- Just want to know more about this particular piece. I tried but could not find details below.
A click on the bill presenter's name brings nothing. She is not allowing any details about her affiliations.
What group is sponsoring this?
Who has endorsed it?
The "ask" seems valid & sincere - but vague, and that could lead to a boomerang effect. IDSA doctors will say that people are being assessed.
Has the LDA, LymeDisease.org and similar lyme organizations that are ILADS-minded?
It's really important to know that before signing. In no way do I intend to discredit the author of this or her good intentions
but the wrong bill could replace one that is more specific as the one currently being circulated by the group below. -
Posted by Keebler (Member # 12673) on :
- This is the petition that is sponsored by LymeDisease.org and other ILADS-minded lyme organizations.
Not sure how that would match up with the one above but here, for comparison:
REMOVE OUTDATED IDSA GUIDELINES FROM NGC (National Guidelines Clearinghouse)
22221 people signed this petition. -
Posted by outerspace1226 (Member # 34274) on :
Nobody HAS to sign it. It's one of my friends on Twitter who has late stage lyme.
It goes to Senators Schumer and Gillibrand. Schumer himself had lyme disease and it's an issue for him. It just asks for fair treatment. No it's not ILADS backed, there is only one that is. This one:
Sign one, sign them both, sign neither. Whatever, just want to bring some attention to them.
Thanks
Posted by outerspace1226 (Member # 34274) on :
Thanks Keebler, just saw you posted before I did. Even if we get one signature more it's better than before.
Posted by outerspace1226 (Member # 34274) on :
She's a lawyer in New York who contracted lyme..Here's an article on her and a couple other cases. She is mentioned 3 paragraphs from the end.
At the recent Skidmore College forum, I heard one of the speakers state that the petition endorsed by ILADS was turned down by IDSA with the excuse that the guidelines were recently reviewed and found to be appropriate!
I hope I heard wrong. This was very unsettling to say the least. If anyone else attending the Skidmore conference heard this, as well, please let me know.
In an effort to continue to promote awareness of Lyme Disease and how wrong the current system is... I also signed the above petition that Outerspace posted and have passed it on to friends and family requesting their signatures.
A few weeks ago, I also wrote to my legislators, asking for their endorsement of HR Bill 2557. You can find out how to go about doing this by the website below.
![[Smile]](smile.gif)