Thanks for the welcome and the info Tincup and Melanie I really appreciate it.
This group is great it's such a relief to come here and see I'm not by myself on this.
Posted by mtree (Member # 14305) on :
you are sooo not alone you....you now have thousands of friends that know exactly what you are going through right at your finger tips!!!
welcome to LymeNet!!
Posted by DJP (Member # 5893) on :
I found it hard because we don't look sick. I can remember family members talking to me and the whole time I was thinking..."can't they see I'm dying", because that is exactly how I felt.
I think people don't always think before they speak. Another family member said about one of my treatments..."well, I hope this works so you can just put this behind you and get on with your life".....Hello do you think I've enjoyed any part of being sick or having my life turned upside down for the past four years???
Hang in there and find those who will support you. I found some great friends in my neighborhood and we support each other in the ways we can.
Posted by Toppers (Member # 20083) on :
My family straight up abandoned me and blamed this all on drugs. Whether they believe that, or it's just easier for them to deal with it, the effect is the same. It's a vicious cycle of ignorance that leaves you on your own.