I got bit prob sometime in June. Had a swollen rash in the groin area, swollen lymph nodes and flu like symptoms. Went to the Doc on June 22, he put me on Doxy for 14 days. I felt better. Lyme test came back neg. Started feeling crappy in July. went back to the doc Aug 6 with arthritis type pain all over my body and could barely get out of bed. Doc put me back on doxy for 14 days. Retested for lyme and she did a sed rate. Lyme came back pos and sed rate was slightly elevated at 28.
Never really felt 100 % after bite. Now I have pain in my back, neck and hips, tired all the time and a dull headache that never goes away. I feel like crap. Went to the doc yesterday. Unbelievably he said he doesnt think its the lyme!!! Gave me muscle relaxants and moore blood work... a sed rate and a hla B27. They are not back yet. I feel like crap Ive been in bed all day. I took the muscle relaxant (Tizanidine)just knocked me out didnt help anything! Oh ya and he was nice enough to make an appointment with a Rhumatologist in OCT!!! Im so frustrated but when I call around to other docs they cant take me now either.
Posted by Lymetoo (Member # 743) on :
Skip the rheumie and the duck you just saw!! Go straight to an LLMD!!!
If that's not lyme, I'll eat my hat!!
Lyme Disease Symptoms List 1. Unexplained fevers, sweats, chills, or flushing 2. Unexplained weight change--loss or gain 3. Fatigue, tiredness, poor stamina 4. Unexplained hair loss 5. Swollen glands: list areas____ 6. Sore throat 7. Testicular pain/pelvic pain 8. Unexplained menstrual irregularity 9. Unexplained milk production: breast pain 10.Irritable bladder or bladder dysfunction 11.Sexual dysfunction or loss of libido 12.Upset stomach 13.Change in bowel function-constipation, diarrhea 14.Chest pain or rib soreness 15.Shortness of breath, cough 16.Heart palpitations, pulse skips, heart block 17.Any history of a heart murmur or valve prolapse? 18.Joint pain or swelling: list joints_____________ 19.Stiffness of the joints, neck, or back 20.Muscle pain or cramps 21.Twitching of the face or other muscles 22.Headache 23.Neck creeks and cracks, neck stiffness, neck pain 24.Tingling, numbness, burning or stabbing sensations, shooting pains 25.Facial paralysis (Bell's Palsy) 26.Eyes/Vision: double, blurry, increased floaters, light sensitivity 27.Ears/Hearing: buzzing, ringing, ear pain, sound sensitivity 28.lncreased motion sickness, vertigo, poor balance 29.Lightheadedness, wooziness 30.Tremor 31.Confusion, difficulty in thinking 32.Diffculty with concentration, reading 33.Forgetfuiness, poor short term memory 34.Disorientation: getting lost, going to wrong places 35.Difficulty with speech or writing 36.Mood swings, irritability, depression 37.Disturbed sleep-too much, too little, early awakening 38.Exaggerated symptoms or worse hangover from alcohol
Posted by sixgoofykids (Member # 11141) on :
Yes, skip these doctors and go to an LLMD.
Posted by elle108 (Member # 11730) on :
The doctors you are going to are, in all liklihood, going to assume that the 2 weeks of doxy you had would eliminate any question of Lyme. Chances are, they wouldn't even retest you.
I wouldn't even bother with the rheumatologist. Get an appt with a LLMD and get properly evalated for Lyme. It sure sounds like you have it and most mainstream docs have no real training in diagnosing or treating it.
![[Frown]](frown.gif)
I feel like crap.