[ 03-08-2015, 12:49 PM: Message edited by: LisaK ]
Posted by lpkayak (Member # 5230) on :
She put a great challenge out there.
Posted by lpkayak (Member # 5230) on :
I listened to the top one. When did she do that? 44 k???
This has so much more credibility than all the other stuff i saw. I assume her friend is tom greer and great lyme alliance is on board
This may be the first time a celebrity is able to really help us. So sad she had to go thru so much for this to happen
Very emtional to watch that. Brings back so many memorirs. Thekids by the bed was a big one for me
Whew.
Posted by kam (Member # 3410) on :
YES> Thank you. I will try and watch video's when able.
Posted by LisaK (Member # 41384) on :
kayak, the top video is from 2013 I think.
the 2nd link is to her lime challenge. she challenged Alec Baldwin and hall & oats, etc....
__
Posted by lpkayak (Member # 5230) on :
If it was 2013 and those lyme lierate ppl were helping her i dont understand
All i have seen up to this is very dramatic stuff without factual stuff.
Posted by Lymetoo (Member # 743) on :
You don't understand what, kayak?
Posted by seibertneurolyme (Member # 6416) on :
I think kayak is saying that she can't understand why Yolanda is currently so sick after all the treatment she has already had.
My response would be if she only did 3 months of IV antibiotics and then went to the Sponaugle clinic for detox and nutritional treatment for 6 weeks then most likely that would not have been nearly long enough to treat either bartonella or Babesia if she had those coinfections. And really that is most likely not enough treatment for lyme either.
Even if you have money, if treatment time is too short then relapses are almost guaranteed in my opinion - especially in those with multiple infections.
Bea Seibert
Posted by Lymetoo (Member # 743) on :
She's done all the wrong things .. at least I think so.
Posted by lpkayak (Member # 5230) on :
I know i wasnt clear. But if she was working with tom grier and lyme alliance in 2013 why didnt she get with good, real llmd where tx for someone as sick as her would be at least 2-3 yrs
From other stuff ive read she just goes from one doc or clinic to another...not with any good doc long enough for them to figure out whats going on
I feel like she expects a clear tx plan like ten days of this and thirty days of that and then three weeks of detox and your done
But we all know thats not how to get better
I hope shes on the right path...she said a lot of good things in link above...like docs unable to dx her and blood wor always neg
But mybig confusuin is if she said that two years ago and has been with LL ppl...why did it all come out in the news. The last few weeks that she is still really sick
I would like to hear what llmds she has worked with
Posted by Lymetoo (Member # 743) on :
It's been in the news .. or at least it's all over Facebook as she is very public about her treatments and how she is doing.
I don't know of any true LLMD's that she has seen. I think one thing that would seem "right" was the stem cell therapy but who knows if South Korea really knows how to do that?
I wish she would go to Germany.
Posted by birdie67 (Member # 35994) on :
She is wonderful to bring so much awareness to this disease. I appreciate her willingness to speak out.
Posted by lpkayak (Member # 5230) on :
Lets watch for those she challenged!
Posted by Catgirl (Member # 31149) on :
Maybe she doesn't know about co infections either. I'm grateful she brings awareness to lyme.
Posted by LisaK (Member # 41384) on :
kayak, she is in the news again now being very sick becasue she has a "relapse" or what some of us suspect- never tx right for coinfections or maybe it's other things too , ...the list can be as long as your arm, like we all know all too well.
or maybe she just got reinfected. who knows.
I don't want anyone to have this or be that sick, or sick at all, but it's nice to hear that someone to rich and pretty and nice as she is can be there with the rest of us. and that she might, just might get all better some how and then the whole world will know more than they do now.
Posted by healthywealthywise (Member # 8595) on :
I'm sorry for her.....she has a magical life except for this horrid disease.
Just goes to show, no amount of money matters in this fight. She's a millionairess and still can't get better. She's gone IV, then herbal route, stem cell and all of the rest etc etc etc.
Her box of meds looks just like all the rest of ours.
Even though I spent my money, all of it and show no results, her wealth and access is far superior so maybe, just maybe she can go the distance where many of us have had to stop treatment.
Hate that she got it but if anyone can fund research and protocols, she has the resources. I wish her well and then to have her share her success with us.....[praying}
Posted by Catgirl (Member # 31149) on :
Did anyone catch RHOBH this past week? Two women were causing havoc on it (Kim and Brandi) and then Yolanda got sick (stressed) and needed to stay in her hotel room to rest. Stress is so bad for lyme.
Posted by Lymedin2010 (Member # 34322) on :