LymeNet Flash: my nephew's baby died yesterday

This is topic my nephew's baby died yesterday in forum General Support at LymeNet Flash.

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Posted by sometimesdilly (Member # 9982) on :

Libby Dawn was born 6 days ago with major birth defects involving most of her body.

She died yesterday morning, in the arms of her father.

In the few days that she lived, Libby had a huge impact on everyone who met her.

Please send prayers to her mother and father, who are, as might be imagined, completely devastated.

thank you- dilly

Posted by mtree (Member # 14305) on :

heart wrenching......I am so very sorry for your loss...and your family.

sending prayers.....

[group hug]

mtree

Posted by Cobweb (Member # 10053) on :

If they live in the Baltimore area please pass this along to them. They will need all the help they can get to put their life back into focus.

www.baltimoretcf.com

Posted by hurtingramma (Member # 7770) on :

Thoughts and prayers coming their way. What a horrible thing to have to go through. I've been there. [group hug]

Posted by sixgoofykids (Member # 11141) on :

I'm sorry dilly. [Frown]

Posted by Lymetoo (Member # 743) on :

Oh, how horrible!!! I'm so sorry! Prayers going UP! [group hug]

Possible Lyme victim?

Posted by laura j (Member # 14257) on :

I am SO terribly sorry! That breaks my heart! [Frown]

Posted by sometimesdilly (Member # 9982) on :

thank you all very much for the prayers.

i would hope that nobody else here would have need of the resource I found right after she was born (in Vermont), but maybe it will make a difference to someone else somewhere, sometime.

there is a national group of professional photographers who volunteer to go to hospitals and hospices to take photographs of babies who are stillborn or born with no hope of living long.

i think their site is- nowIlaymedowntosleep.com

The photographer who photographed Libby and Libby with her family was wonderful- sensitive, compassionate and and completely willing and able to listen and act on what was important to the family.

And TuTu- no, Lyme was not responsible for this. Libby's mom has had severe difficulties with all her pregnancies; she was extremely ill and bedbound for the entire pregnancies of her first two children- both healthy, thank God-- and she delivered a full-term stillborn baby just two years ago.

A lot of tragedy for one little family to absorb. They have always been intensely prayerful. Their faith is sustaining them right now, and your prayers are meaningful to them- thank you again.

dilly

Posted by bettyg (Member # 6147) on :

..
dilly and family,

my deepest, heartfelt sympathies to you all on this tragic loss! then to have had another full-term baby stillborn too; how terribly sad.

dilly, in my sympathy poem collection is ONE poem about losing a baby or toddler...

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=3;t=014207

Posted by lymeladyinNY (Member # 10235) on :

I went to the lay me down website and cried my eyes out. I'm so sorry for your nephew, his wife, and your entire family.

When my oldest was born I was told he probably wouldn't survive. A priest was called into my room to give me and my husband comfort.

My little trouper, with only a 10% chance of making it, made it!!

But I will never, ever forget how painful it was to go through the fear of losing him. And to this day, it is all bittersweet because he is severely mentally challenged and doesn't live with me and my husband anymore because Lyme stole away my ability to care for him.

He's happy, healthy, and doesn't know I'm his mother. I'm so glad he's alive.

I send you prayers. - Lymelady

Posted by Lymetoo (Member # 743) on :

Dilly, that is so tragic to have already lost another baby. How terrible!

Posted by Geneal (Member # 10375) on :

My heart is breaking for your family.

Sending prayers and Angels to comfort them.

So sorry for their loss (and yours).

I can't possibly imagine that.....

Hugs,

Geneal

Posted by hshbmom (Member # 9478) on :

Dilly,

I'm so sorry for the loss of this precious baby.

There are organizations that make free bronze impressions of baby's feet and hands as keepsakes for grieving parents.

Locally, the business is Patticakes.

You may want to call the hospital NICU or nursery and ask what resources they have for parents of deceased infants.

Some hospitals will make a copy of the baby's footprints. Some will take photographs. The photos the hospital provided of my son were terrible...grainy and not in focus...I wish I had known to take my own photographs.

They may want to bathe, dress, cuddle, and sing to her. It's the only chance they'll get then she'll be gone forever. They may want a family photograph. Nothing they may want is odd or unusual.

You or some family friends may want to make a scrapbook for this baby to celebrate Libby Dawn's life.

Posted by iceskater (Member # 8655) on :

Hugs and Prayers to your family and you. Private message sent.

Posted by Lymetoo (Member # 743) on :

PS.. Libby Dawn is such a precious name!

Posted by bejoy (Member # 11129) on :

So sorry. It makes me hang on so tight to my two children who I got to keep.

With miscarriages, stillbirths, and short-lived children, many people don't know how to acknowledge the life and the loss.

Thank you for helping them do that. This little child was and is so very real, and certainly so very loved.

Posted by tdtid (Member # 10276) on :

I'm so very sorry Dilly. My thoughts and prayers with all of you.

Cathy

Posted by nclymelife (Member # 15276) on :

My family and i are sending thoughts and prayers.