This is topic Its not all in my head! ... Or is it? in forum General Support at LymeNet Flash.

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Posted by DeafFromLyme (Member # 18795) on :
I am sure many of you have gone through the same thing, but right now people have me so convinced that my symptoms are just in my head...

I feel like I am starting to believe them, even though I should know better!

Has anyone else gone through this??? I know depression comes with Lyme but this is rediculous...

Posted by Starfall1969 (Member # 17353) on :
Yes, I have gone/am going through this myself right now.

I won't see a LLMD for 2 months yet, and my symptoms seem to either migrate or come and go (well they don't completely go away), so I start wondering if I've imagined the past 7 months of hell.

Plus I'm seeing a psychologist who is trying to determine if this is indeed physical, or if it's either psychosomatic or hypochondriacal. So every time I see him, I start doubting my symptoms.

But what I can't deny is real is the severe weight loss--we're heading for 35 pounds lost in 7 months, without trying. Even after Christmas, after eating cookies, fudge and an entire cheesecake (not all at once, lol), I was still dropping weighht.

So I'm hoping that my symptoms will be hitting bigtime in 2 months when I see this dr. So he can see whether there's something physical.

Posted by johnnylight (Member # 18518) on :
I wrote a blog that said "It's not all in my Head it's all in my Body" (Spirochetes) that is. As long as they go untreated they will destroy us and take over our lives and body. There are too many of us sick now and if look at it like that, you can see that we are not all crazy. There is definitely something going on here i don't know exactly what it is though, but one thing for sure we are sick as Hell.
Posted by Tincup (Member # 5829) on :
Many moons ago the ducks continued to tell me... order me.. yell at me.. and INSIST that I didn't have Lyme disease and I wasn't physically sick.

I was told I couldn't have Lyme, time after time.

Even with MULTIPLE positive tests, history of many tick bites in an endemic area.. a rash... and all the symptoms, etc.. they STILL insisted I couldn't have Lyme.

Every day for months I would say to myself and even out loud that I wasn't sick, it was all my imagination, the ducks were right...

And at my lowest I remember being outside one day and YELLING at the clothes on the clothes line.. saying... or screaming..

"I AM NOT SICK! I don't have Lyme!!!"

I trierd SO hard to convince myself I wasn't sick... but it didn't work.

I guess because I WAS sick.. and it WAS Lyme.

PLEASE don't fall for that line that it is all in your head.

The stress about it will only serve to harm you more.

Hang in there... ok?

[Big Grin]

Posted by Melodymaker (Member # 16434) on :
I actually had a cardiologist pat me on the shoulder, tell me my heart problems were all psychological, and I just needed to get to know myself.

I came very close to dying that year. Tachycardia, constant pain in the chest, brutal fatigue.

Took about 6 months of rest and nutritional research, a perfect natural food diet with supplements, and then a program of slowly increasing activity to regain a modicum of health.

No help from MDs, I just fell back on the premise that my body was designed to heal itself (Thank you God), and I hoped that given the proper rest and nutrients, it could do that even if I didn't know what was wrong with me.

Now over 15 years later I find out that the "fibromyalgia" I've had for 25 years is in fact Lyme disease, and my heart was probably very badly infected that year.

Don't let a doctor tell you that it's all in your head. We see our LLMD once a month after our monthly blood tests.

Can you go see your LLMD, and get a referral to a psychologist/psychiatrist who treats Lyme patients?

People often need help with the life changing, and psychologically challenging aspects of Lyme. But treatment for a traditional MD can be very bad for you.

Wishing you health, and a healthy outlook!
Posted by bettyg (Member # 6147) on :
Originally posted by Starfall1969:

Plus I'm seeing a psychologist who is trying to determine if this is indeed physical, or if it's either psychosomatic or hypochondriacal. So every time I see him, I start doubting my symptoms.

So I'm hoping that my symptoms will be hitting bigtime in 2 months when I see this dr. So he can see whether there's something physical.

get a WESLER, sp, mental testing done; it will show your deficits, etc.

read here once also that all/majority of mental illnesses are LYME and/or co-infections!!
Posted by johnnylight (Member # 18518) on :
Yeah Tin, I been through the very same situation I believe if it looks like a duck and walks like a duck and quacks like a duck it must be a duck then Duhhh.... if you have all the symptoms of Lyme you have Lyme then.
Posted by Keebler (Member # 12673) on :

STARFALL, You said: " . . .So I'm hoping that my symptoms will be hitting bigtime in 2 months when I see this dr. [psychologist ] So he can see whether there's something physical. . . ."

Ohhhh - you are in for a huge fall if you think that this psychologist will be able to see that you are in pain - even if they can see you have pain, they will think it's made up. that's is what they are taught.

I'd save your time, energy and money and drop any psychologist who is not ILADS-educated. If they are not tremendously well read in this area you are wasting your time thinking they can help.


DeafFromLyme / ERIKA:

You said: " . . . right now people have me so convinced that my symptoms are just in my head... "


EDUCATION will change all that. See the medical articles link on the menu to the left.

Don't listen to others who are uneducated. Don't give away your power like that. Keep your chin up even if you are lying down a lot.

Don't even hint to anyone - or yourself - that this is not real.

And it helps to see depression as a science. Infection makes the body toxic. Toxins create pain, illness, and . . . depression.

Anytime the liver is overloaded, depression follows.

Good luck finding the care your need.


From the May 2007 issue of Clinical Advisor

CONTROVERSY CONTINUES TO FUEL THE "LYME WAR" - (author's details at link)

As two medical societies battle over its diagnosis and treatment, Lyme disease remains a frequently missed illness. Here is how to spot and treat it.


Meet the players

The opponents in the battle over the diagnosis and treatment of Lyme disease are the Infectious Diseases Society of America (IDSA), the largest national organization of general infectious disease specialists, (and)

and the International Lyme and Associated Diseases Society (ILADS), an organization made up of physicians from many specialties. ( )

IDSA maintains that Lyme disease is relatively rare, overdiagnosed, difficult to contract, easy to diagnose through blood testing, and straightforward to treat ( - Accessed April 6, 2007).

ILADS, by contrast, asserts that the illness is much more common than reported, underdiagnosed, easier to contract than previously believed, difficult to diagnose through commercial blood tests, and difficult to treat, (especially)

especially when treatment is delayed because of commonly encountered diagnostic difficulties ( - Accessed April 6, 2007).

. . .

" . . .To treat Lyme disease for a comparable number of life cycles, treatment would need to last 30 weeks. . . ."

`` . . .Patients with Lyme disease almost always have negative results on standard blood screening tests and have no remarkable findings on physical exam, so they are frequently referred to mental-health professionals for evaluation.

"...If all cases were detected and treated in the early stages of Lyme disease, the debate over the diagnosis and treatment of late-stage disease would not be an issue, and devastating rheumatologic, neurologic, and cardiac complications could be avoided..."

. . . * Clinicians do not realize that the CDC has gone on record as saying the commercial Lyme tests are designed for epidemiologic rather than diagnostic purposes, and a diagnosis should be based on clinical presentation rather than serologic results.

- Full article at link above, containing MUCH more detailed information.


Cure Unknown: Inside the Lyme Epidemic (2008) - by Pamela Weintraub

This details what an entire family went through. Having this knowledge of their journey will help others to get better, faster treatment.


I don't know if they have a closed caption DVD, but be sure to email and ask.



DVD is $40. and worth every penny. It explains a lot.


This book, by an ILADS member LLMD, holds great information about treatments options and support measures: (through Amazon)


- by Kenneth B. Singleton , MD; James A. Duke. Ph.D. (Foreword)

You can read more about it here and see customer reviews.

Web site:


Please see the Newbie threads at the top of medical - Treepatrol and BettyG each have a set. They have differences, so be sure to see both.

Then go to "Seeking Doctor" to find a doctor who is educated in this.

Best of luck.

Posted by Keebler (Member # 12673) on :

This will help others better understand:


To order a DVD of the Film ``UNDER OUR SKIN''

Closed captioning is not yet available. However, I just spoke with their office and - with the purchase of the DVD - they will email a full transcript of the film to you if you email your request to them at:

[email protected] (put in subject line: Request for Transcript)

Posted by FancyRatFan (Member # 3088) on :
Yes, I've been there and still there.

I had a psychiatrist tell me to go to the beach everyday. Start at 5 minutes a day than work myself up to 10 min. and so on.

This is after an hour of opening myself up to the problems I was having with my family not taking me seriously.

I told her I wouldn't be seeing her anymore she ended up calling my house and asking to speak with my doctor. Yea, right!

I'm sorry you are experiencing the same. You are the only one who can truly know what your feeling. You are the only one who knows the truth.

Hang in there,
Posted by Starfall1969 (Member # 17353) on :
Keebler--Sorry for the miscommunication.

The doctor I was referring to that I will be seeing in 2 months is my LLMD, so I'm hoping my symptoms are full force for him.

And the psychologist I'm seeing isn't totally out of the loop with Lyme--he does understand that it's a very odd, hard to diagnose disease.

In fact, I've educated him somewhat, especially on the attitudes of mainstream doctors, which shocked him. he thought for sure that doctors would support LLMDs as they do other specialists.

He does irritate me, though, with the psychosomatic discussions, just because I do have unresolved issues with my deceased parents.
Posted by DeafFromLyme (Member # 18795) on :
Thank you All for your support...

If I can't get it at home I at least now know where I can!

It almost seems like if they can't "see it" the can't believe it!

I have had Bells' Palsy 5 times! My entire right side of my face hangs down and doesn't move... Stress MUST be causing that right? HA!

5 months ago I woke up at 3 Am TOTALLY/profoundly Deaf in my right ear out of the CLEAR blue! Stress MUST have also caused that! I will never hear out of that ear again! Devastating at 29..

But its all in my head right??? Going deaf is FINALLY what made my doctors wake up! Now I just have to work on the fam!

Keebler Thanks for all the links I will be sure to use them to my advantage!

You guys are great Thanks again!

Afetr many MRI's
Posted by bettyg (Member # 6147) on :
starfall, check your profile for penn. psychiatrist name i just sent you.

best wishes erika!! [group hug] [kiss]

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