Tonight someone on this board began a little cat-fight (which I refused participate in) in a thread that wasn't even lyme-related.
I shared my little boy's story of neurological illness, which is not something that is easy for me to do in a place full of strangers, and was essentially slapped in the face for it. Since I feel this is completely disrespectful and I don't want something so close to my heart disgraced by petty sniping, I've deleted my post.
I'm sorry to say this comes at the end of a long day of disappointment with Lymenet. I was researching several things today - yoga, rife, magnesium, minocycline, HBOT - and in every single thread there were people sniping at each other and being rude to one another. In two threads there were people linking their own book/products.
This is *not* what I need right now. What I need is a good source of information, support and references. I suspect many people feel the same way.
I'm sure those of you who don't behave this way truly wish this wasn't happening, but it is, and I honestly cannot stand to wade through (and endure) the sniping and backbiting to get to the information I need.
So I'm signing off. I do very much appreciate those of you who helped me during my recent dx and first days of treatment. I wish you all well and hope you find not only health but PEACE.
Sarah
Posted by Cobweb (Member # 10053) on :
I'm currently listening to Josh Grobin's song "You are Loved (Don't Give Up)" It really helps me in these uncertain times.
Sometimes when I'm looking for answers I find SEARCH a bit tedious myself, so I just start a new thread on the topic. Which probably ticks some people off, but most people have the patience to answer in a kindly manner.
Since Lymenet is an open forum things do get a bit messy at times. I have learned from others wiser in this process to SOB-Scroll On By.
Sorry you felt slapped in the face. I know it stings. When that happens to me I have a choice to either react immediately, or wait a day or two to respond when my feelings aren't so hurt. but often I do like you, delete my post in an effort to remove myself from harm's way.
If Lymenet is not helpful to you, I hope you find some support where you are more comfortable. I didn't read the post you're referring to so I can't respond to it, but I know that there are many caring people on board with children they cherish.
Peace be with you,too Sincerely, Carol
Posted by hopeful123 (Member # 3244) on :
sarah,
in the twelve step meetings there is a slogan which i continue to use in all kinds of situations. Take what you like and leave the rest. it isn't easy to do this, i know. however, we are not as evolved as we would like to be and the unskillful communication waxes and wanes.
please come by at a later time and see if things are a little more mellow.
in peace. hopeful123
Posted by Lymetoo (Member # 743) on :
quote:Originally posted by hopeful123: Take what you like and leave the rest. it isn't easy to do this, i know. ..............please come by at a later time and see if things are a little more mellow.
The person of whom you speak said that they didn't even read your response. That happens all the time. Too many people here read only the first post on a thread and then reply to THAT.
They probably scrolled right on past your post. Please don't permanently leave this site. We want to help. Posted by just don (Member # 1129) on :
Lymetoo is indeed correct. When we are tired and drained it is too easy to read part of the posts and respond to something there and misread that as a snipe to what we said in honesty.
MOST misunderstandings are just that. SOB and let the bad roll off your back like water off a duck.
Anytime you get this many people together there is ALWAYS going to be some conflicts. Guess I just seem to enjoy the GOOD of the people here. I must miss most of the sniping!! I enjoy it here,,,could you too???mostly--just don--
Posted by stymielymie (Member # 10044) on :
i so sorry sarah you had this problem. it does occur by ignorant and sometimes abusive people on this site. i have left several times in the 5 years here. but i always come back. this is the only place where people know how you feel and USUALLY respect your posts. there are many woman in lymenet probably 10:1 . there are a lot of hormones, lyme rage, grouchy, menopausal woman and some mean, depressed and lyme raged men, that at times can be overwhelming for a new comer.
people will voice their oppinion and you may not like the answer, thats how it works here. i left 6 months ago because of lyme rage. i could not answer a post without a mean remark. so i left. some people don't realize that people can get hurt by answers. i am back and now everybody likes the change in me, they even pick on me now, but it is in fun.
you might try a support group in your area, but you will find the same crap there as here. nice people, and cranky people.
take a couple weeks off. read the posts. do searches. don't post unless you want a vast array of oppinions.wait till you can handle it. jump in on other posts. you can learn alot just by being a bystander.
docdave
[ 17. April 2007, 01:37 PM: Message edited by: stymielymie ]
Posted by SarahL (Member # 11452) on :
Good advice, all! I'm just hypersensitive right now (two days until my igenex tests are back and we find out if insurance pays, just found out my grandfather has lymphoma, I'm herxing out the wazoo, etc etc etc).
I'll take a couple of weeks off and see how I feel then. If I'm better able to ignore the stuff I don't like, I'll be back. If not, then not I guess.
Thanks again for replying, guys.
Sarah
Posted by Lymetoo (Member # 743) on :
Sarah....I'm sorry to hear about your grandfather. Hang in there...and check back with us later.
Posted by troutscout (Member # 3121) on :
Sarah,
I agree with everything that was posted earlier here. (when you finish this....go to my next post) I never did see what you were speaking of....as I now severely limit my exposure on this website...due to exactly what you are speaking of.......
There certain elements of people on this board that have chosen to ALWAYS 'spite' another group of sufferers.
Why? Politics.
There is a VERY large valley of dispair.
Those that are centered on the Liberal end of their politicis, pick on, castigate and have basically pushed out those that try to stand for a more conservative 'air' on here.
I am one of those more conservative people.
It is understandable when we as sufferers don't get along because of a flare-up...but when it is simply due to the political beliefs of the poster...and in MANY cases....simply how they make a living....how dare they make a living from the knowledge learned from their own struggles and then guiding others thru this illness in the future.
(That's just exactly what your physician does whenever you walk into his/her office.....they make money off of YOUR agony.)
I am a positive person that quite frankly has choosen to help others by asking them to help themselves. I'll be someones biggest chearleader and also the shoulder for them to cry on.
I take and make calls to sick people at ANY hour of the day......still.
God Bless the Lymie that can actually stand the loving people on this board who still let their politics stand in the way. They have my respect.
However, in the end....this website is still for of back biting nit-pickers...and everytime I post something positive...they come out of the wood work just to screw it up.
They know who they are.....and they are worse than a pack of wolves.
There...it is said...I am done.
Now.........read my tag line here....take a deap breath.....and mourn the life you've lost to this disease. Use the experiences and knowledge that you will gain to touch at least one life...for that may be the one person that changes it for all of us.
God Bless You and always remeber....our Creator gave us Free Will...it is up to us to use it...Now...how will you use yours.
I think you are one tough cookie....and I respect you for being open and honest about what transpires here.
Good Luck,
Trout
[ 17. April 2007, 02:11 PM: Message edited by: troutscout ]
Posted by hopeful123 (Member # 3244) on :
sarah,
sorry to hear about your grandfather. prayers your way.....
Posted by CaliforniaLyme (Member # 7136) on :
I like 12 step philosophies too*)!*)!! There's a saying regarding when people are talking- or writing-
"Take the good and leave the rest!!!!"
I get really upset sometimes by things, too. I have said over & over in my head, "I am never ever coming back to LymeNet! People are mean there!"
But I come back anyway- Because there are lots of great people too- and nice ones- and MOST like MOST people, are a mix- Best wishes, Sarah
Posted by troutscout (Member # 3121) on :
I want to add to my post.
Sarah,
There are MORE good people on this board...than the few....the miniscule amount of people that do what I said above.
Your situation wasn't an example of the political harbinging.
Trout
I would encourage you to STILL come here anyway.
Posted by mag (Member # 8920) on :
Hi Sarah,
I am sorry to hear about your family illness and your battle with Lyme D.
I agree - with everyone "Scroll on by" is a great way to conduct your life while on the board. If I did not do this this -- well I would be long gone!
There are many people that are willing to help you on the board. As you go through your struggles - you will be able to help others too!
Sorry for the the not nice hits you received and Here is a HUG for your hurt!
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