one is a dermatologist, the other is a gynecologist.
How is it possible that THEY ARE MORE INFORMED?
while going to my various doctors, I have learned not to mention lyme or list it on my symptoms, nor list my lyme meds, as I tired of being accosted by these do-gooders.
Well, with the picc line it's harder to hide. But I have found these two doctors believe me and both talked to me for over 15 minutes on my treatment and how lyme is serious and under reported and to hang in there and that I WILL get better.
Amazing. Here is a list of the types of doctors who should know better, you may recognize the MO
1. Primary care/internist: lyme is out of the question. If you had lyme, your antibody test would be positive. Stop wasting my time and all these other doctors that I see you have gone to.
Diagnosis: psychiatric disorder, poor stress management, depression, need to meditate, drug abuser, hypochondriac
2. Rheumatologist: Your fatigue is from fibromyalgia, tx is gradual exercise, come back in 6 months
3. Immunologist: why are you here? What do you think I can do for you? Your immune system is functioning. I have another patient, come back in 6 months if anything changes.
4. Allergist: allergies make you tired. Do allergy shots and get rest. Here is asthma medicine and sprays and antihistamines.
5. Gatstroenterologist: I see nothing abnormal. Let's talk about constipation and getting more fiber.
Neurologist (SHAME ON YOU!): you have mild sleep apnea. Restless leg. Here are some drugs. " I have cognitive issues and migrating joint pain" answer: let's do a neuropsychologist evaluation. Lyme disease outright dismissed, will not hear of it.
Physical therapist: your knee joint is week, here are some exercises to strethen it. I don't know why it comes and goes.
Podiatrist: your joint pain is because you need proper arch support. Here are some inserts.
Avoid these types at all costs!
Posted by randibear (Member # 11290) on :
Hey I've been to every one of those doctors.....
Posted by lpkayak (Member # 5230) on :
Yes. ive heard the same thing. Almost word for word.
Posted by Lymetoo (Member # 743) on :
My neurologist is from India. When he found out I had (HAD) Lyme, he exclaimed, "Well, that affects EVERYTHING!"
Whew... thank goodness for the good doctors!
My GP has had Lyme and so has his daughter. So grateful to have him for a Dr!
Podiatrist was no problem either.
Gastro .. What does HE know?
Rheumie .. useless even with a Dx of Sjogren's.
Allergist .. useless for the most part even with hives... Take these pills.
PT's... awesome
Posted by patty7 (Member # 5483) on :
It seems the only doctors who understand are those who have been affected by it in their personal lives. Wish we had a directory for those.
Posted by Maia_Azure (Member # 44330) on :
I had a gastro because I had gastritis, gut motility problems, issues with certain foods (but no allergies).
Well, I ruled out celiacs and food allergies. So he told me I am just constipated
I think I read somewhere that lyme can cause gut issues due to nerve function.
I just think its awful that the most knowledgeable doctors are never in a position to help.
Posted by Lymetoo (Member # 743) on :
OH yes, it can cause nerve damage. Also consider the inability of most Lyme patients to digest gluten regardless of whether or not we are celiacs.
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