I made a very middle of the road comment. They deleted it. Unreal. The thumbs up, to thumbs down ratio says it all.
Posted by MADDOG (Member # 18) on :
What a load of male bovine excrement from the CDC!!
MADDOG
Posted by Lymedin2010 (Member # 34322) on :
I posted too & can see my own post, but it is not available to the public.
Posted by randibear (Member # 11290) on :
oh right...all in my head
Posted by hiker53 (Member # 6046) on :
Actually, I agree with a lot of the video. If you are not getting better you need more tests.
However, I have had every test in the book including 4 MRI's, lumbar puncture, bone scan etc. and I don't have anything else wrong that they can find.
My igenex Lyme test was positive, so I will go with that diagnosis. Antibiotics did not help me, though.
Not everyone with Lyme symptoms have Lyme, but I think Lyme is underdiagnosed.
Hiker53
Posted by randibear (Member # 11290) on :
I've had every test known to the medical community. many several times. spent literally tens of thousands. all negative exceptfor igenex. abx jus made me worse and worse.
candida helped some. parasite treatment almost did me in.
has to be a way to treat without killing the patient.
Posted by Lymedin2010 (Member # 34322) on :
You guys should really check your blood, if the tests are negative & you still have symptoms. I wish I can check this guy Robert's blood. I bet anything I will find the spirochetes in his blood.
I looked at my blood from the very beginning of going chronic & could not find anything. As weeks turned to months I developed more Lyme symptoms, that allowed me to then confidently say it was definitely Lyme & at the same time these spirochetes exploded in my blood.
To the point they are now everywhere & I get short of breath & if I move too much/fast & I am so tired.
Under Our Skin 2: Emergence clip of biologist telling us that borrelia can easily be seen in the blood. And guess what? They closed down his research & tried to suppress this information.
I know I sound like a broken record, but a lot of these ticks are carrying the Filarial Worm co-infection as discovered by Willy Burgdorfer and more recently the researcher Dr. Eva Sapi.
If that is the case and a lot of people are infected with parasites, then borrelia is not the main culprit in Lyme disease. For the life of me, I cannot understand why this has been so ignored even by some of the best LLMDs???
Gael
Posted by LisaK (Member # 41384) on :
Bastards
________
Posted by Lymedin2010 (Member # 34322) on :
The flood gates of the Lyme community have opened & the comments have finally been enabled in that video.
I have never seen that many thumb "downsis" in a Lyme video before.
There are some really great comments showing up now. Looks like I need to register so I can comment as well.
Bea Seibert
Posted by Ann-OH (Member # 2020) on :
There are about 70 comments tearing this stupid video apart. Ann- OH
Posted by Mvdr (Member # 43034) on :
Gael, one of the reasons I switched from a "LLMD" to a ND was because after I repeatedly enquired about having parasites they dismissed it. Once one of the Dr.s told me the parasites would be destroyed in the course of antibiotic treatment. It was one of my first red flags to find someone else to help me. I don't think a lot of them know what to do about parasites.
Posted by Rivendell (Member # 19922) on :
Why are they doing this?
About a year ago, they were warning that people were dying from heart attacks caused by Lyme disease that the victims didn't know they had.
It was all over the internet and I was encouraged that the CDC was letting this be known.
And now they do a flip the other way.
Posted by Lymedin2010 (Member # 34322) on :
Another strike for the IDSA/CDC...I hope moral is getting low there?
"The Deutsche Borreliose-Gesellschaft (German Society of Lyme-Borreliosis) raises objections to the IDSA Lyme Guidelines published in 2006. The fundamental basis for our objections is that the implementation of the IDSA guidelines extends beyond the United States and into Europe.
Accordingly, our ability to diagnose and treat patients with Lyme disease is being severely restricted by these guidelines, and we believe that the guidelines must be revised to provide greater flexibility in the diagnosis and
treatment of Lyme disease given the poor laboratory test sensitivity, the persistence of the organism despite adherence to IDSA protocols, and the seriousness of this illness."