This is topic New yet old in forum General Support at LymeNet Flash.


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Posted by CathyMary (Member # 20071) on :
 
I'm new to the network and to a deeper understanding of lyme even though I was diagnosed and treated for it 4 or 5 years ago(can't even remember date of the onset of this traumatic disease).
At that time I presented with the classic bulls eye rash and symptoms, my regular doc tested (positive) me and put me on antibiotics. I got sicker, after three weeks I was sent to a cardiologist who said I had a normal EKG...but prescribed additional 2 or 3 more weeks of medicine.
After that course even though I wasn't completely better my doc said we caught it in time and I no longer needed medicine.
I never did regain my old self. Today I regret not seeking out a specialist, support, or going with my gut instinct. I allowed my doctor to treat my lyme like a common cold, today I suffer for it (lyme. CFS, FM, ????).
On the bright side I no longer have that doctor and I am fighting back demanding to be listened to.
I recently changed primary doc again because she continued to say I was just "depressed" and couldn't have lyme again because I didn't have a "rash", she wasn't even opened to the idea that I could still be suffering from that first tick bite. She did however order another lyme test.
No surprise I tested positive, the western bloc also had many poitives but I was told (by my new doc) that on the last four areas I only tested positive for one so I don't have lyme???
I will be getting copies of test and my old test and taking them to a new doctor. Thanks to everyone who gave me LLMD's yesterday.
 
Posted by Starfall1969 (Member # 17353) on :
 
Hi CathyMary. Welcome.

I'm copying and breaking up your post for those who can't read large blocks of text.

I hope you can find a doctor who will listen to you and help you on the road to reovery.

This is a great place to be!
--------------------------------

I'm new to the network and to a deeper understanding of lyme even though I was diagnosed and treated for it 4 or 5 years ago(can't even remember date of the onset of this traumatic disease).

At that time I presented with the classic bulls eye rash and symptoms, my regular doc tested (positive) me and put me on antibiotics.

I got sicker, after three weeks I was sent to a cardiologist who said I had a normal EKG...but prescribed additional 2 or 3 more weeks of medicine.

After that course even though I wasn't completely better my doc said we caught it in time and I no longer needed medicine.

I never did regain my old self.

Today I regret not seeking out a specialist, support, or going with my gut instinct.

I allowed my doctor to treat my lyme like a common cold, today I suffer for it (lyme. CFS, FM, ????).

On the bright side I no longer have that doctor and I am fighting back demanding to be listened to.

I recently changed primary doc again because she continued to say I was just "depressed" and couldn't have lyme again because I didn't have a "rash",

she wasn't even opened to the idea that I could still be suffering from that first tick bite. She did however order another lyme test.

No surprise I tested positive, the western bloc also had many poitives but I was told (by my new doc) that on the last four areas I only tested positive for one so I don't have lyme???

I will be getting copies of test and my old test and taking them to a new doctor.

Thanks to everyone who gave me LLMD's yesterday.
 
Posted by Leelee (Member # 19112) on :
 
Hi CathyMary,

I am sorry you have gone through so much needless suffering. Most of us on this forum have had similar experiences unfortunately.

This is a good place to visit. There are many well-educated, informed people here who share their profound knowledge and support.

Best of luck to you.
 
Posted by Tincup (Member # 5829) on :
 
Welcome!

Glad you are here, but at the same time, wish you didn't have to be.

Good folks here... very helpful!

[Big Grin]
 
Posted by bettyg (Member # 6147) on :
 
welcome cathy,

i think i sent you my welcome letter earlier; if i didn't, please say so, and i'll add it as a reply here ok! [Smile]
 
Posted by Lymetoo (Member # 743) on :
 
Welcome, cathymary! We're glad you found us! [Cool]
 


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