Even though its practically useless explaining your symptoms to the uninitiated, I still bang my head against the wall doing so, believing that to let them ignore this horror is worse.
Posted by Dogsandcats (Member # 28544) on :
sometimes I ask people -do you really want to hear about this?
If they stammer or act uninterested, I save myself the grief.
Wipe the dust off your feet, save yourself from pain and move on.
Someone is out there who wants to hear.
Posted by John S (Member # 19756) on :
WE MUST MAKE THEM HEAR.
Posted by lpkayak (Member # 5230) on :
i dont know john...at least i dont know if it is my job. over the years it has given me so much stress i think it has made me sicker...i do better with a one or two sentence explanation and then tell them to ask if they want more info
this goes for explaining my situation as well as all the ppl i see who probably have un dx lyme...i say " some of those sx sound like lyme and the regular docs and tests cant tell you if you have it or not. if want more info or resources or a lyme literate doc let me know" and i walk away.
it has just taken too much out of me in the past
some of the big rallys etc are easier cuz you have many that understand near you to support you
and the word is getting out...they say the word lyme now pretty regularly on the tv shows and news shows
i applaud you wanting to educate them-but hope you wont do it so much that it hurts you
anything going on in the activist area?
Posted by twicebitten (Member # 5412) on :
My dh at times has told people, "she has MS" just so they'd know what it was and not query him further.
He's not that social of a person anyway and was SO tired of explaining it to people who'd ask.
I've done it too on occasion. Especially if it's someone I don't know well, or I knew really didn't care but was just asking to be nice.
Now, we aren't really lying b/c I was dx with MS
Posted by John S (Member # 19756) on :
It is your right to tell people what you want, and that is fine. But in the big picture with so many of us being silent, I believe it only hurts our cause.
Posted by lpkayak (Member # 5230) on :
john-i really think you should look at the activism board...there are many organized ways to spread the word if you have the energy
i think the times square thing looks really neat-its by ilads and they are asking for pics