My husband was diagnosed with Lyme 8 mos ago after my research and our daughter's suggestion. I found him a great LLMD. I have given my all to get him well. I questioned my own health and decided to get tested in June. Not surprisingly, I have Lyme! I get no support. He doesn't even acknowledge that I have it, nor does he speak of it with friends. I am gaining weight, I have no energy, I have arthritis. But all I get is "wow, you are bigger than ever". Really???? Thanks to Lymenet, I know I am not alone!
Posted by randibear (Member # 11290) on :
no you're not hon. i've heard much worse than that.
if it weren't for lymenet i'd be a starking raving lunatic....
Posted by ItsMyTurn (Member # 31469) on :
Amen!!! Not only is the support here but also a lot of valuable information. I have mentioned this site to so many people that I feel need help and possible answers to their own health issues.
I know my situation is nothing compared to others that are on here.
Thank God for each one of you!!!!!
Posted by droid1226 (Member # 34930) on :
I totally understand. My family/friends think I have a drug problem..Haven't been around in a year or so. I guess I do, I'm over 30 some pills and supplements a day. They don't understand why I can't drink or hang out w/ them. This place is a savior sometimes.
Posted by BoxerMom (Member # 25251) on :
Sorry about home life, IMT.
We wub you!!
Posted by mom2kids (Member # 31972) on :
You'd think somebody who has dealt with Lyme would have some empathy. I am sorry you feelike this IMT and are being treated like this.
Droid, I know the feeling, my mother compares me to a heroin addict...I don't take anything that comes close to heroin. She also told me once, when a friend of hers had to have shoulder surgery and was in pain, that I would never be able to handle "that kind of pain". She doesn't get that the kind of pain I "handle" daily would push most people over the edge, literally.
It's true we do really only have each other here at LN and if we are lucky one other person in our "real" life.
Posted by Larae30 (Member # 35220) on :
I can't believe that someone would be like that, especially after having it themselves? That is just horrible and I'm sorry you have to deal with it.
Posted by linky123 (Member # 19974) on :
Lymenet has been a lifesaver for many of us - some in the literal sense.
Come here anytime and someone will come along to cheer you up.
Will keep you in my thoughts and prayers.
Posted by lpkayak (Member # 5230) on :
yes..ive been thru so much of that stuff..keep trying to figure a way to accept it...and then get knocked down again
i really dont know what i would do without all my LN friends
Posted by Rivendell (Member # 19922) on :
Yes, it really hurts when we have given our all to help others, and then when we are suffering, they dismiss us from their lives.
This selfishness has really amazed me and made me realize that in our relationships, most people are more interested in what they can get from us than what they can give.
I am sorry you husband is behaving this way. Was he already like this, or just since he became ill? Maybe it is in his brain. Or maybe his self esteem is gone, and this is how he builds himself up. Maybe it is the Lyme causing extreme irritability.
Just try not to be a doormat. That is hard to do when you have brain fog.
We understand here.
Hugs.
Posted by Rivendell (Member # 19922) on :
Also, when this stuff gets in your brain, it can cause personality changes.
It happened to me, but I discovered Japanese Knotweed which has helped me so much. Maybe it would help your husband.
Posted by Dogsandcats (Member # 28544) on :
It is a hard place to be in.....but you need to find a way to "support" yourself. Knowing you have Lyme, knowing what it is like - you have to validate yourself and remind yourself this isn't a cake walk.
Most of my friends disappeared over time, but I have 3 great friends that I wouldn't trade for all the tea in china.
Start building your network of support - your first great start was here! We understand....
Posted by skies (Member # 28064) on :
quote:Originally posted by Rivendell: Yes, it really hurts when we have given our all to help others, and then when we are suffering, they dismiss us from their lives.
This selfishness has really amazed me and made me realize that in our relationships, most people are more interested in what they can get from us than what they can give.
So true. I feel the same way. Although I don't post on here a ton, I do read many of the posts and feel the same way that so many of you do. Going though this is such hell, and it adds insult to injury when those around us don't try to understand or make ignorant comments. It sucks.
Try to hang in there, that's all we can do.
Posted by ItsMyTurn (Member # 31469) on :
Thank you so much for all the kind words. I do believe that his Lyme is making him have outbursts of anger. Christmas Eve was a nightmare. But Christmas day was wonderful. I love you guys!
Happy New Year!!!
Posted by jackie51 (Member # 14233) on :
If he's never been treated for Bartonella, then that may explain the anger.
Posted by nonna05 (Member # 33557) on :
WOW, not alone in this??????
Posted by Tracy9 (Member # 7521) on :
Feel free to join us on over at www.lymefriends.org too, kind of the offspring of Lymenet, but with more pictures and social networking aspects.
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