I have had Lyme for 18 years, and I am sick to freaking death of feeling a new kind of pain every single day! And since I feel it every day, I can't complain about it, but because it's different every day it's like a new thing that I want to complain about!!! I'm so sick of this!!! This is my first time sharing in any type of support group. I've had a migraine for 7 days and now my back, shoulders, chest, EVERYTHING hurts! I'm sick of grinning and bearing it and smiling when other people tell me about their temporary pain like a little headache that lasts them 4 hrs or less. ARgH!
Posted by dfalcone (Member # 19035) on :
Me too. It exhausting. I find two things help tremendously: Rosen Light Touch Therapy, and Guided Imagery to Defeat Pain by K.Edstrom I've had lyme a long time too, and get discouraged sometimes... I understand exactly how you feel. I hope that tomorrow is better for you.
Posted by Lymetoo (Member # 743) on :
Yeah, pain is an issue for me too. I used to have horrible migraines... Lyme and/or babesia treatment fixed them! So there is still hope for you!!!
My main pain issue is from a whiplash years ago. I have stenosis of the spine there.
Then I have really bad sciatica. (bad vertebrae there too) It flares about twice a week now. So bad I can't sleep when it happens. Excruciating, actually.
I hope you have a good LLMD and will get better one day!!
Been treated for the coinfections??
Welcome to you both!
editing to add.. Don't know where my brain is (oh yeah, I took a pain pill hours ago) .. but my main issue is the sciatica, not the neck pain. Posted by Tincup (Member # 5829) on :
Actually, I think Lyme Tutu is a pain in the neck... if she admits so or not.
As for your pain.... you can come here and complain, complain, complain.
We will listen and we do care. And we won't think you are nuts.
And I will send good thoughts your way and also remind you that you may want to look at Lyme as the "unique" disease it is.
It is going to attack you here and there and there and here. Sad but true. But if you accept that fact... it might help to know that everyday will be different... and that IS expected.
Posted by MDW005 (Member # 22706) on :
I understand the agravation, when I have a family member complain I try to be understanding, but in the back of my mind i'm saying... if you truely new what my pain was.. then maybe you wouldn't complain. I know that is a sad thought. Everyones pain tollerance is different.
Posted by Dekrator48 (Member # 18239) on :
I also understand the pain issue and how frustrating it is to always be in pain.
It's hard to resist the temptation to tell people they are very lucky when they complain about a little short-lasting ache or pain.
My neck pain has been improving in the last few months of treatment, so I just try to focus on that.
There are alot of people here who understand.
Posted by randibear (Member # 11290) on :
yeah, since december it's been constant, 24/7 and never stops.
and right now i've got rectal spasms so i'm one big pain the butt!!!
i'm sooo tired, i just want to go to bed and sleep forever...but i can't because of the pain.
hopefully tomorrow he'll find something. i'm hoping he won't but we'll see.
Posted by LightAtTheEnd (Member # 24065) on :
Hi, Singer!
I have no advice for you, but I feel for you. I just posted myself about my frustration with the constant changes.
I also hate it when I try to explain to someone what my pain or fatigue or emotional symptoms feel like, and they come back with a story about how they felt the same way just the other day, but it was nothing and they're fine now.
I think sometimes their intention is to say they understand how I feel (which they don't, but at least they want to try), but it comes across to me that they are saying I am exaggerating or making it up and should just get over it, like they did.
And sometimes the person is just being a jerk.
Posted by LightAtTheEnd (Member # 24065) on :
(I'm referring to people who don't have Lyme, in my previous post.)
Posted by LightAtTheEnd (Member # 24065) on :
PS, I do find that I complain a lot more about something like a paper cut than about Lyme disease.
I'm definitely with you on WANTING to complain about Lyme disease, but who can I complain to?
And even the good friends who put up with my rants are not going to want to hear the same rant day after day.
My usual attitude to things is not to complain at all, but to either fix the problem if I can, or accept it, if I can't, or get out of the situation and into a better one.
But I am having difficulty right now, sorting out what it is I can do something about, and what I have to accept.
I'm sorry you're going through what you are, but I'm glad to read your complaining and know that I'm not the only one with similar frustrations.
I'm glad I found this safe place to complain, where people understand, and care.
And I read about what you all suffer, and I am so grateful I have not had to go through all that, at least not yet anyway.
I hope you get some relief soon!
Posted by Lymetoo (Member # 743) on :
Yep, this is a good place to complain. Tincup always complains about ME, but that's because she's a Goonhead!
How are you doing today, Singer?
Posted by randibear (Member # 11290) on :
you know it will sounds strange, but i miss my mom soooo much.
i talk to her just like a phone call and that seems to help.
Posted by Limeaid (Member # 22357) on :
Randi, that doesn't seem strange to me at all. It is obvious your Mom was a huge source of support for you, and now that she is not here any longer, there is a big hole. One of my best friends committed suicide 3 wks ago, and I'm still in a daze. Everytime I want to pick up the phone to talk to her, and hear her voice, it hits me like a ton of bricks!! We all need a very strong support system to deal with all of this stuff!!!
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