After reading the first chapt i can see this book may give new llmds what they need to be excellent llmds that can hang in for the long haul
I wonder if he gives audvice on legal issues for llmds...they shouldnot have to put so much on the line
Posted by Kudzuslipper (Member # 31915) on :
Just got auto delivered to my kindle can't wait to start it.
Posted by lax mom (Member # 38743) on :
I just got my book.
I know this is petty, but my gosh, the flourescent orange cover seriously hurts my eyes! Posted by lax mom (Member # 38743) on :
OH MY GOD!!!! MY HUSBAND's STORY IS IN THE BOOK!!!!! pg. 128-129
His name/age/state were changed.
Posted by surprise (Member # 34987) on :
Just got my hard copy (no work done around here today)
Lax, flipped to your DH pages, expected to see: He walked in with his beautiful wife...;-)
But by God, I am so glad he is better- wow!
Posted by lax mom (Member # 38743) on :
surprise: Yep, that's what keeps me fighting. I know miracles DO happen.
Posted by lpkayak (Member # 5230) on :
i thought it would cost twice that. i ordered the hardcover.
Posted by Kudzuslipper (Member # 31915) on :
Drat. Having trouble reading it, cause of dizziness. But I'm gonna go try to find your husbands story laxmom. Is there a chapter title? Pages are different on kindle.
Any ground breaking info so far?
Posted by Lymetoo (Member # 743) on :
Lax mom.. that is cool!!
Posted by Keebler (Member # 12673) on :
Katie Couric TV program interviews two doctors & patients
Chronic Lyme Disease - Oct. 9, 2013
Two clips - notice the huge difference between the ILADS doctor (author of the book above) and the IDSA doctor
- [to newcomers to lyme] you may not be able to catch the serious errors from the ID doctor. This is why it's good to have an ILADS LLMD. They know far more about lyme.
There's just sooooo much info, I can't process it. It was cool to read the background of his PA and NP.
Lymetoo: that made my day. I know it's silly and small, but everything he wrote on those 2 and 1/2 pages, it was my sick, postpartum self fighting Drs to get him help. So, it's kind of vindicating Posted by Kudzuslipper (Member # 31915) on :
Just read it Lax. Omg. You went through all that with postpartum? How long did it take your DH to get better once he consulted dr. H?
Forgive me for not knowing your story... Did you have symptoms then too? Did you get Lyme later? Are your children ok?
Posted by Ellen101 (Member # 35432) on :
I have not ordered it, but probably will. I watched an iservice he gave recently for other docs and the only thing that frightened me was the amount of supplements he was recommending.
He himself who is not even ill takes a boat load every day. I recently ditched a bunch of supps I was given and feel so much better off them.
Posted by Anthropologista (Member # 35483) on :
Mine's arriving tomorrow! Saw him at a community conference on Saturday. I'd only seen him in short soundbyte-type clips before, which didn't really do his ideas justice. He rocked the conference!
Posted by lpkayak (Member # 5230) on :
ellen...i know you have to be very careful of quality...if not u could be poisoning yourself
also...i loved and needed my supps for many years but when i had 2 major surgeries in 4 months i got really messed up. some docs made me stop some things. all docs made me take their choice of meds and supps. and of course there were the big guns they gave me during the surg that i have no idea what it was...i already know it takes a long time for meds to leave my body
so 5-6 weeks after the last surg i had to stop all and start over again one at a time like i first took them
im still going thru the process. i dont feel all better...but i can relate to how i feel to what i take...still working on it
that said ...my first llmd scared me by throwing out so many supps and alternative stuff...no way could i do it while still working and raising 4 kids and a hubby and a barn full of horses... so...i did what i could and in a year switched to an llmd who used mostly meds and very few supps
but that was a long time ago. it might be right for someone with new lyme...but chronic is a whole different thing
anthro-you guys are using him for your doc now right?
i was impressed with that first chapt and the low price of the book. i cant wait to get mine. i need stuff to be written very clearly and organized since this brain is in bad shape.
i wonder if it would be ok to copy that chapt and mark on top the price and how to buy it and spread it out to primarys...good ones-with brains...the kind that really want to help but dont know what to do
Posted by lpkayak (Member # 5230) on :
uh-oh. i ordered the book yesterday and just got notice order was cancled cuz it was out of stock. i was able to reorder from someone else.
Posted by Anthropologista (Member # 35483) on :
Yes, lp, he's R's doctor now. But R mostly deals with the NP, whom he really likes. The boatload of supps is an issue. Especially when they're often very strong, like Xymogen--even at half doses! We're trying to work with the NP to find gentler alternatives for some of them.
Posted by MannaMe (Member # 33330) on :
My book came today! So I shall be occupied the rest of the day!! :-)
Posted by lax mom (Member # 38743) on :
I agree 100% Ellen. I now only take the supps I know are working. Afterall, it's my body and I'm the one who has to live with feeling poisoned when I'm on too many things.
(Sorry for the long post. I don't want to hijack the thread. But, this is why everyone needs to buy that book. Dr H is an absolute genius. He's not a magician, because I'm still sick. Yes, he's quirky and rough around the edges, but he knows what he's talking about. I have seen it first hand in my own home.)
Kudzu: My husband made MASSIVE strides within the 1st 6 months (He was on IV for 4 mos). By 1 year, he was working part time and now he's working FT standing all day, goes to the gym several times/week, takes care of our son in the evenings/weekends when I'm too sick, does all of the grocery shopping, etc.
This is a man who was on steroids for a year prior and also cellcept. 2 Urologists (1 local and 1 at Vandy), 2 Rheums (1 local and 1 at Vandy), Oncologist/Hematologist, Gastroenterologist, Dermatologist, 3 PCP's and an Orthopedic Surgeon couldn't figure it out and assumed he had something "auto-immune".
He was scanned repeatedly top to bottom, Ct's/MRI's, PET, scoped top to bottom, hospitalized, surgeries (lymph node biopsy, groin lymph node removed and tested, blood test after blood test, skin biopsies, cultures, etc)...and NO ONE could figure out what was going wrong.
But, one 4 hour visit with Dr H and he figured it out after piecing together every last medical record (100's and 100's of pages). He was sooo sick that one of the things Dr H ruled out was the PLAGUE! I have complete respect for that man because I have seen what he's capable of.
My husband started getting sick when my son was 2 and 1/2 mos old
I think that's what led to me being so intractably sick. MASSIVE STRESS which lowered my immune system at a vulnerable time. But, I obviously had Lyme prior, just not an obviously active infection, because my son was positive at age 2.
My husband was sick with some supposed "auto-immune" illness, my son had autism traits and sensory issues and I started having a fever that wouldn't go away. I thought, and I was told, that we had 3 entirely different illnesses going on.
I eventually saw an LLMD after 6 mos of misdiagnoses. Then I got my son checked just to rule out Lyme. He was positive and after a month on Amox, he started speaking conversationally, and making eye contact and playing with other kids.
By that time, my husband was sooo sick (on prednisone and cellcept), the team of Drs thought he must be eaten up with cancer and kept ruling out cancer/lymphoma. I thought I was going to lose him, so I took him to my LLMD as a shot in the dark.
So, this was pure he//. No wonder I am still sick, my adrenals have been working OT non-stop since early 2010. But thankfully, my son is doing well and my husband is doing great! and THANK GOD my daughter has remained healthy
(P.S. linky123: when I told you that I would sit in my car, crying my eyes out because my life was falling apart, and "My Savior, My God" by Aaron Shust came on the radio and helped...I meant it.)
Posted by Kudzuslipper (Member # 31915) on :
Lax, thank you for sharing your story. I am so happy to hear how wonderfully your DH is doing. And to see amoxicillin help your son so!!! I hope you find your missing clue too. But I must say you are amazing!
Posted by lax mom (Member # 38743) on :
Kudzu: You guys help me make it through every, single day.
Posted by Anthropologista (Member # 35483) on :
What a nightmare for the three of you, Lax Mom. And what an amazing recovery your husband had: good for Dr. H! So glad you son was helped too. But I'm not surprised you got sick!! Fingers crossed for your own improvement.
My book didn't arrive today--tomorrow, they now say. Gosh, I hope other LLMDs start using Dr H's methods. And that maybe they can find another doctor or PA/NP to carry some of the load in his office.
Posted by surprise (Member # 34987) on :
Lax, thank you for sharing. I got choked up. God bless.
Posted by unsure445 (Member # 15962) on :
Wow, this book is great! Cover to cover information. Not surprising given the author! Posted by lax mom (Member # 38743) on :
I just read the part about HLA-DR4. I can't pay attention and skip around
Anyway, I'm positive for that and never understood what it meant...until now.
This book is a must have. He explains the thought process behind everything.
I was just thinking, I wish Dr J, the pediatric LLMD, was able to put his treatment theories in a book.
Posted by dbpei (Member # 33574) on :
lax mom, thanks so much for sharing your family's amazing story. I am so happy that Dr. H was able to help your husband and that your little one is doing better. It sounds like a true miracle. Now we just have to get you well!
I ordered the book a couple of weeks ago and look forward to its arrival. I am positive with MTHFR gene and hope Dr. H can help me understand all of this stuff.
Posted by Kudzuslipper (Member # 31915) on :
My favorite advice so far is "take flagyl with potato chips." Lol.
Not good to get "permission" on my 3rd day of buckling down on my low carb life. Luckily I'm not on flagyl right now.
Really good information, validation. I don't think many other doctors are going to like this book. Although he is going out of his way to be compassionate to PCP's and specialist's struggles... If I were a dr. (Not a patient) I would find it condescending.
As I patient. I say you go Dr. H.
Posted by t9im (Member # 25489) on :
Just ordered the book.
As a kindle owner I opted for the hard cover. It should be easier to re read and reference.
Posted by lpkayak (Member # 5230) on :
kudz...i think it depends on the doc...there are some good ones out there...they want to do whats right...but cant risk their liscense if they have children to feed
and lax...i think dr js focus is on treating as many kids as he can ... he does do training...maybe one of his students will be able to put a book together
the amount of time and energy to write is huge. i guess its a balancing act. treat patients or write.
each day i read this thread i get more excited about getting the book. so far they havent canceled this order. im HLA-DR4 too. i was told that by an llmd in the late 90s-but i think his explanation was incomplete compared to what they know now
Posted by Anthropologista (Member # 35483) on :
It's arrived! Lax Mom, your husband's case was amazing!! Thank goodness you pushed and pushed for an answer until you found the right doctor.
Posted by lax mom (Member # 38743) on :
Anthropologista: and your husband will be the next miracle! P.S. So glad you are unbanned Posted by Anthropologista (Member # 35483) on :
Thank you! Along with your own miracle too, Lax Mom. Posted by seibertneurolyme (Member # 6416) on :
I just got my book too. Actually I was disappointed in the babesia info. The doses are much lower than those my hubby took and there really was no new info I haven't read on LymeNet. Actually there is a lot of new info that has not made it into the book -- from Buhner and also new journal articles regarding rifampin and cipro for babesia. And also ivermectin, flagyl and alinia were not discussed.
Also, I felt the book could have used another appendix listing contact info for all the different medical labs.
Bea Seibert
Posted by Kudzuslipper (Member # 31915) on :
So another confusing thing (besides permission to eat potato chips...lol)
Dr. Wrote that doxy dissolves biofilms.... But as we all know it creates cysts.... So am I right in understanding that doxy is ok/good if part of of a duo or trio of drugs? (I believe his formula is mostly a tetracycline, a macrolide, and a cyst buster pulse)
Posted by lax mom (Member # 38743) on :
Kudzu: I've been on Doxy/Rifampin and my husband has been on Doxy/Rifampin and something else.
I didn't know it dissolved biofilms either.
Posted by lpkayak (Member # 5230) on :
i finally got the book and skimmed a little but i cant read it cuz the print is so small
i am going to have to get one of those full page magnifyers or something
im glad i have it. there is a lot of info in one place. i know there is talk about bedside manner etc but he must be a genius to write this and to organize it so well
Posted by desertwind (Member # 25256) on :
I just got a copy for my birthday from my in-laws:).
Great read and I rather like his bedside manner!
Posted by gmb (Member # 23562) on :
Hey Bea,
Thanks or posting about the babs content. I was going to get the book only for the babs info.
I'll save a few $ now rather than be disappointed, and wait for Buhner's next book. (Although CSA blend hasn't done anything for me yet).
later,
gmb
Posted by MannaMe (Member # 33330) on :
Took my book along to hubby's LLMD appointment.... His doc has the book also and is reading it!
Gave high praise to Dr. H!
I'm about half way through the book. Finding it very interesting. Getting some insight to what is going on with hubby.
Posted by kidsgotlyme (Member # 23691) on :
I am having a hard time reading the book. It's just so overwhelming for me. I feel like crying!
Posted by lpkayak (Member # 5230) on :
I could not read a book like this cover to cover but will use it as resource-like healing lyme by buhner
Posted by surprise (Member # 34987) on :
The book has helped me trust the path I'm on right now, which is fixing my inflamed GI tract-
I went 'Paleo' way of eating, removing offense allergens and reducing carbs significantly revealing over- run candida, and adding fats for my brain I was lacking-
and he states doing this has helped some turn the corner, also, for inflammation, he states it's okay to do 2-4 grams of Curcumin,
I recently started going this high on dose, and my intestines are much, much less inflamed. Better and healing.
The guy's been around and seen it all- all our differences, and the valuable suggestions in here, along with proper medical protocol for infections, of course, are gold.
Posted by lpkayak (Member # 5230) on :
Surprise...what page is that on
I do wish the index was better...
Posted by surprise (Member # 34987) on :
I know the print is small in the index, but if you go to the index and look up
Paleo Inflammation
I'm out right now, I can look up actual page numbers later if you would like...
Posted by Kudzuslipper (Member # 31915) on :
like everything with lyme information... this book is exploding my brain... so much information
but I agree with surprise, it has given me confidence in my how my LLMD treated me... and some ideas on what's next.
Posted by terv (Member # 29410) on :
Does anyone who read this book see it replacing the Burrascano guidelines? Or is it not that type of book?
Posted by lpkayak (Member # 5230) on :
I found some stuff...i didnt know curcumin was anti malarial...buti didnt find where he says 2-4 gr is ok. I woder if i can do that. I am so sick of pain since surgery. Im upping a lot of my pin things like fish oil and cosamine and even ibu for awhile
I really feel i cant take it or at least need abreak
Im getting depressed over it...so knowing i cantake so much and it might knock out some babs too is good thing
Posted by Lymetoo (Member # 743) on :
Kayak.. I take 655mg three times a day (curcumin).. That's all my tummy can handle.
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