This is topic Dealing with people's well intentioned but unwanted advice! in forum General Support at LymeNet Flash.

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Posted by Green_Where_You_Water (Member # 46647) on :
I am currently dealing with a new Lyme diagnosis as many of you know. I actually didn't even suspect Lyme, I thought my symptoms were related to a copper IUD that I had just had placed.

My GCP tested for Lyme without me even knowing it, along with a slew of other blood work. Needless to say, I was pretty shocked to learn of my diagnosis!

So I am still kind of dealing with the shock a bit, and have done lots of research and have found an LLMD that I think is the best option for me and not that far away. I know a lot of local people that have had success there.

In the meantime, my husband has been talking to some people that we work with and telling them about my Lyme (which I'm already not that happy about, Id rather just deal with it amongst ourselves!)

I now have a lot of people telling him all of these different places that I should try. Non of these people have had Lyme, and non of the recommendations are LLMDs!

It is very frustrating! I know they mean well, but please just trust that I have done my own research and am happy with the decision I have made!

My husband wants me to try this wellness pharmacy before the LLMD because someone just told him that they are experienced dealing with Lyme. I called just to appease him and they said that they fill prescriptions for Lyme but don't actually treat it...duh!!

All of these useless phone calls are just taking energy that I don't have. Do you guys deal with the same thing? How do you handle it?
Posted by Keebler (Member # 12673) on :
"Thanks so much for your thoughtful concern in sharing a recommendation. At this time, I've secured key information to get started and have located a doctor. The road will likely be rough & tumble yet it's good to have a plan that is taking shape.

If you ever need such detail, my search might also help you. So, here are just a couple starting points for your own family medical file - just in case & to help with prevention:

ILADS - International Lyme & Associated Diseases Society

Lyme - a top lyme & tick-borne disease educational organization

State, regional and local Lyme support group. Be sure they are ILADS "minded"

LymeNet - discussion boards
Posted by Keebler (Member # 12673) on :
Your husband is likely concerned and is more open to welcoming suggestions from others as he may not yet quite understand that . . . hands just numbed out again. Ask him to reel it in a bit and work with you and good stance.

You have to have the lead here, though. Let him know how he can help.
Posted by Green_Where_You_Water (Member # 46647) on :
Thanks for the advice Keebler. Thats a good idea to kinda turn it around and offer what info I have instead : ) I like that!
Posted by Lymetoo (Member # 743) on :
Water under the bridge, but do ask him to keep it quiet for the most part, just to save you unnecessary stress.
Posted by LisaK (Member # 41384) on :
yeah, just say "thank you, I appreciate your help" and do what you want.

let it go right out the door. unless , of course, you think it might be useful.

I couldn't remember much when I first was dx, so zi tried to write things down that might be of use later. you seem to already have a husband that cares enough and that is able to help you. come up with a system together . being organized will help greatly.

and keep a journal. of your pains, what makes them worse, better, meds.... weather changes, etc.. it will all be handy probably later. just my advice.

best of luck to you

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