This is topic Yolanda Foster Talks About Her Struggle With Lyme on "The Doctors" Mon, March 24th in forum General Support at LymeNet Flash.


To visit this topic, use this URL:
https://flash.lymenet.org/ubb/ultimatebb.php/topic/3/33564

Posted by Dekrator48 (Member # 18239) on :
 
Yolanda Foster will be on Monday, March 24, talking about Lyme Disease.

There will also be other guests talking about unrelated topics.

Check your local tv listings.


http://www.thedoctorstv.com/
 
Posted by Lymetoo (Member # 743) on :
 
I hope they do a good job. I think they will because she's a celebrity. They won't be hard on her, at least.

--and I don't think they necessarily will bring in the controversial part-- though I hope SHE WILL discuss it some.
 
Posted by Dekrator48 (Member # 18239) on :
 
That's what I am hoping too, Lymetoo!

Time will tell...
 
Posted by beaches (Member # 38251) on :
 
I think she will tell it like she sees it, just as she does on the show. She's no shrinking violet afterall. I hope they are hard on her---she's one who can take it and respond appropriately.

The problem will be in the editing.
 
Posted by peonyprincess (Member # 38611) on :
 
Thank goodness we have her to be a voice for all of us!
 
Posted by beaches (Member # 38251) on :
 
I wouldn't count on anyone to be a voice for "all of us." "All of us" have to individually and collectively speak up and stand up. Watching from the sidelines and waiting for a hero has never been a catalyst for change.
 
Posted by Dekrator48 (Member # 18239) on :
 
It's on at 9 am today where I live.
 
Posted by Dekrator48 (Member # 18239) on :
 
Yolanda Foster's segment lasted 5 minutes. It started at 31 minutes into the show.

She said she has chronic neurological lyme disease.

She said she wondered what good it would do to be on the show, The Real Housewives of Beverly Hills.

Later she realized that she could bring awareness to Chronic Neurological Lyme Disease.

They briefly showed some different therapies she is using. She went outside the US for some of her treatment. A Dr in Belgium diagnosed her.

Unfortunately, they allowed an Infectious Disease Dr to talk. His name is Brad Spellmen.

He made it sound like anyone who got infected would get a bullseye rash and then antibiotics would easily cure the infection.

He also wrongly said that Lyme is only found in a few areas of the US.

The only worthwhile thing he said was that if you have a bullseye rash, that is the only thing the Dr needs to diagnose you.

Yolanda spoke up and said, if it's caught right then, antibiotics work, but if it's chronic, they did not work for her because the infection had been in her brain for probably 3 years.

She mentioned being on a strict diet and taking a lot of vitamins.

She credited her husband for his unwavering support.
 
Posted by lpkayak (Member # 5230) on :
 
Dekrator-did you catch how he said "if you get the r a sh and yo are in the north east " it is diagnostic?

He was an idiot robot like the rest of him

Good for her for cutting him off and talking about abx...but its hard to tell if it was good or bad for us

She sounded like if you arent better in 90 days abx wont help you.

And some of the belgium tx looked sorta'out there' and might mke us look more crazy than credible-i dont know
 
Posted by Dekrator48 (Member # 18239) on :
 
Yes, it's hard to tell how others will perceive the segment, lpkayak, since most people don't understand chronic lyme, and usually believe what doctors say.

He did sound ignorant when talking about the few areas of the country that he says have lyme, but then again most people would probably believe what he said. [bonk]

I'd like to see it again when the clip shows up online.

At least he did acknowledge that the rash is diagnostic.

I wish Yolanda would have had more time to speak out.
 
Posted by Looking (Member # 13600) on :
 
I thought she did a pretty good job for the very short time they gave her. Left me with ?? about the TMS so I looked up some info.

Just thought this was interesting as to why the TMS (Transcranial magnetic stimulation) therapy may have helped Yolanda think better.

Many lyme patients understand the disconnected or depersonalization symptoms which TMS is supposed to have some success with, as well as depression which is an accepted application for this technique in the US. So it seems to be a legit therapy. Have a look:

"From PubMed
CNS Spectr. 2004 May;9(5):375-6.
Repetitive transcranial magnetic stimulation improves depersonalization: a case report.
Jiménez-Genchi AM.
Author information

Universidad Nacional Autonoma de México, and Sleep Unit in Clinical Servoices, Instituto Nacional de Psiquiatria Ramon de la Fuente Muñiz, Mexico City, Mexico. [email protected]

Abstract

Depersonalization disorder is a poorly understood and treatment-resistant condition.

This report describes a patient with depersonalization disorder who underwent six sessions of repetitive transcranial magnetic stimulation on the left dorsolateral prefrontal cortex.

Repetitive transcranial magnetic stimulation produced a 28% reduction on depersonalization scores.

PMID:
15115950
[PubMed - indexed for MEDLINE]"
--------------------

This next site shows good illustrations of the device which is used here for depression.

http://neuronetics.com/products-services/how/

===================

And this is an article titled : Magnets 'help regrow brain cells' that surmises that the magnetic treatment is more likely to be a way of slowing progression of the disease than a cure.

In lyme disease this would make sense if it helped regrow healthy brain cells while knocking down the parasite population which could then result in improved brain function at least for a while.

http://news.bbc.co.uk/2/hi/health/6683757.stm

Interesting!
 
Posted by lpkayak (Member # 5230) on :
 
Interesting-others on here would be interested-maybe that should have its own thread with depersonalation/depression tx in the title
Is it available in usa? Where?
 
Posted by Annie C (Member # 14) on :
 
IT'S ALL ABPOUT THE $$$$$$$$$$$$$$$$$$$$$$$$$$$$$$
 
Posted by Catgirl (Member # 31149) on :
 
Looking, fascinating info! Thanks for posting this. :)
 


Powered by UBB.classic™ 6.7.3