This is topic LBJ's daughter Luci in the news in forum General Support at LymeNet Flash.


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Posted by map1131 (Member # 2022) on :
 
She has been flown to Mayo Clinic for some auto-immune disorder. Poor lady, sure won't get the truth there.

Pam
 
Posted by Keebler (Member # 12673) on :
 
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When I saw that, I just shuddered. She was just fine and then, all of the sudden, Guillain-Barre? Unfortunately if this is lyme, neither the state of Texas nor Mayo will serve her well. I hope she can avoid the steroids.

And, just how does one contact her family or even the Secret Service to tell her to be checked out by a real LLMD? Lyme and other tick-borne infections are supposed to be ruled out when Guillain-Barre is suspected but she's not going to find knowledgeable doctors at Mayo. And there's only one or two in Texas who know about lyme.

I've always liked Luci. I'm sorry she's been given an umbrella diagnosis. There are some basic chatty comments following the CNN news article but I doubt anyone from the family will read those - I also can't figure out how to post with CNN.

One can't just call her room at Mayo and leave a message that no one there knows all they should to get the bottom of what is wrong.

Just how does Mayo hold such a place of honor when they are so ignorant of tick-borne and other stealth infections?
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http://www.cnn.com/2010/US/04/17/luci.baines.johnson/index.html?hpt=T2

LBJ's daughter Luci hospitalized

By the CNN Wire Staff - April 17, 2010 4:44 p.m. EDT

Luci Johnson, 62, was first taken to the Seton Medical Center in Austin, Texas, on Wednesday after complaining of extreme weakness in all her extremities . . . .

Doctors there recommended that she be treated at the Mayo Clinic for what physicians believe is Guillain-Barre syndrome, Johnson said. It's an autoimmune disorder affecting the nervous system.

Luci Johnson had been in excellent health with no prior medical issues of this nature, Tom Johnson said.

- full article at link above.
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[ 04-18-2010, 04:00 PM: Message edited by: Keebler ]
 
Posted by hshbmom (Member # 9478) on :
 
The only thing preceeding this was a sore throat and hoarseness. ...could be Lyme symptoms...

Map & Keebler, that's the first thing I thought when I saw the report.
 
Posted by Lymetoo (Member # 743) on :
 
Bummer .. I feel so badly for her. Maybe she has been out in the fields at Lady Bird's Wildflower farm or whatever it's called.

Might be able to find an address thru Google.
 
Posted by Lymetoo (Member # 743) on :
 
http://www.sfgate.com/cgi-bin/article.cgi?f=/n/a/2010/04/17/national/a124836D32.DTL

Says she is improving and will make a full recovery. Hope so!
 


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