I have just started treatment with a new LLMD. I was seeing another LLMD but due to him retiring i had to find a new one. With the old doctor i was on minocycline x2 daily at 100mg. On day 4 i felt so out of it to where i couldn't walk in a straight line and felt like i was going to topple over. I also had head pressure that was so bad i ended up going to the ER twice.
My doctor just told me he thought i had a bad herx and to power through. I was concerned about Intracranial Hypertension so i went to a Neuro Ophthalmologist who checked my optic nerves for swelling, but there wasn't any.
She also sent me to a neurologist who told me that i should not take minocycline anymore and it was probably just a bad reaction. I saw my new LLMD and did explain all of this, but he said intracranial hypertension was pretty rare and it probably was just a bad herx and he wanted to try minocycline again at a much lower dose, only 50mg every other day.
I started again and once again the head pressure is back and i'm not sure what to do. Has anyone taken this medication and had this reaction? I am still really concerned i may have intracranial hypertension.
Posted by Lymetoo (Member # 743) on :
It can definitely make a person dizzy. I don't know why your LLMD won't try a different drug. It's not like minocycline is a huge player in Lyme disease.