Hello everyone, I haven't been on here for a long time because some good things have happened and lots of horrible things have happened.
I need help. Today, our new doctor, because we moved, told me that he didn't think that our daughter even had Lyme.
HE saw her for the first time ever, after she had already had almost 2 years of treatment for Lyme and BAbesia. He is nice enought to continue her oral antibiotics, but kinda blames us because she is bedridden.
Can you all give me as many articles about how much pain kids suffer? She is not allowed any type of pain relief.
I cry because she is crying. I am getting I.V. because he believes me and is actually furious with my old doctor for letting it go for 4 years and making me suffer so much.
So, if we can prove things to him, here as a community, and explain how much torture the pain is, and list ALL the symptoms of Lyme. My daughter's best friend's mom had no doubt that our daughter was sick and getting sicker, the private school noticed too.
I live in another country and have no money anymore to fly to see or have any type of appointment with our LLMD. I just bought a business, that was perfect for someone with Lyme disease, but I was lied to and have not had any income for months.
So, we are at the mercy of this doctor. I will take any type of suggesstions, I would love your favorite articles so that I could print them out. I need articles about doctors that had Lyme disease and how they describe the pain and suffering.
There was a story about a doctor who needed a heart transplant because of Lyme disease. I can't find that and with the move, of course, I haven't even begin to unpack.
I am slowly getting better with the I.V. but my poor husband is suffering with Lyme disease and goes to work everyday. He cant have any I.V. because this doctor is risking his entire practice for us.
This is just absolutey not allowed in the country that we live in. Thanks for your help and thoughts. Can you pray for us? I really believe that Jesus hears our prayers. I believe in Miracles.
[ 04-11-2012, 03:53 PM: Message edited by: Lymetoo ]
Posted by missing (Member # 22437) on :
OH MY WORD!!!
Can you tell I haven't been on here for about 6
months????
Look at that horrible type Job!!!
Lymetoo, someone, anyone,,,,,save my post!!!
LOL!!!
seriously, if someone can go back and double
space for me that would be awesome.
I knew I was forgetting something but all the
Lyme plaques on my brain prevented me from
figuring it out.
Oh and that doctor really depressed me today. ALOT!
And I never really get too too depressed. He is a super nice doctor too!
It was a weird, full moon, type of appointment!
Posted by missing (Member # 22437) on :
I don't know why that went through 3 times.
Posted by canadianmama (Member # 36298) on :
Hi Missing, all the best to you, added spaces to your post to help others help you c.m. :
ORIGINAL MESSAGE, (with more spaces):
Hello everyone,
I haven't been on here for a long time because some good things have happened and lots of horrible things have happened.
I need help.
Today, our new doctor, because we moved, told me that he didn't think that our daughter even had Lyme.
HE saw her for the first time ever, after she had already had almost 2 years of treatment for Lyme and BAbesia.
He is nice enought to continue her oral antibiotics, but kinda blames us because she is bedridden.
Can you all give me as many articles about how much pain kids suffer?
She is not allowed any type of pain relief.
I cry because she is crying. I am getting I.V. because he believes me and is actually furious with my old doctor for letting it go for 4 years and making me suffer so much.
So, if we can prove things to him, here as a community, and explain how much torture the pain is, and list ALL the symptoms of Lyme.
My daughter's best friend's mom had no doubt that our daughter was sick and getting sicker, the private school noticed too.
I live in another country and have no money anymore to fly to see or have any type of appointment with our LLMD.
I just bought a business, that was perfect for someone with Lyme disease, but I was lied to and have not had any income for months.
So, we are at the mercy of this doctor.
I will take any type of suggesstions, I would love your favorite articles so that I could print them out.
I need articles about doctors that had Lyme disease and how they describe the pain and suffering.
There was a story about a doctor who needed a heart transplant because of Lyme disease. I can't find that and with the move, of course, I haven't even begin to unpack.
I am slowly getting better with the I.V. but my poor husband is suffering with Lyme disease and goes to work everyday. He cant have any I.V. because this doctor is risking his entire practice for us.
This is just absolutey not allowed in the country that we live in. Thanks for your help and thoughts.
Can you pray for us?
I really believe that Jesus hears our prayers. I believe in Miracles.
Posted by Keebler (Member # 12673) on :
- I can understand the doctor's dilemma regarding pain med as many pain meds can damage the liver - or hearing. Even acetaminophen can damage the liver as it blocks the liver's ability to make glutathione, required for our liver's detox function.
However, your child should be able to have some options for pain relief.
MAGNESIUM, FISH OIL, MASSAGE . . . and perhaps acupuncture or herbs?
Someone from this group would be most likely to have many options:
Topic: Looking for long term pain management -
Posted by Keebler (Member # 12673) on :
- canadianmama,
thanks so much for the spacing of this post. It really helps.
missing,
I still can only absorb bits & pieces at one time - so I focused just on one main point, your child's comfort level.
Went back and now see that you say:
"I live in another country and have no money anymore to fly to see or have any type of appointment with our LLMD." (end quote)
In that case, then, some of the links above might still lead you to good ideas.
There may be a clinic in your area for sliding fee or even no cost massage, acupuncture or naturopathy -- especially if there is a college for such there.
Now, they may not be LL, but, for some things it may still work well.
MASSAGE can be learned and it's very helpful in so many ways. Just be very careful around the neck. I would not directly touch the neck of anyone with lyme.
WARM (never hot) bath for 20 minutes max (no longer) . . . in Epsom Salts . . .
Even on a tight shoestring, this can get better. Really.
If your daughter is not on a gluten-free diet, that might lessen pain. Sure did for me.
Search: Foods high in magnesium
Good luck. -
Posted by Keebler (Member # 12673) on :
- There is a section here specifically on herx support for children. Sorry I do not recall what page but it's well worth the search. Well worth it.
And don't let the title fool you, this is all about anyone with lyme, TBD, heavy metals, etc.
i am so sorry your entire family is suffering for this horrifying disease.
it makes me sick that your daughter cannot get pain relief.
i went about 7 years without any, but with the condition i am in now, i couldn't possibly live without it.
it is downright cruel to deny anyone with this illness pain medicine.
Posted by Rivendell (Member # 19922) on :
There are some good links above with articles for your doctor.
Also, you might suggest to your doctor to watch "Under Our Skin" on youtube. This is an award-winning documentary on Lyme Disease.
Also, the book: "Cure Unknown", by Pamela Weintraub, a science journalist whose entire family had Lyme disease.
It is very well researched, and she explains the nightmare symptoms of Lyme, the nightmare of trying to get help, the long and difficult treatment process.
She exposes the political/financial corruption that keeps patients from getting good medical care.
![[Frown]](frown.gif)