Saw this video on FB this morning. I feel he is much more courage than I do. It is a tough thing to admit the brain has been affected by this.
I knew my body had been affected...but it took me years to admit to myself how much this has affected my brain.
I think about last year, I noticed that I was forced for the most part to veg both my brain and body from about 9 am or 10 am to 3 pm or 4 pm.
How about you? Have you noticed that you function a bit better at certain times.
Before that, I think it was not until after 3 pm that I would even be able to get myself something to eat or be able to get out of bed via the power chair.
Posted by lpkayak (Member # 5230) on :
my body and brain want to sleep from 3:30 am to 9 or 10 am
but then i need to get pain meds in and i need food to do that and there are bathroom issues so i really cannot plan to go or do anything before 1pm
when i started paying attention to that my life got easier---i spend more time "not looking sick"
when forced to get up and out early for appt i have a very bad day and sometimes it takes more than one day to get over it
but functioning pretty well from 1pm to 11pm or so is a whole lot more than when i was in bed 23 hrs a day
Posted by Tincup (Member # 5829) on :
I couldn't absorb it right now.. but will revisit this later.
But I am not sure we should blame Lyme for destroying the brain... after all it is a "treatable" infection.
My vote is to put the blame where it is deserved... at the door step of the IDSA.
Posted by Mike30 (Member # 2581) on :
The best thing I have found for lyme in the brain is a combo of rocephin and tinidazole with daily saunas, or the rife doug coil and daily saunas.
Take it from someone who did not know their own name due to lyme. Take it from someone who could not walk at one point, and who could not feel the rest of his body except for his head when untreated. That's how bad my neuro was. You can make it better. In fact, I have even been published and run a couple startup websites that are doing ok. I am also currently working on a novel!
You need to get down deep. The heat allows that, opening the "highways" of the brain for abx. The doug coil(which I think is superior) maims the lyme and the sauna finishes the job.
It's also important to make sure you are not in a moldy home or around things like varnish, paint or carpet cleaner. In fact, don't even use windex. Switch your surface cleaner to a mixture of lemon juice, white vinegar and water. If you can afford it, rip out your carpets and put it tile or hardwood. Carpets are not good for lyme patients, but not insurmountable. Just don't use carpet cleaner except for baking soda and dawn dish soap.
Posted by kam (Member # 3410) on :
Getting the right treatment is tricky...at one time I concluded that those who are regaining their health are those that are able to pay out of pocket.
But, not so sure about that now. I am sure there are those who have paid a lot of money to regain their health and still have yet to succeed.
![[Big Grin]](biggrin.gif)