put a holter monitor on you but it probably wouldn't show anything. Say WHAT?! I was getting the palpitations when I layed down to sleep at night.\
I left that day and haven't been back since. I made an appointment the following month with a different doctor who at least did me the courtesy of running some tests...especially for C.Diff because of the diarrhea and antibiotic history. She also found BLOOD in my stool in the office exam.
Phew...it's been a while since I've told that story. Felt good today!
Fortunately my doctors since then have been pretty good.
Posted by randibear (Member # 11290) on :
m in texas -- told me i didn't understand english, what kind of person was i, that my husband was going to come into the office and start shooting everyone (my husband was a marine).
he had me in tears -- his nurse came in and he told her to get me out of his office.
that man was crazy.......
all over medications because i didn't take a medication HE PRESCRIBED and then when the test results came back, he told me "thank god, you didn't take it."
he's freaking nuts........
Posted by spookydew (Member # 8432) on :
Here, quacky, q u a c k y y,
Dr.Q, Dr.B, Dr.M, Dr.H, Dr.Cleveland Clinic, Dr.H, Dr.H, Dr.S, and Dr. Drr a gg a s s! Here quacky, q u a c k y y.
Dr.Croc wants to consult with you about me. He wants us alltogater. Posted by merrygirl (Member # 12041) on :
Ok I am throwing my stupid Rheumy and the ID docs from today into the pit. I hope the gators get them good....Happy eats Posted by trueblue (Member # 7348) on :
Thanks! Nyummy! He seems to think there are more out there. Toss 'em in!
Posted by troutscout (Member # 3121) on :
I love this list of idiots.
Posted by Geneal (Member # 10375) on :
This is for my neighbor's Dad who just found out he is IgM CDC positive
And Igenex IgG positive.
Has diabetes. Went to his "internist".
Showed her Western Blot. She didn't even blink an eye or look up from her
Scribbling in his chart. She wanted to know who was going to treat him for this.
(We had already made him an appt. with LLMD)
He lied and said some ID duck in the area.
She knew nothing about Lyme and worse is that she didn't care to even
Look it up, ask him about his symptoms, etc.
Into the 'gator pit.
Man those 'gators must be getting fat by now.
Anybody ever had fried alligator???
Pretty good. Tastes just like chicken!
Hugs,
Geneal
Posted by hiker53 (Member # 6046) on :
Saw a new neurologist for my myoclonus. Ask her about my thyroid tests. She said she didn't do thyroids. I told her that she should take the lovely certificate down from her wall that says she is board certified in internal medicine, then.
When examining me, she told me not to speak.
Dr. Ca goes to the alligator pit! Hiker
Posted by adamm (Member # 11910) on :
ID Doc who didn't even know ticks could transmit bart said he'd bet his CAREER I wasn't sick!
Asphinctersayswhat?
[ 01. September 2007, 10:20 AM: Message edited by: adamm ]
Posted by Lymetoo (Member # 743) on :
Thanks, adamm!!! Those gators were getting pretty hungry!! Did you read through some of the posts and see how many ID ducks are already in the pit!!??
Posted by elle108 (Member # 11730) on :
Well, I've spent the last ten minutes trying in vain to cut and paste a gator graphic...
But I want to add to the Pit....
The ID duck that looked me in the eye and told me that co-infections were self limiting and didnt need to be treated.
The rheumatologist who said that a few weeks of 100 mg Doxy made it such that, if my daughter still felt sick, she needed to follow up with a psychiatrist.
The so called Lyme Expert who ignored the CDC positive WB because band 41 "is common to all bacteria" and told us that my daughter had Fibromyalgia...
when asked why she felt better whenever she had antibiotics...he told me, "All fibromyalgia patients feel better after antibiotics"
Posted by Mom of 3 (Member # 9548) on :
I came across this PIT and This IS GREAT!!!
HERE GATOR, GATOR, GATOR......
THIS IS FOR ALL THE DOC'S THAT I'VE SEEN IN THE LAST 4 YEARS THAT TOLD ME THAT I WAS CRAZY IN THE HEAD, NOTHING WAS WRONG WITH ME, IT'S ALL IN HEAD, I'M FAKING IT, I'M WAISTING THERE PRECIOUS TIME, AND MOST OF ALL I NEED TO STOP THIS ACT AND GROW UP!
AND THE BIGGEST AND BADDEST ONE OF ALL, THE WORST OF ALL IN ROCHESTER, MN THE WORLDS "FAMOUS HOSPITAL"!
BLAH, BLAH, BLAH, BLAH ON THEM!
THESE GATOR'S ARE SO HUNGRY FOR MORE DUCKS....I THINK I HAVE 1 MORE! A REALLY BIG JUICY ONE FROM A SMALL TOWN IN MINNESOTA JUST SOUTH OF ST. PAUL........DR. J!!!!
HE MIGHT BE A LITTLE SOUR FOR OUR GATOR, BUT HE WILL HAVE TO DO! HE MUST BE PUT INTO THE PIT, IMMEDIATLY! NO MORE TIME TO WAIST!
HE TOLD HE THAT MY LLMD WAS GOING TO KILL ME, THAT HE WAS A TOTAL LOSER AND A QUAK! HE ALSO INFORMED THAT THERE IS NO SUCH THING AS, "LYME DISEASE!" HE ALSO INFORMED ME THAT I WAS BEING POISENED THROUGH MY PICCLINE, AND THAT MY CHILDREN WILL HAVE NO MOTHER IN 3 YEARS IF I KEEP LETTING HIM TREAT ME!
SO I BELIEVE HE NEEDS TO BE EAT'IN ALIVE STARTING AT HIS TOES AND VERY SLOWLY. LET HIM EXPERIENCE MY PAIN THAT I EXPERIENCE DAY IN AND DAY OUT. LET HIM SUFFER THROUGH IT ALL!
LET THE FUN BEGIN!!!!
Posted by Lymetoo (Member # 743) on :
quote:Originally posted by Mom of 3: SO I BELIEVE HE NEEDS TO BE EAT'IN ALIVE STARTING AT HIS TOES AND VERY SLOWLY. LET HIM EXPERIENCE MY PAIN THAT I EXPERIENCE DAY IN AND DAY OUT. LET HIM SUFFER THROUGH IT ALL!
Good one!!
My LLMD was called a quack by a local dr....and I've lived to tell about it!! Posted by adamm (Member # 11910) on :
And the urgent care doc who told me the babs-induced brain damage was irreversible, but that I couldn't have it, because if I did, I wouldn't be able to speak
In ya' go...
Posted by disturbedme (Member # 12346) on :
I only have one doc for the gators. They'll have to share!
I forget the doc's name, but I went to her very scared, feeling ill, and all she told me was that I needed to see a psychiatrist, and to stop reading up information online.
WHY are you even a doctor if you don't listen to your patients?
Posted by Lymetoo (Member # 743) on :
Posted by jennyflyer (Member # 12792) on :
I got a good one, allergist I saw last November for ear/face pain, told me my fatigue and achiness becuase I was depressed because I'm 35 and am not married and have no children and I should see a psychiatrist. Nice.
Posted by Itsy_bitsyone (Member # 12635) on :
Oh my gosh...how many??
G.K., osteopath in NJ. Supposedly the openminded young doctor who wouldn't stop till he got an answer. After I didn't have sarcoid, HIV or cancer, he said it was 'stress' to impress the intern he was training.
Oh, Dr. R.J. in PA...another open minded osteopath. She knew I was sick...but with WHAT?? I find out later it was because I was out of work and the IGENEX test was expensive...so thats why she never mentioned Lyme, she didn't think I could PAY!
Dr M, an endo in Johnstown...jerk. "If its not thyroid..and its NOT...because your bloodwork is good, I don't know what it is. Get your other stuff checked out!"
Dr. T, rhuemtologist in Johnstown. "Oh, its SJOGREN'S, Mon Cheri!! Classic Sjogren's. We do not have to biopsy!! Its obvious...look at your skin! No, you don't need to have antibodies. You don't need further testing!"
I do not want to even go through the dozens of others...
INTO THE PIT, I SAY!!
A POX ON YOUR HOUSE!
Posted by LaurenTurner (Member # 12320) on :
I was lucky to have only gone to a few doctors before I found an llmd. But I'll throw in the one dr. that really makes my blood boil.
Dr. C from Texas... I was told that my chest pain, heart palps,lightheadedness, fatigue, vertigo, ect. ect were all attributed to heart burn.
I even mentioned lyme disease because I had done my own research. He asked if I had a bulls eye rash. When I sad no.. he told me there was no way I could have LD.
Ughhh, okay... Posted by MamaWolf (Member # 10578) on :
I have a nice crunchy one for the gators...and I tied a steak around his neck before I pushed.
My PCP (at the time) told me that I had a 'depressive disorder' to explain the fatigue, dizziness, stiff neck, headache, joint pain/swelling, and the 'migrating red rash'. (huh?)
I told him I was actually very 'happy' normally.
To which he cocked his head to the side and very slyly replied...
"Oh... well... that is very common, actually. A lot of depressed people mask their depression with happiness."
There are still scars on my chin from dropping it so hard.
In the pit with ya!!
(I hope the gator doesn't choke)
Posted by Lymetoo (Member # 743) on :
Ro...I think the gators probably DID choke on that one!! Posted by trueblue (Member # 7348) on :
quote:Originally posted by MamaWolf: "Oh... well... that is very common, actually. A lot of depressed people mask their depression with happiness."
Oh, that explains a few things!
I have a bubble brained one for today... "You couldn't have Lyme disease for 10 years before diagnosis you would have had menigitis, in the hospital on your death bed."
To which I responded, "uh huh" and dropped the subject.
I wasn't even there about TBDs... I went looking for a DO to do pain management.
Oh, she doesn't believe in Lyme and said it in the same tone as if she were talking about the Easter Bunny.
Careful, gators, this one might be chewy double-bubble. Munch her up please. (I escaped without steriods. )
Posted by Lymetoo (Member # 743) on :
Hungry, hungry alligators are waiting for MORE ducks!!!! Posted by TheCrimeOfLyme (Member # 4019) on :
My new, Dr. S from UPMC neurologist who told me that "everyone has swooshing in their ears. Its pulsatile tinnitus. Its normal and it will go away"
who then later, when actually READING my chart and LISTENING to me considering he made this "diagnosis a mere 60 seconds into walking into the room says
"its not lyme. its pulsatile tinnitus, though it has many causes, lyme could be one".
I lost IQ points that day. And he lost a patient.
Posted by Lymetoo (Member # 743) on :
up
Posted by Curiouser (Member # 14128) on :
I got one for the pit. An endocrinologist, Dr S in Lansdale, PA.
The other duck I was seeing (an ENT) wanted to take out half my thyroid because of nodules. I wanted a second opinion so I made an appt with Dr S.
First appt, she made quite the impression. A bad one.
Spent more time going over insurance paperwork than she did on the physical exam.
After 5 minutes of talking, she called me a "nervous patient". To my face!
She also said "you're getting older and these things happen" when I tried to talk to her about my fatigue and body aches.
She blamed everything on perimenopause, even though she refused to test my hormones.
Nevermind that I was still getting my cycle like clockwork.
Guess being a female in my 40s means that nothing else could possibly be wrong with me besides "the change".
She was so patronizing, I halfway expected her to pat me on the head and give me a cookie.
I wouldn't have minded the cookie.
Into the pit with the Rear-endo!
Posted by Robin123 (Member # 9197) on :
Into the pit goes duck atty David Tilles, for arguing a standard of care was not met because Dr J did not pay attention to Lyme tests that came back negative.
Posted by Monica922 (Member # 13496) on :
I have three I would like to feed to a pool of live piranha...from three different hospitals..Danbury, Columbia Pres, and Lennox Hill.
Dr. S. my lovely id wonder that kept telling me all summer that I had post viral symptoms...the babs was gone after 6 days of meds and I never had lyme..stop taking the doxy since the western blot was negative. The palsy, blurry vision, emotional lability and partial paralysis was just stress!
Dr. D my specialist for putting me on prednisone and saying I had hashimotos encephalitus..can you imagine he did not believe in LYME...nuts.Oh and then for telling me to see a dermatologist because the reddness and hives were stress..not a reaction to the prednisone allowing Lyme to kill me. This was when my sed rate BLEW UP!
Dr. Y for leaving me in the hospital to die on an IVIG without ever taking my blood or letting me see a specialist. He has never even called me back since I left the hospital...great DR!
Aligatiors are way too nice for them! Did I mention what the bills were just to physically stay at Columbia for 5 nights..34,000 and Lennox for 5 nights..86,000 dollars. By the way they did not gold plate me...nor did they correctly diagnose me!
[ 29. December 2007, 12:47 PM: Message edited by: Monica922 ]
Posted by Robin123 (Member # 9197) on :
Yeah, Monica -- I think we make them a lot of money. I believe my month stay at a rehab place once was 40K.
Posted by Cobweb (Member # 10053) on :
Up for LL if she so chooses.
Posted by Robin123 (Member # 9197) on :
Just saw that Cobweb brought the pit up today...We have the option of going to www.ratemds.com and making a statement there about doctor service, both the good and the bad ones.
Posted by ForestNymph (Member # 15109) on :
Here gator, gator. It's time for dinner.
I was referred to Dr. K (a rheumatologist in IN) by my family doctor. As soon as he walked in the room I felt uncomfortable. I picked up that he was pompous and unsympathetic right away.
I was teary eyed because I had no pain relief for the tremendous pain I was in and I was somewhat anxious because I didn't know what was wrong with me but Dr. K didn't see it that way. He didn't even examine me.
I started telling him about my symptoms and he interrupted me mid-sentence and said, "Look, you are obviously unstable emotionally and I don't think you're problems are physical in nature."
He then proceeded to give me the phone number to a mental health facility in the area. My husband and I looked at each other completely shocked then we stood up and walked out.
It doesn't end there. We went back to our family doctor and apparently Dr. K sent him a letter telling him that it was his opinion that I was mentally ill and our family doc of years sided with Dr. K!
Dr. R in Indiana, another rheumatologist, ordered many tests, including the traditional Lyme tests. He was compassionate but Lyme-ignorant. He said I couldn't possibly have Lyme because the tests would have caught it.
And I believed him!
So he was ignorant about Lyme, many docs are, but what really shocked me was he said he didn't know what was wrong with me, probably Fibromyalgia and CFS or MS, then he suggested chemotherapy!
They won't give abx to people with chronic Lyme Disease but they'll give chemotherapy to people when they don't even know for sure what's wrong with them! It probably would have killed me!
Posted by Lymetoo (Member # 743) on :
Thanks for adding that, Forest! Your story is a really amazing one. I'm sorry you have gone through so much!
Posted by wantabe (Member # 14703) on :
So many ducks to throw in where do I start?
One at a time for me-The best one for now:
Dr. T (Rhumy) I hope the gators are hungry, she was very full of herself.
After many worthless appointments and not ever checking for Lyme, she decided I was allergic to my husband's sperm! treatment-condoms and all will be well...
Must say this was a handy out when I was just so tired
wantabe
Posted by smjkoj (Member # 15241) on :
It's feeding time! The alligators can feast today. They're all in Northern Virginia unless otherwise stated. Sorry so long - this is quite cathartic!
Dr. B. with a pain center. Called my husband's LLMD a quack and wanted to be believe the diagnosis if fibromyalgia (even though that's also a clinical diagnosis and my husband has NO muscle pain).
Dr. H. - our primary care doctor. Put in my husband's file that he "needs more sunshine" and "needs an exercise program". First, my husband is not a flower. Second, Hmmm, my husband was a regular at the gym before his symptoms started and it didn't seem to PREVENT this all from starting. Also, my husband went back to see him after seeing multiple other specialists and the duck said "well, it looks like you're seeing enough other doctors for me to get involved".
Dr. G. - rheumatologist. Nice lady, but not educated in lyme. She did an exam and kept asking husband if muscles hurt in various places. He answered no every time. At the end, she diagnosed fibromyalgia. I read the pamphlet she gave us and it says muscle pain is a major indicator of fibro.
Dr. L. - internal medicine doctor as listed as one of the best in the Washingtonian Magazine. He had a major attitude about me attending the appointment with my husband (he had "mind haze" and really needed me there to explain things to him). The duck looked at me at one point and asked "who made you the boss?". Then said his problems were due to a medicine my husband was taking that the duck knew nothing about (he actually pulled one of his reference books out to read about it).
Dr. S. - infectious disease doctor. When the lyme test came back negative told my husband "under no circumstances do you have lyme. Some doctors may say you do, but I'm telling you it's a lie and you don't. Oh, and by the way, your HIV test is negative".
Dr. G. - neurologist. Gave him the depression questionnaire and implied it's all in his head.
I'm sure there will be more later!
Posted by mazou (Member # 15319) on :
Dr. E in nyc.
Very skilled doctor, technically, and knows his stuff. But, respectfully, I must say... he totally ignored me! Ignored my cognitive symptoms completely and just went about his thing.
However, it was because of my bad experience with Dr. E that I was motivated to search for the wonderful doctor I have today. So... thank you Dr. E!!! Much luck to you in your life.
Posted by Lymetoo (Member # 743) on :
The gators are getting VERY hungry!!!!
Let's feed them!!! Posted by Lymetoo (Member # 743) on :
still hungry!!
Posted by adamm (Member # 11910) on :
Now Serving:Dr. H. M. (ID, St. Louis Park, MN) Told me that, although he knew of a doc who treated long term, he wouldn't give me his contact info because such doctors were "quacks" who needed to be stripped of their licenses. He then proceeded to give me a copy of the archpoisoners' latest NEJM article.
The really scary part-- I got his name from the LDA database (have since requested its removal).
Posted by Lymetoo (Member # 743) on :
Yikes, that IS scary!! Sometimes these weasels change their minds about treating Lyme.
Even some previously well-known LLMD's no longer treat... or fail to adequately treat...which amounts to the same thing in the long run!!!
Posted by Tincup (Member # 5829) on :
Hey,
I am George.
I am the winner of the "Alligator of the Month" Award.
Besides having my picture on the right side of the entrance gate all through December...
I get my choice of ducks as they pass through here. So, I need to ask...
Any big fat Infectious Disease ducks out there?
If so, don't delay! I'm HUNGRY!
Posted by Lymetoo (Member # 743) on :
We told someone to put a duck in here yesterday. Where'd he go? Our alligators haven't been fed in months!!!
Poor George! Posted by Parisa (Member # 10526) on :
Well, I don't think I posted this last year when my husband spent 5 days in the duck motel. He probably could have spent three days less there but the infectious disease doctor wanted to make sure my husband didn't have tuberculosis. My husband was quarantined because his lung x-rays looked bad.
Of course, they look bad. He has pulmonary fibrosis caused by the mix of Lyme and co-infections. The other doctors knew he was in left field but let him take control.
After my husband produced enough sputum samples to clear himself of the tb charge, they booted him right out. I asked the discharging duck of the day why they had such a hard time believing in Lyme. His response, "we just don't know much about Lyme disease."
Quack, quack, quack.
Posted by Briannh (Member # 17555) on :
Here is my offer to the pit...
Dr D from the famous lahey clinic inf disease dept. (and I dont mean D for duck)
Some of his famous quotes.....
Dr D - "You were treated with Doxy which is the Gold Standard for treating Lyme disease. You cant have it anymore"
Dr D - "We could test you for co nfections, and you will probably test positive, howver we dont treat them as they go away on their own
Dr D - "If your knees and other joints are hurting but they are not swollen it's not lyme. The joints HAVE TO BE SWOLLEN for it to be Lyme"
Oh thats enough... Im getting sick now. Posted by Ocean (Member # 3496) on :
Here some lunch, yum yum yuuuummmmm!
Dr. P, Dr. B, Dr. R and Dr. S (I think). Those were the ones I went to in the first year of being sick until Dr. R told me I had CFS and I stopped going to docs completely!
Take care! Ocean
Posted by Lymetoo (Member # 743) on :
Boy, Brian....He's a doozy! Glad you found out "early" that he's worthless. He knows as much about Lyme as my 8 yr old great nephew!
Posted by eric555 (Member # 18343) on :
The very First Doc in Philly I went to see said it was all in my head, (Internal Medicine)
The Second (Neurologist) thought that I simply needed to be put on Anti-Depressants and that I was just over exited or had way too much time to research the Internet of symptoms that most people already had based on old age or the process of aging,
But I was not old... only 28 years old...
The Third (Dermatologist) agreeed that Most Skin Rashes can be easily treated with either skin lotions or some Anti Biotic pills for a week or two and then the problem just goes away...
But what about the headaches, the tiredness, the sleepless nights, and the rest of my symptoms which all attribute to Lyme...???
Eventually I actually asked another Doc for me to be tested for Lyme through various blood tests, and well it came back positive.
Now What ???
In my mind I can only relate to those docs as friends of Hitler.
If only they diagnosed me earlier like they should have I would probably be leading a normal life as they themselves do, like vacations every few months, etc.
And if I ever had the balls to be a suicide bomber I would invite all three of those docs into one room and press the magic button.
[ 12. December 2008, 01:58 PM: Message edited by: eric555 ]
Posted by HopefulinNY (Member # 15425) on :
I like this alligator pit! I just discovered it.
Here we go:
Dr. F - " This list of symptoms is too long, you'll have to decide which ones you want to look into first." My response - well I guess I better make sure my heart is okay! Never went back.
In Hospital with arrhythmia and vertigo - Dr. S - We can't find anything, it's probably inner ear and allergies.
Dr.? (can't remember) - endocrinologist - you may have insulinomas (tumors of the pancreas). We'll have to send you to the Mayo clinic and do a 72 hour monitored fast. 4 weeks later my labs came back, and she acted like she never made that suggestion.
Dr. ? (can't remember - neurologist) Saw report in his computer of endocrinologist (same practice) and said "oh yes, your neuropathy would support the insulinoma diagnosis."
Dr. S - asked for Lyme test (1999) "You don't have the symptoms of Lyme".
Many others who just looked at you like you were CRAAAAAAZY when you asked for Lyme tests.
All into the Pit!!!!! Posted by Lymetoo (Member # 743) on :
up
Posted by Leelee (Member # 19112) on :
Hmmmmm. Who first. Let's see.
Dr. T (PCP) who said I have psychological problems and obviously have had them for a long time.
The dr. (forgot his name) many years ago who told me I needed a hypnotist.
Dr. A who said I seemed "sane enough".
Dr. B who said I was lactose intolerant. She also said I needed a hysterectomy to "cure" my problems. BTW, she was not a gynecologist.
Dr. S who said I had chronic rhinitis.
Another Dr. S who would not test me for Lyme "because it gives too many false positives".
Another Dr. A who told me the ELISA test was much more accurate now than it was a few years ago.
Dr. C the dermatologist who looked at my weird red bump on my cheek and said she was too busy to do a biopsy, but she didn't know what it was.
Dr. B who said "who knows? who cares?" when I asked him why I had insomnia.
The same Dr. B who said "stump the stars" when I asked him why my tongue burned day in and day out.
Gosh, this list could go on and on.
Thanks for reading.
Posted by Lymetoo (Member # 743) on :
Sheesh.. leelee.. you've been thru the mill!!!
Posted by ThatColorGreen (Member # 16016) on :
My neurologist, Dr. B.V in Orlando who told me i was suffering from menstraul migraines, then it was glaucoma, then she referred me to a psychologist.
The two docs who told me (after describing what i now know to be bartonella sy;mptoms) that my body was probably just fighting an infection
and not to worry about it.
I said "I get this every month!" Again, neither of the two thought anything of it. I found it to be peculiar .
I now know, after educating myself, about the life cycles of these bas^&(^^ organisms..
Yargh. I promise to all of you that I will do my best to be an open minded LLMD!!!!
I like this post.. its fun =oD
Posted by Leelee (Member # 19112) on :
quote: Yargh. I promise to all of you that I will do my best to be an open minded LLMD!!!!
ThatColorGreen, Did I miss something along the way? Are you going to med school? How cool! Posted by rosebuds mom (Member # 17435) on :
Dr. R in NJ. We went to him because he was
supposed to be LLMD. He told us our daughter
was not sick, even though she could not walk and
had over 15 symptoms. He told us that it was
an emotional problem then asked if my husband
and I were having problems with our
marriage! After traveling 6 painful (for my
daughter) hours to see him! We were outraged to
say the least. We are
NOT paying him the remainer of our bill and we
told him why.
THROW HIM IN!!!!
Posted by Lymetoo (Member # 743) on :
DR R in NJ is sure to give those gators indigestion! What a terrible experience!
Posted by Tincup (Member # 5829) on :
The gators are hungry!
Feed them!
Posted by Gerifrog (Member # 17990) on :
- First, I offer my primary, Dr. J. and crew.
They sent me for testing a week after I was bitten and when I pointed out it would not be accurate said
not to worry, they'd repeat it in 4 weeks.
4 weeks later they refused to give me a script for testing as "Your test was VERY negative & you didn't get a rash.
There's nothing to worry about."
6 weeks later I was hospitalized with severe neuro Lyme and A-fib. Got 4 weeks IV rocephin.
Second, my ID, Dr. K. and my neuro, Dr. D. - who, when symptoms persisted, collaborated in sending me to a
rheumatologist, who decreed it to be Lyme and sent me back to them. Did I get treated for Lyme? NO, I was told
(very kindly) I no longer had Lyme, I was suffering from emotional stress & needed a psychiatrist!
Enjoy, gator!
Gerifrog -
Posted by Tincup (Member # 5829) on :
Gators need some supper!
Posted by Lymetoo (Member # 743) on :
Hey, it's the alligator pit!! It's like an old friend coming back to visit us!!
Posted by daisyrlb (Member # 15686) on :
I just found the alligator pit and after reading what others wrote, I am compelled to come back another time.
I need to post this when I have more time to share about these ducks.
Posted by Tincup (Member # 5829) on :
Gators are getting hungry again! See for yourself.
I thought I'd posted here already...ok, I've got a couple..
1) My GP/PCP...refused to test me for anything, or to refer me to anyone (I went to a drop in clinic to get referred to a sports med doctor, who tested me for everything). He ONLY treated my ankle pain- and even then he just gave me arthrotec, then Celebrex...according to him, there is nothing wrong with a college student on Celebrex.
He also said Lyme disease doesn't exist in Alberta (it's well known that it does), and told me my symptoms were either imagine or ALS...and then laughed me out the door (after suggesting I bet on the outcome of my Igenex test)
2) The doctor at the drop-in clinic who looked back 3 months in my chart when I came in with muscle twitches, because he wanted to prove I was imagining it. He went on to tell me all my other Doctors were wrong, and I didn't even have shin splints....
3) The neurologist who took 8 months to make me an appointment....and then suggested I shouldn't even bother coming
4)All the doctors who kept telling me that rest and ice would fix all my problems- even though by the end, 2 YEARS of rest and ice had done nothing.
5)My uncles, a New York rheumie, who is doing his best to convince my family that lyme can't be chronic
Posted by JamesNYC (Member # 15793) on :
Why can't we post full names? We aren't trying to protect these morons. Actually, the opposite. They should be reported to their state boards for poor practice.
Posted by julielynne4 (Member # 20336) on :
Love this thread. It is so sad that so many docs are so cruel and ignorant. I wonder how many years combined have been lost due to their idiocy.
I've got a few for you:
When I was 12, had enlarged spleen and vision loss. Told this was strange but nothing to worry about.
As a teen I asked my mom and dad to take me to counselors/psychiatrists because I was so full of anxiety, panic attacks, obsessions and compulsions.
Counselors told me I had been verbally abused as a child, and that was why I had all the anxiety, etc. I was not abused...
The psychiatrist told me, after a 5 week session, that "We all have our quirks." I left there in tears, as I knew there was something really "wrong."
In my early twenties I was diagnosed with OCD. Put on anti-psychotic meds, antidepressants, and some other drug.
During one of my pregnancies, I knew I was sick beyond pregnancy symptoms. I told the doctor I felt like I had an infection throughout my body. She said "There is nothing wrong with you." I was so upset because I knew she was wrong but didn't know why.
Finally last year, after 25 years of this sort of crap, I got re-infected and became ill with more "classic" lyme symptoms (no bulls eye though).
My primary doc put me on 3 weeks doxy but a few days later told me to stop it since I had a negative Elisa test.
So she sent me to a neurologist. He said it sounds like lyme and tested me for coinfections too. I was very hopeful.
Test came back positive for Ehrlichiosis but only IgG. He did not tell me this; it sort of "slipped out" over the phone, he said as he was reading through my tests, "Hmmmm this is strange...nevermind." And I said "what is strange?" He said it is nothing, you just had ehrlichiosis at one point, but not anymore.
I questioned him, because I had been doing research. He said in a VERY MATTER OF FACT manner, "You do not have lyme disease. There is no way that your symptoms are due to lyme. I cannot help you, find another doctor."
What a jerk. I hung up crying. Thankfully I found a wonderfull LLMD and am in treatment for Babs, Ehrlichia, Lyme, and Bart.
Posted by Sick Tick (Member # 23003) on :
OOOhhhh what fun! Hope the alligators are hungry!
1. Dr. B, ER doctor who refused to make a referral for me to an infectious disease MD, despite my having fever of over 103 with known tick bite a week prior! Said his colleague (the first ER doc I saw) was wrong and that all I had was a "presumed" diagnosis of a tick-borne illness. Who cares....with a fever that high, wouldn't this be an ID thing regardless of the tick thing?!
2. First ID I saw. When she was told by my GP that my initial titer for RMSF was low positive, said "She can't have RMSF-she is not sick enough! So she ignored it. Second titer 3 weeks later came back high positive and with a large increase!
3. Dr K, ID. I have to say he did at least give me the maximum treatment allowed by the IDSA-but once that was done, he refused to see me for follow up. "You had an infectious disease, you were treated for that disease, and now you no longer have an infectious disease. You have to deal with the damage done, but you are no longer an infectious disease patient"
4. Dr. don't know his name, but will dub him Dr. I for ignorant...MD in the state where my bite occurred, who insisted during phone consult that there are no ticks in that state that carry Lyme disease, so I can't have Lyme. Really??? My Western Blot, which he had right in front of him, says I do per CDC guidelines! Not to mention that his office staff said their MD's treat lots of Lyme in that state!
5. Dr Ignorant's colleague, who added that "We do not believe in chronic Lyme, and we do not agree with long term antibiotics", despite my being not chronic but recent Lyme with copntinued symptoms....and I was not asking for antibiotics!
6. Some triage MD at Mayo clinic! My sympathetic-but unable to help me further-GP made a referral to Mayo, and they refused me as a patient!
Sad that I have so many for the alligators, as I have only had this dumb disease for 6 months!
Posted by Lymetoo (Member # 743) on :
That's horrible, Sick tick!! and to think... You probably can't get away with suing ANY of them!
(I would try!)
Posted by Sick Tick (Member # 23003) on :
I wish I could...I wonder when we will see commercials on TV where attorneys are advertising "If you have Lyme disease and have been abandoned or undertreated by your MD, then call the law offices of blank and blank"!
Posted by LymeNetPerson (Member # 23588) on :
Near 20 years ago at the base in CT, was told I could not have a rash with an outer dark circle and inner lighter skin color because...(drum roll)... the doctor didn't see it. This was along with fever symptoms and of course the black tick. I even saved the tick just in case it had useful information and they ignored it. I did not know what Lyme was then but I did know the tick bit me and gave me a funny rash where he bit me.
If possible, I'd like to toss other quacks uh ducks in with this condescending man because the word needs fatter gators more than these ducks.
Thanks for the great idea for a thread.
Posted by LymeNetPerson (Member # 23588) on :
Great ideas sick tick on commercials!!! If only it were true, they'd make a fortunate and people after us might have normal pain free lives.
Posted by Sick Tick (Member # 23003) on :
Hah! You should have seen the first ID I saw when I brought the tick who bit me to her office and tried to hand it to her in a plastic bag! It was dead....still, I know she cringed when she saw me throw it in her cute little office trash can!
Posted by Lymetoo (Member # 743) on :
quote:Originally posted by Sick Tick: I wish I could...I wonder when we will see commercials on TV where attorneys are advertising "If you have Lyme disease and have been abandoned or undertreated by your MD, then call the law offices of blank and blank"! [/QB]
That WOULD be wonderful!!!
Posted by Wonko (Member # 18318) on :
I think a few docs let me down, but I resent my GP the most.
I had recently moved to a new state when my obvious decline began, so I had no existing doctor/patient relationship.
The first time I went to see my GP was for tingling in the face and extremities, and it had already been going on and worsening for months, but I was kinda in denial and waited until it was bad to see a doctor. I was 28, no other medical conditions.
She ordered an ELISA test, but it was negative.
About a year later (during which I was extensively tested and examined by specialists for every condition known to man!) I started to suspect Lyme. I also made about a dozen visits to her office during that year as my condition worsened.
I asked her to either order a Western blot or do a trial of antibiotics. She refused, on the premise that I was too likely to get a "false positive." She then told me not to return to her for whatever this problem was.
In other words, she gave up on me.
This of course, after she put me on a course of steroids a few months prior...
Posted by Lymetoo (Member # 743) on :
up for kimmie!
Posted by Misfit (Member # 26270) on :
Oooo....this is good.
Dr. H (sure wish I could give the town)...an ID duck who told me that I had Lyme "at one time", and there's no such thing as chronic Lyme, and that my symptoms are something I'm "just going to have to live with".
Dr. T...A rheumy in one of Oklahoma's two large cities...told me that I don't have Lyme, never had it..and diagnosed me with CFS and FM AGAIN. (I was dx'ed years ago by another Dr.) Didn't mind sending me for a round of blood work (ten vials, all for me!) and had ordered a whole host of x-rays. Never gave me a good reason for either, since ALL my problems are "CFS related".
Oh..he also told me that Chronic Fatigue Syndrome is a form of arthritis, when I asked what CAUSES CFS and FM.
At least my GP apologized for sending me to those "quacks" (her words, not mine..though I wholeheartedly agree), and didn't make me go to anymore.
I got the same basic spiel everyone else here has gotten, and thanks to this board I was really forewarned about ducks like this. I wasn't surprised when I heard the same things I've seen people post here repeatedly.
The rheumy even alluded to this possibly being "psychosomatic". I could have gleefully caused him bodily harm.
Posted by skies (Member # 28064) on :
Dr. Mc--My husband's PCP.. saw him in the beginning when I was desperate for answers and was so dizzy/light headed I could barely stand it... Told me I had anxiety which causes people to be lightheaded (I've never had an anxiety problem in my life until lyme & co)..sent me away with a script for Prozac, which I never took. He said that since my CDC western blot only had 2 positive bands and I wasn't "limping into the office with severely swollen joints" that there was no chance I had lyme!!!!
Dr. P.. a neurologist that my PCP referred me to.. She refused to even see me! Basically yelled at me and said that she doesn't believe in chronic lyme and that she had no idea why my PCP would even send me to her and that she could not help me! I left that office crying. My PCP actually knows how sick I am, but knows she cannot treat me adequately.
I don't remember the doctor's names, but I should also mention the ER doctors at my local hospital.. Went to the hospital twice in the beginning of this w/racing heart, light headed feeling, dizziness, etc, etc.. AGAIN, they blamed it on anxiety and they couldn't find anything wrong!
This is a fun thread!
Posted by kimmie (Member # 25547) on :
So many in the South so little time, where do I begin...
Dr S IDSA in North Florida...I was referred to him for my + western blot and he will not see lyme patients because of the "psychological aspect of the disease" instead they refer them to the county health department! I was not aware the health department did PICC lines for neurological lyme...good to know!
Top childrens hospital in Florida, another IDSA doc. Broke out his red book and referred to it as "the bible of infectious disease". Turn to lyme page..."tertiary lyme is treated with 3-4 weeks IV rocephin." Lyme treatment simplified at its best.
Atlanta top teaching hospital: took positive lyme elisa and recent tick bite history and brain lesions on MRI as a diagnosis of "post traumatic stress disorder or marital problems"
Daughter Pediatrician in Georgia: misdiagnosed bullseye rash as ringworm. When I persued lyme her chart reads "maternal anxiety and imaginary lyme disease"
Another IDSA winner in Georgia: Took ANCA+ vasculitis and lyme western blot as "anxiety disorder".
I have more stories! It is amazing! I have lost faith in almost every type of docs except the LLMD's.
Thanks for finding the alligator pit Lymetoo! Hope they are hungry!
Posted by Lymetoo (Member # 743) on :
Boy, kimmie.. You've been thru the mill!!
Posted by Jacqi (Member # 6619) on :
To the infectious disease doc that didn't care that I had been bit in 75/76 and that it was then 200 and gave me 10 days worth of Doxy and said you are cured, into the pit you go.
To the duck two years ago that was on call at the hospital that admitted me that asked me "are you sure you just aren't looking for some attention?", umm, hello? Have you seen my EKG's? Have a nice swim!
To the Pulmonologist that kept telling me that I HAD to take steroids, uhhh, no, I don't! Watch out for that one over there, I think he has very sharp teeth!
For every quack that has ever made me feel like I was crazy, nuts or just plain invisible. For ever quack that has made me doubt MYSELF as person, into the pit you go!
Posted by Lymetoo (Member # 743) on :
quote:Originally posted by Jacqi:
For every quack that has ever made me feel like I was crazy, nuts or just plain invisible. For ever quack that has made me doubt MYSELF as person, into the pit you go!
- Amen... I think my GI dr needs to meet the alligators too. Posted by Robin123 (Member # 9197) on :
So, ho ho ho - what I did when I finally got diagnosed: I contacted as many of the 300 so-called medical providers as I could and let them know my diagnosis. Then I asked for my records to be updated.
I also wrote a letter to the psychologist who screwed me over at a major pain clinic, telling her how I felt when I found out the secret notes from her in my record that blamed my symptoms on psychological issues when I had told her I was hurting and that's why I was at the pain clinic!
I had found it when another pain clinic asked for my records and I asked if I could speed up the transfer, so I got them myself. Yep, a speed-up to nowhere again!
Posted by deerose (Member # 27484) on :
Neurologist who did all kinds of tests... gave me IV steroids...and pronounced that the
transverse myelitis would disappear in three months (2007). he was a kind and nice man... oh well. Nice is essential but not good enough.
EDT practioner who found the lyme and helped a lot but in the third year when undetected bartonella brain was killing me
and I wanted to die she pronounced that I should "get out socially" and recommended I join a club majoring in men, by which she meant date..i.e. get a sex life."I still had my looks"
I started out the appointment in tears of desparation and ended the visit in sheer shock.
My very longtime very caring integrative MD who on occasions when I wanted to discuss long term lyme said "we are not going to talk about that".
Every practioner who was nice but got restless with me when I did not improve on their timetable. I can feel that.
I am getting over lyme faster than getting over them.
Posted by Susie R (Member # 30780) on :
I called the teaching hospital ID department and asked to speak the person who knows about Lyme.
Because I am in health care, I got the courtesy of a call back almost immediately.
This ID duck, the "most knowledgeable Lyme ID specialist" told me nobody would treat my son (who has a positive Elisa and 8 positive IgG bands on WB and has DEMENTIA at 20 years old). He also warned me to stay away from "so-called Lyme-Literate MDs".
Stay away from YOU, you duck butt.
There, now I feel better. Susie
Posted by Lymetoo (Member # 743) on :
Very cathartic, right, Susie!? Posted by kimmie (Member # 25547) on :
up
Posted by linky123 (Member # 19974) on :
Where do I begin? My favorite is the time I took my son to the ER with a breathing problem.
The local GI doc was working extra hours there to put her kids through college.
I mentioned lyme and she became very hostile asking for the llmd's name etc.
She dx my son with a 'spastic esophogus.' I said, "it's not his esophogus; he can't breathe!"
She said, "nope, it's his esophogus!"
Well, alrighty then!!!
There's more, but I will have to come back later to tell about them when I have more time.
Posted by Lymetoo (Member # 743) on :
Well, looky what kimmie brought up!!! Posted by kimmie (Member # 25547) on :
I thought it was your favorite Lymetoo! HA HA Posted by lax mom (Member # 38743) on :
Dr F an ER Dr.
While my blood was being poisoned by e.coli, she was too busy trying to paint me as a crazy hypochondriac, asking me questions like:
"Your ears are the cleanest I've seen, you don't use Q-tips do you?"
"You're not supposed to put anything smaller than your elbow in your ear"
"Were you abused?"
"Why would you go all the way to NY for a Dr?"
"What city was the Dr in?"
"You don't remember what city your Dr was in?"
I didn't get IV antibiotics for 12 HOURS!!!!
I wrote a complaint to the hospital and they are looking into it.
She should not be allowed to treat humans.
Eat her up Gators!
Posted by Lymetoo (Member # 743) on :
Up for Judie!!
Posted by Dogsandcats (Member # 28544) on :
You are really enjoying this TuTu, remind me not to make you mad......
I have a few to feed Mr Alligator...he might get bloated and then constipated....
Posted by Razzle (Member # 30398) on :
I think there are about 100 doctors I could toss into this pit...
The best one, ha ha, is the GI doc (we called him Dr. Brick cuz he always looked stoned) who told me not to research things that don't concern me, when I asked him a question about my Husband's GI Disease...
Oh yes, and there is the ID Duck who told me in the hospital I could not possibly have Lyme cuz ticks only exist in Oregon and cannot cross the border into WA.
He did run a Lyme test on me though, just to humor me I think, and when it came back CDC positive, he said must be a false positive.
And all the ducks at Mayo...much away, gators! They were so busy looking for how to diagnose me with a psychological disorder, they couldn't see me the patient for all their egos and lies and eagerness to go on vacation!
And the other GI doc, who seemed nice at first, but when I went alone to an appointment (instead of with my Husband), she sat next to me and said in a very condescending/patronizing voice, "Now [my name], don't you think this could all just be stress of being a newlywed?" Jeez doc, I thought I was seeing you for a REAL PHYSICAL problem (colonoscopy proved I had inflammation) not a mental one...I never went back...
And then there're all the docs at a certain teaching institution in Seattle...who insisted my gut shutting down was all just a bug and it would go away if I just got a job. Got diagnosed with Gastroparesis a week later...
And the GI doc (can you tell I have had the worst experiences with GI docs?) who told me to go to Mayo, there was nothing he could do for me (i.e., your problems are all in your head but I'm to chicken to say it to your face)....
And the ID doc who told me to shut up and take my Crohn's meds like a good patient...that there was NO WAY I could have an infectious disease because I DIDN'T HAVE A FEVER!!!
I really could go on and on...
Posted by Robin123 (Member # 9197) on :
Sometimes I've wondered about resorting to calling them by their first name only, not last name, not Dr, and then explaining that when they're ready to doctor again, then I'll call them doctor.
That would be quite an act of civil disobedience. Haven't tried it yet. But it's true - if they're refusing to doctor these illnesses, why should we call them doctor?
Posted by treeinatree (Member # 38613) on :
Neuro-ophthalmologist at teaching hospital with huge following of syncophantic residents. I had a radiology report stating possible neuritis. And referral from excellent ophthalmologist with her observation of nystagmus. Had huge muscle jerks of head with eye movement too. I was worried because I couldn't do my job tasks. Performed a 3 second exam and said,
"Don't move your eyes."
I asked if he meant right then - was he trying to look at something? No, he meant FOREVER.
He clarified, "Get a different career."
PUSH!
Posted by Lymetoo (Member # 743) on :
Razzle, those are awful!! I am sure the alligators are having a fun run with them!!
Robin.. nice idea about the first name.. hmmmm
tree... sorry to hear!!!
Dogs... let's hear the "names!"
Posted by Lymetoo (Member # 743) on :
Got a doctor you'd like to throw into the PIT?? Posted by Tincup (Member # 5829) on :
Haven't seen this in a while! Makes me laugh!
I did want to share the note I got this summer from the gators. Seems we are feeding them well, but they decided they would like to try a more varied diet.
They asked if we had any others who were getting in our way and requested we toss them in the pit for them to sample.
BUT, they said, absolutely NO politicians! As they made clear, they may only be gators to us, but even they have feelings and know a bad meal when they see it.
Posted by GretaM (Member # 40917) on :
I hope they're hungry...
How many gators does it take to eat bloated specialists?
I've got 16 well fed specialists to toss in.
How many gators does it take to eat a regular GP?
I've got 32 GP's to throw in the pit.
The first one?....
A dermatologist Dr. M.
Who looked at my EM rash, asked me my other symptoms, asked me if I had travelled East.
I said No.
He said, "Well it's a dead ringer for Lyme Disease, but we don't have lyme in BC"
And handed me a script for steroids and methotrexate.
He's got to be 90 now and he's still practicing his "black art".
Antiques go in the pit first!
Posted by lax mom (Member # 38743) on :
Oh Greta! That is horrible!!!!!! He is pure evil!
The gators are now covered in the dust that collected on that old antique!
Posted by Lymetoo (Member # 743) on :
What a stupid doctor .. not rare though. I think the gators are going to have to chew on that one a LONG time! Posted by beaches (Member # 38251) on :
Wow, this thread is an oldie but a goodie.
DD had a +IgM back in January of this year. Her LLMD, YES an ACTUAL ILADS-educated LLMD!!! opted to have her try some potions he sold in his office.
Well when his potions didn't work he gave her oral abx and wondered if she had ever taken what he was going to prescribe.
$%^&*()((**%__!!%%#^_))*^*&^R$E%^&*
Um, nah, she's only been sick for what, 7 years? But no, she's never taken oral ceftin. Nope, not once, ever.
After a couple months on that, there was no improvement (predictably so) and I stated that there was CLEARLY a need for IV abx based on her symptoms and IgM + lab test (DUH).
After lots of head-scratching, procrastination and a few more mega-dollar visits, he agreed.
But the procrastination and BS from his office continued. We moved on.
BYE. Into the pit with him!
Posted by Kudzuslipper (Member # 31915) on :
Great cathartic thread TuTu!
For me... It was many... But it was mostly the system that failed me. 25 or so years ago, with my first brutal rash bullseye-ish but allergic... They were smart enough to test... But not smart enough to treat. Started a pursuit of answers, specialist after specialist.
10 years later, I had a very smart, kind doctor, who tried to treat me on just band 41 positive cause of migrating joint pain, rashes, constant swollen glands and low fevers...she put me on doxy...but when further tests came back inconclusive, the medical group she was in, declared this was not Lyme!!!
But when my current dr... Pursued Lyme on the same band 41, I pulled up all my records from the that good dr. She tested all the right things, parasites, kreb cycle, mitochondria and I believe had a hunch but was not allowed to "practice" medicine. Sadly a year later, she left to do research and become a webmd cause she didn't feel she could really be a doctor in the current system. (And that was in 1999)
So my rant is with the system,the CDC, greedy pharmaceutical companies, greedy, greedy insurance companies.... I have had some good pcp's who have tried... They all left, cause they were not able to practice the sort of medicine they had hoped.
But then there were all those specialist who told me I was stressed, allergic, overweight, and it all was in my head. Oh about 15 I'd say, that should feed the alligators!
Posted by desertwind (Member # 25256) on :
Yeah, but you look good! Throw em all in there.
Posted by soccermama (Member # 35101) on :
I would like to throw in the ID doctor Dr. Thomas Lamarre. Because of Obamacare, he had to join in the office of my PCP last year. My PCP was excellent and very supportive of my ongoing lyme treatment by my LLMD.
Not being aware of the lyme controversy, my PCP thought it would be good for me to visit the ID doctor. I told him that I didn't think it would be helpful but I wanted to maintain the good relationship I had with him.
So, off to the ID doctor. The appointment was horrible. He accused my LLMD of being a gold digger. Told me Igenex was not an authorized lab. Said I could not have lyme disease.
He never offered any hypothesis about my condition. After lecturing me for 45 minutes, he left the room saying he wasn't going to charge me.
The worst part is he must have spoken to my PCP because, he is no longer on board with my treatment and is basically saying that I am well.
Sigh!
Posted by GretaM (Member # 40917) on :
In gator speak
I D
Means
Indulgent Dessert...
Gators LOVE dessert!
Posted by Tbrown2 (Member # 42446) on :
This is a great thread. Really sad to see how many people had bad experiences with the person
they are trusting their lives with. Just goes to show that doctors are not gods even when they think they are.
My story is very similar to others:
My primary care (former) waited 3 weeks to call me back with my lyme test results then proceeded
to tell me that I was off the charts positive like it was no big deal. Prior to this I went to
the doctors twice in 2 months with all the common symptoms of lyme and was shrugged off until I
literally had to demand a lyme blood test be done through my own research. After a 28 day
prescription of doxy she asked to see me again almost as if she knew I wouldn't recover. Well
after feeling 10x worse she said "well you completed the medicine you are cured your next
step would be to get some psychiatric help"
WHAT A QUACK
Posted by Suebear (Member # 42596) on :
OK, I have unknowingly been in the lyme lite for almost eight years now, just found out 2 months ago. I have heard it all, but one of my favorites is this:
Doc: So you know you moved to this small town (I grew up here and moved back)....people are not accepting of new comers, I see it all the time. Do you think this could be causing you could be depressed?
Me: I'm not really following, but I am concerned about my son regarding this comment.
Doc: Your son will be fine, he started school here and plays sports, he is accepted.
Me: I'm not so concerned about him being accepted, I am concerned that he will become narrow minded and not accepting of others!!!
Doc: Quickly turned and left the room. lol
So this is the answer to my physical problems...Really?
Posted by BoxerMom (Member # 25251) on :
Greta -
Posted by Lymetoo (Member # 743) on :
quote:Originally posted by soccermama:
"He never offered any hypothesis about my condition. After lecturing me for 45 minutes, he left the room saying he wasn't going to charge me."
-- I had a similar experience many years ago! Thankfully, not 45 min worth! But he left the room and then I found out he didn't charge me. I told the nurse, "GOOD, because I'm NOT going to PAY him!!"
--
"The worst part is he must have spoken to my PCP because, he is no longer on board with my treatment and is basically saying that I am well."
--
That is HORRIBLE! I'm so sad for you!
Posted by Robin123 (Member # 9197) on :
Suebear, I think we're doing something right when the doctor leaves the room!
What I do after that is go out and educate the staff since they can't walk out!
Posted by Lymetoo (Member # 743) on :
Yep!! My FORMER Dr was steaming mad. But my husband called him later and gave him quite an earful!!
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As if to say,hey stay away from my territory,that's only for qualified Med. school Ducks to read!!![[Wink]](wink.gif)
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so long, duckies!
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Thanks! Nyummy! He seems to think there are more out there. Toss 'em in!
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