Hi everyone, This has been on my mind for quite some time, but I'm finally going to post this, and ask Lou Bachman to put this as a sticky feature at the top of MEDICAL so folks can ADD to this.
Many outstanding lyme videos are being posted all over the place, and I thought it would be extremely helpful to all, especially the newbies, to have them in ONE area, and then I could post this web link in my newbie package and add to TREEPATROL'S ARCHIVE.
So this is what I am asking for, which will help us all:
1. the direct link of video 2. LENGTH OF VIDEO ... example 3 min. 22 sec. 3. BRIEF SUMMARY what is on this video ******************************************
JACQUELYN DAVIS, 16, Rochester, NY, a TEEN video talking about her lyme, missing school, being homeschooled, etc. Outstanding comments "Jady" has made includes her tremors/shaking at end of video....
Please add your LYME video links below; this will help so many people. THANK YOU all; share this with someone you know who has posted lyme videos elsewhere on the various forums of lymenet! thanks!
[ 06-23-2009, 01:57 PM: Message edited by: bettyg ]
Posted by disturbedme (Member # 12346) on :
Betty - this is a GREAT idea!
Here's one:
http://www.youtube.com/watch?v=GDDeYabcZi8 3 min. 5 sec. Still video of lyme facts put to Simon and Garfunkel's the Sound of Silence.
Posted by disturbedme (Member # 12346) on :
A still video made by Vic about teenagers who suffer with lyme disease. Also put to music. Very good video!
Posted by disturbedme (Member # 12346) on :
A very professional and educational lyme disease video. Good for people who may be new to lyme disease to see. Most of us who've had it for a while probably already know all the information it gives, but it is a good video nonetheless.
Posted by disturbedme (Member # 12346) on :
A video that shows lyme spirochetes go into cyst formation.
Posted by bettyg (Member # 6147) on :
disturbed, God bless you for all the efforts and time you put into adding to what I just started!
I look forward to viewing those I haven't seen before!
Did you get these all from our current lymenet board or going to sites and bringing them here?
many videos have been posted by many folks on this board especially lately! my heartfelt thanks for joining this project! Posted by disturbedme (Member # 12346) on :
Betty - some of them were posted on Lymenet by others before, I think, and some were just ones I've seen myself from Youtube. Posted by disturbedme (Member # 12346) on :
This is about a teenage girl named Laura. It's her story of when she got lyme and how it's affected her life.
Posted by Robin123 (Member # 9197) on :
Hi Betty - thx for helping to compile this list. There's a lot of good ones now - I've watched some of them.
The one I made last summer with three others: google for San Francisco Lyme Disease Talk Show. It's a one-hour interview with a TV talkshow host on Lyme disease.
Also, there are many more Lyme videos at that site. - Robin
[ 03. May 2008, 01:22 AM: Message edited by: Robin123 ]
Posted by Fordace (Member # 14874) on :
[ 07. March 2008, 11:18 PM: Message edited by: Fordace ]
Posted by bettyg (Member # 6147) on :
HI RICH and WELCOME TO LYMENET!!
thanks; please go back and show the LENGTH of time for each video and a SUMMARY of each video.
to edit; click paper/pencil icon which opens up subject line if you startped the post and/or body text.
after adding your info; click EDIT SEND!
thanks for adding about lyme disease!! this will help tremendously! betty Posted by Fordace (Member # 14874) on :
Hi Betty,
I'll have to do it tonight, I have to leave right now....Thanks for the welcome, maybe soon we'll have a breakthrough with this damned disease....Rich
Posted by Clarissa (Member # 4715) on :
News Broadcast re: Lyme Disease on ABC 13 News by anchor woman with Lyme, Titled:
Not a video about lyme, but it's something I absolutely love. It's a wonderful song with inspiring lines. Something good to watch while feeling really down with lyme. Something to inspire us and keep us going on our worst days. Posted by lymebytes (Member # 11830) on :
kLEMPNER ON TAPE,LYME DISEASE, sOUTH cOUNTY hOSPITAL MS HLA haplotype and the Structure of Osp A: (A short interlued between parts II and III) http://www.youtube.com/watch?v=yPn_T9qy4C0
PART III DRUGS, PSYCHIATRIC QUACKERY, AND LYME DISEASE THE SKIPPY ON LYME DISEASE FRAUD
I received this list from member, LISA S; some may be REPEATS of what is above....
THANKS LISA FOR COMPILING THESE! --------------------------------
Hi Betty, Here ya go. There's so many more on Youtube.com too!
This one is 4 1/2 minutes long. Just talks about some struggles of people with lyme disease. This is my favorite, brief and to the point. http://www.youtube.com/v/cCB6ezBzSMY&hl=en">
JACQUELYN DAVIS, 16, Rochester, NY, a TEEN video talking about her lyme, missing school, being homeschooled, etc. Outstanding comments "Judy" has made includes her tremors/shaking at end of video....
Hi!
My name is Jacquelyn Davis. Thank you so much for recommending my video. Someone told me that I was posted on here. What a great site I thought I'd clear up some misconceptions. I'm new here ,but I'm 16. My nickname is Jady. I live in Grayson, Georgia. I have a couple of videos posted on my site including my story.
An awesome lady named JAMIE has just posted a lyme video. It's amazing, and she really talks about how it feels to live with lyme and more about antibiotics. Something I have not had as much experience in.
[ 28. April 2008, 06:32 PM: Message edited by: Jady104 ]
Posted by bettyg (Member # 6147) on :
copying info from tincup here:
Noreen Turyn from WSET in Lynchburg, VA (ABC NEWS 13) has been a wonderful advocate for all of us.
As a result of her original three part Lyme Disease Controversy Series, many people were able to find help.
Noreen just did a follow-up report on a patient who received care from a LLMD (Dr. Zachrison- thumbs up Dr. Z) after watching Noreen's original broadcast.
Please take a minute to see the news report (aired last night) and thank Noreen and ABC News for their efforts.
We need more success stories like this! **************************************
NEWS ITEM- This is the follow up to Noreen's previous three part Lyme Disease Controversy Series. This segment aired last night:
jady and fuzzy, thanks for both of your contributions.
i see we have duplicate on 1 of jamie's stories; hers are very touching! i watched them both yesterday!
Posted by lymebytes (Member # 11830) on :
Lyme video set to Creed - excellent information source - put together by mother and son w/LD. We are hoping it helps many, I believe you will like it very much, 4:44 :
http://www.youtube.com/watch?v=W40ZI1nSpX0 4.44 length story about Alex Hermstad, 14, Iowa, paralyzed and on ventilator slowly dying from Bartonnella and other UNKNOWN DISEASES; her daily life being assisted 24/7.
please watch this then find MIKEJ's post about Oprah, and click on the direct link of my post there requesting Oprah do a show on ALEX SOON since she is critical!!! NO TIME TO WASTE! thanks all!
[ 13. August 2008, 02:57 AM: Message edited by: bettyg ]
Posted by BorreliaBrain (Member # 7603) on :
Video of the Lymerights Protest in New Jersey at Frank Pallone's office. If you didn't get a chance to be there - you can see some great signs and great people. Enjoy.
... i thought i'd copied this here, but uffda ... forgot to!
ALEX'S YOU TUBE VIDEO IS HERE: *******************************
http://www.youtube.com/watch?v=W40ZI1nSpX0 4.44 length Alex Hermstad, 14, Iowa, paralyzed, on ventilator, and dying from Bartonnella and other UNKNOWN DISEASES.
Posted by BorreliaBrain (Member # 7603) on :
"We're talking a massive coverup of our epidemic." Opening speech from LDA President Pat Smith. Lyme Rights Protest, Long Branch NJ. May 7, 2008
Posted by kam (Member # 3410) on :
Outstanding radio interview with Andy Abrahams Wilson on his documentary "Under Our Skin."
You can listen to the interview at the links below. It has been uploaded in 3 parts.
I wish they'd been able to devote more time to the interview. It's hard to cover such a complex topic in a short amount of time. And I wish they had covered the fact that SO many States are now hyper-endemic and that this disease is an epidemic. And that Lyme can be transmitted by additional vectors (i.e., sandflies, biting flies, mosquitos, etc.).
Thanks to Andy for being persistent and spreading the word on Lyme. And I think a thank you also is deserving to Mike O'Meara for opening up the discussion and sharing his radio time on the issue.
In case the above TinyURL expires, you can find this video on Google Video by searching for "San Francisco Lyme."
[ 08. July 2008, 04:56 PM: Message edited by: FuzzySlippers ]
Posted by Monica922 (Member # 13496) on :
Hi Everyone I was on News channel 8 New Haven CT talking about Lyme Disease. I look half dead but I think I did a good job. I hope it helps us all. Now on YouTube http://youtube.com/watch?v=NhDr_XM_I_I&feature=user
Good job, Kent! I recommend others go see Troutscout's interview and respond.
Posted by CapriceMom (Member # 4942) on :
Hey disturbed, I am replying to your earlier post: posted 06 March, 2008 01:17 PM -------------------------------------------------------------------------------- http://www.youtube.com/watch?v=2-yrvOqbkmQ 3 min. 38 sec.
Still video of a lyme rights rally and posters, etc., put to Nickelback's If Everyone Cared.
I love this song. Very beautiful.
Great music and video. posted it to my page on facebook. will look at more of your stuff later. Going through a rough patch just now. music helps. makes me feel less alone.
nice work. hang in there... Abbott
Posted by bettyg (Member # 6147) on :
tribute to Leslie Rae Wermers, 41 4:42 minutes Under our Skin interview in Jewell, Iowa after Iowa lyme memorial service.
Posted by bettyg (Member # 6147) on :
Must Watch!!!!! NOT LYME PERSON! this relates so much to a chronic lyme person's life; it will speak to you.
This one will help you put things in perspective when you think you have been dealt a bad hand in life.
You might have to download the free "silverlite". a program offered by microsoft which is an upgrade for windows media player if you have a pc, if you want to view this.
I make no claims nor am I advertising the center that has created this video. It is simply a tool to understand the beast we are dealing with....
Posted by bettyg (Member # 6147) on :
fire, that was outstanding video; never seen it before and so VISUAL on chetes inside us! Posted by bettyg (Member # 6147) on :
GaryRN, Maryland's videon on PANIC ATTACKS or AIR HUNGER !!
quote:Originally posted by bettyg: Hi everyone, This has been on my mind for quite some time, but I'm finally going to post this, and ask Lou Bachman to put this as a sticky feature at the top of MEDICAL so folks can ADD to this.
Many outstanding lyme videos are being posted all over the place, and I thought it would be extremely helpful to all, especially the newbies, to have them in ONE area, and then I could post this web link in my newbie package and add to TREEPATROL'S ARCHIVE.
So this is what I am asking for, which will help us all:
1. the direct link of video 2. LENGTH OF VIDEO ... example 3 min. 22 sec. 3. BRIEF SUMMARY what is on this video ******************************************
JACQUELYN DAVIS, 16, Rochester, NY, a TEEN video talking about her lyme, missing school, being homeschooled, etc. Outstanding comments "Jady" has made includes her tremors/shaking at end of video....
Please add your LYME video links below; this will help so many people. THANK YOU all; share this with someone you know who has posted lyme videos elsewhere on the various forums of lymenet! thanks!
Michelle, 35, Minnesota, a one stop shop web site and video talking about her Lyme, MS misdiagnosis, and full of basic Lyme information. Very positive and encouraging....
Posted by bettyg (Member # 6147) on :
pete, these 2 videos were OUTSTANDING! so impressed by the content; her professionalism as a teacher TEACHING the viewers.
it was done so POSITIVE with great slides, the map of ticks/bystate!
pete, would you go back to post before, and delete it since you didn't say anything on it?
just click on pencil on THAT LINK that is all bolded, 3rd box to right of your name,
go to top left corner, click DELETE POST, hit enter, and it's gone!
ignore moderator's comment; you can do this anytime for YOUR own posts!
i hope michelle will do more; very powerful, and she kept my attention full-time!
are you her husband or family relative? thanks Michele for a job well done!
pete, also please UPDATE YOUR PROFILE, go to bottom and show YES TO ENABLE PRIVATE MESSAGES.
that's how we send llmd/lyme literate md info and other PRIVATE things since it's not allowed on this board.
i was going to send you my newbie package links welcome, but can't since you have NOT started a post of your own. welcome! again, thanks for adding this incredible 2 videos! Posted by bettyg (Member # 6147) on :
since parkinson's disease is misdiagnosed so often and it is lyme, i'm adding these 2 videos from ebbarkin:
Be well [/QB]
Posted by leah1011 (Member # 19003) on :
HOW DO YOU POST A NEW SUBJECT
Posted by leah1011 (Member # 19003) on :
NEVERMIND FIGURED IT OUT
Posted by bettyg (Member # 6147) on :
Tribute to Lyme Friends Everywhere
When you have a quiet moment, please go to the link below and watch this short video. The words and pictures together tell the story of the wonderful group of people we have working to help our Lyme community and how much we appreciate all they do.
Each person pictured represents one hundred more who couldn't be there that day.
Thank you to all who understand us, care for us and make our lives better in so many ways.
Click on the link below, then click on the corresponding link on the main page.
You may need to start the video, turn down the sound and get some ice cream while waiting for it to fully load, depending on your connection speed.
Then simply restart it from the beginning and enjoy.
A Shocking and Powerful Interview with Dr. David Jernigan About Lyme Disease *************************************************
Posted by bettyg (Member # 6147) on :
HOUSE REP FRANK WOLF'S TICK REMOVAL VIDEO 2 minutes ....excellent DEMO!! *************************************
Posted by FuzzySlippers (Member # 13658) on :
May is Lyme Disease Awareness month.
Hopefully videos like these will help spread awareness of the living Hell that is Lyme.
When Lyme patients say that they are sick and can't function, we mean it.
Linked below are a couple of videos of a woman experiencing herxheimer reactions as she undergoes treatment for her Lyme.
No doubt Shapiro, Wormser, et. al., would say that what Heather is experiencing is from the "normal aches and pains of daily living," that she only really required three weeks of Doxycycline and she'd be healed.
Even worse, they, along with the majority of the willfully ignorant medical profession, would probably tell her to see a psychiatrist and that she does not have Lyme and does not need IV treatment.
Am I angry? You bet I am.
One hundred thousand thank you's of gratitude to Heather for sharing her healing journey with everyone. Thank you for showing the public the devastation of Lyme and the reality of Lyme herxheimer reactions.
Fuzzy
Posted by LLYME (Member # 18687) on :
Brilliant Lyme education Radio interview with Andy Abrahams Wilson producer of the movie Under Our Skin
Length: 22 Min Date: 05-11-2009
I have to say this is the best interview I have ever heard on the subject of Lyme Disease. Extremely well organized and great factual delivery.
-------------------- I am not a Doctor, medical information should not be construed as anything other than my personal experiences.
Posted by jklynd (Member # 7550) on :
Found this new(?) Video Search Engine-as of today 6-6-09,it has 339 Video Links, from YouTube, MySpace, most major TV networks, and others,related to Lyme disease...
really good; dr. donnita moore could have done better instead of saying it's EASILY TREATED AND CURABLE!! betty
least they got it on for the LABOR DAY WEEKENDERS for prevention of tick bites!
Posted by Chicagolyme (Member # 20765) on :
Nesita Kwan with NBC Chicago did a piece on Chronic Lyme June 23rd showing clips from Under Our Skin. Our family and another Lyme patient from our town were interviewed http://www.youtube.com/watch?v=UKnuvSfj9KA Length: 3 mins 42 sec. Date: June 23, 2009
Posted by DLC4lyme (Member # 20937) on :
Scott's mom dying of lyme disease and his creating a casino game; tryng to market it, and use PROCEED FOR LYME AWARENESS EDUCATION !! *****************************************
I'm hoping someone out there will this video and can help get this going
I have had rave reviews for every body in the casino industry about the game,
every casino manager that has seen it really likes it, but I'm stuck in a big catch 22,
they all say they don't want to be the first to try the game
they say, Scott get the game in some where else and will take it too.
well that's the catch 22,
I know someone will help me out, it's just a matter of time before someone high enough on the casino world ladder sees it and says, ok! lets do it!
Thanks for your time Scott -------------------- LSG Scott
Posts: 7 | From Boston, Cape Cod, Mass | Registered: Aug 2009
******************************
note from bettyg:
if you have any friends in the casino industry, please forward them this you tube so scott's memorial to his mom can become a reality!
hugs/kisses to the members here ....
Posted by bettyg (Member # 6147) on :
9:59 in length.. my story of Lyme as of January 2008. I was 16.
planning on making a new one soon.
Posted by Duchamp (Member # 28083) on :
Burrascano Video $40 - Understanding Co-Infections
CALDA/lymedisease.org has a video that I filmed and edited for Gordon Medical Assoc. out in California last spring featuring Dr. Burrascano. Besides all of his other great advice on this video one of the most important things he covers, very thoroughly, are all of the co-infections that come with Lyme. Getting clarity on distinguishing each of them as well as how they manifest in someone with Lyme is incredibly helpful if you are anything like me and have a difficult time keeping it all straight. Very much worth the $40 which supports CALDA and it also has a companion CD with a panel of Lyme literate doctors discussing alot of different Lyme related treatment and concerns.
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