I have started a meetup group in Howard County Maryland for anyone who has Chronic Illness or Chronic Pain of any kind. There are already 2 of us with lyme disease so far out of 4 people. If anyone is interested:
I hope I am not breaking any rules by posting this but I didn't see any so I guess this board is very laid back.
I have been a member for a long time, started lyme treatment in 2007, probably got it over 20 years ago. I stopped treatment 2 years ago and now just treat the pain. I had to go on treatment for hepatitis C, had back surgery and cauda equina and cryoglobulinemia (an autoimmune from the hepC) and I also have babesia duncani so now I am not even sure if I still have lyme anymore. My doctor doesn't think so, but I am not so sure.
Anyway, I hope to hear from some maryland folk either way, even if you can't come to any of the meetings if you can just join just to get the numbers up it will help me out. thanks.
roro
Posted by Tincup (Member # 5829) on :
roro, good for you! Love that you are reaching out!
Would you like to have a listing on the Maryland Lyme site? Here is the list of our support groups. If interested you can email me at [email protected]
I don't see NatCapLyme on the list. They have at least one MD chapter I think.
If you are interested in more than lyme, there are frequently local groups already organized around pain, chronic illness. Local newspapers sometimes have a listing, or local hospitals might too.
Posted by Tincup (Member # 5829) on :
Hey poppy! Good thing you said something or I wouldn't have noticed the changes. Thanks!
It appears Maryland groups once associated with NatCap aren't listed on the NatCap site anymore. We still have some listed on our Maryland and Virginia Lyme sites for patients.
It says the DC group holds some meetings in Annapolis, but there is no local group leader listed. NatCaps Harford Co. group's Facebook page says to click a link to see upcoming events, but when you do it says it "does not have any upcoming events." ??? Anyhow...
I like your idea of contacting other non-Lyme specific groups. I list them for Florida because there has always been a "no Lyme in Florida" policy, but many patients suffer and this provides relief. Never thought of doing that here though. Duh me! HA!
Posted by roro (Member # 13383) on :
Can I do that even though it is not strictly lyme? I wanted it open to all because a lot of these people may really have lyme and are misdiagnosed.
Posted by temporarilyplagued (Member # 40119) on :
Mind if disband your group?
I can command your ilness gone in Jesus name, step out in faith (i.e. if you had arthritis and you couldn't hold a pencil because it was so bad and I commanded it gone in Jesus name, you would try holding the pencil). And it can disappear instantly.
This is 'magic.' Shocking, beyond this world stuff. Utterly shocking.
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