This is topic Michigan Webmaster Getting the Word Out in forum General Support at LymeNet Flash.


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Posted by Muscle Car55 (Member # 34707) on :
 
Well Lymies, the bacteria and state of Michigan has just &%#$%$ with the wrong person!!!

I know the government is suppressing the statistics and how many doctors (not all) are turning their heads away from suffering Lyme disease patients.

I'm here to tell you that I'm going to do my best to expose the truth about this debilitating disease. I've had it for two years and I know how much pain it can affect you physically, mentally, family, job, and your bank account.

I'm a webmaster and have been for quite some time 5+ years. I understand how powerful words can be, especially when they are posted online. I understand SEO (search engine optimization) and how to get my articles in the top 10 on many Internet search engines. I plan on making a website devoted to Lyme disease and and where I caught it (Michigan). I think I'm going to plan on doing a state map and try to collect statistics.

I understand the state is hurting due to the economy. Some say the reason the state of Michigan doesn't want to expose statistics because of tourism. Well I think our overall health is more important than money!

So far I've been on antibiotics for 4 1/2 months and slowly getting better. Arthritis in my hands still is still very painful and I'm not sure when I'll be better to fully go back to work as a webmaster and a happy hobby fisherman. Due to where I picked it up in southeastern Michigan, I'm going to have to limit myself to fishing a city lake and not a lake out in the woods.

I have friends who I have told about the disease and can understand from their words and facial expressions that they don't understand how serious this bacteria can be. Just like most they think anyone who gets it can be quickly diagnosed and treated four weeks with antibiotics just like the CDC says. A lot of people like to ignore struggling lymies due to selfishness and arrogance in thinking they can't catch it.

Due to arthritis I'm using Dragon Naturally Speaking voice recognition software. So if I have bad punctuation please understand I'm doing my best.

I totally understand how our government works when diseases get exposed. When certain people like Magic Johnson catch something, attention gets forwarded towards disease and breakthroughs happen. I feel that the more we can get articles out and have other celebrities speak out about disease, the more progress we can make with the disease in getting better treatment. It's just sad how where materialistic society works this way. I thank Daryl Hall, Ally Hilfiger, and other celebrities who have spoke out about the disease. It's just sad that many have not done it. Would have been nice for Michael J Fox to say something about the disease when he went in front of Congress about Parkinson's, from my research and understanding that's what caused it. But hey maybe he did and the media didn't show that part, I know how control it can be.

http://www.luresforfishing.org/lyme-disease-michigan-fishing/

Just recently because I'm feeling better I decided to write a small article, of course I understand it doesn't sum up all the suffering going on, but like I said I plan to make a website and a small video documentary to help get the truth out. I'm no Robert Frost, wish I was, but I'll do my best.

Just keep fighting lymies!!!

[ 03-31-2012, 07:12 PM: Message edited by: Lymetoo ]
 
Posted by lymenow (Member # 36175) on :
 
That's great MC. I found that video's work best. I truly believe that if EVERY lyme patient documented their suffering, even in a short anonymous video, we would be alot further along in the fight.

Nothing is more impactful than a video of the hell we go through. I'm no longer into educating people, they don't care. But it sure scares the hell out of them to watch a short vid on the suffering that is possible from this illness.
Even if it's on youtube.

I make youtube vid's and I've had an amazing response.
 
Posted by Muscle Car55 (Member # 34707) on :
 
"They don't care."

Ain't that the truth, it's sad too. I find that most don't believe anything they hear or read until they see or experience it for themselves.

I just don't want to be one of those lymies that get better and then just put it in my past. Nothing against limeys that do that, but if you're in a position to make a difference, well remember this quote!

All that is necessary for the triumph of evil is that good men do nothing. -Edmund Burke
 
Posted by In19944 (Member # 34272) on :
 
Very true. Love the quote. In this case the "good men" are doing nothing because they're so inundated with illness, they cannot resist.

I'm soooooo upset with the way this disease is treated and view by society. IDK whether it is corruption or just plain lack of knowledge on the CDC's part.

It's too bad we have to fight their lies with statistical facts....and we still are wayyyy underestimating the vastness of this illness. But the media gets things done in this country, not facts and figures.

HONEST Chronic Lyme vid's, websites, articles, are never bad. And enough of them, WILL eventually bust this thing open.
 
Posted by Muscle Car55 (Member # 34707) on :
 
"HONEST Chronic Lyme vid's, websites, articles, are never bad."

Canlyme.com is how I diagnosed myself, their list of symptoms are perfectly matched for Lyme disease. CDC's list of symptoms are basically useless!
 
Posted by horsefly (Member # 34232) on :
 
Wow-amazing article MC, I can truly relate- you really got your point across beautifully.
 


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