There seems to be many posts lately about spouses and caregivers.
Can anyone answer my most burning question - even the therapist I saw couldn't help me with an answer.
How do I sustain the daily heartbreak of watching the love of my life struggle every day with this disease.
When I say struggle, he is brain injured, from the LD & co infections, unable to function in the outside world due to cognitive impairments. Looks great, can't follow a conversation, answer a question that has 2 parts to it, be in a room with others, the list goes on. You all know the drill.
He has lost his will to live, and survive and it is exhausting to live with. Leaving him is not an option, I would not desert him, no matter how hard it gets, he deserves that. If he had his way, he would be dead, or at the very least, living in s cardboard box on the side of the road so that he didn't have to take me down with him.
Most of all, my heart breaks for his struggle and pain, and I can't help him get better, no matter how hard I try.
Thank god I have supportive friends and a couple of family members who pitch in when they can to give me some respite.
Does anyone have "the answer"? Is there an answer?
I think I am worn out. Wizard
Posted by Lymetoo (Member # 743) on :
Wow, Wizard. I'm so sorry you are both suffering so much! It must be horrible to go through this. My mother went through it with my dad.
You DO get so dragged down by it.. the daily struggle. Does your community or church have a system in place to provide caregivers (respite care)?
Sometimes family is too close to the situation and think you can handle it.
Praying that someone will come to help you this week and next week and next week too!
Posted by Geneal (Member # 10375) on :
I don't know exactly what to say.
Sending you prayers of love and support and prayers for improvement of your loved one.
Hugs,
Geneal
Posted by Bob054 (Member # 26027) on :
From one to another...Thank who or whatever you believe in, that you feel that way....Its when those feelings stop that your in trouble.
![[group hug]](graemlins/grouphug.gif)