I don't post but I read the site for entertainment called RealityTea. Yolanda wrote a blog about the ignorance her castmates have about her showing her battle with lyme disease.
The reader reactions are so vile b/c I have a drawer full of the same meds Yolanda does and now they are calling it Munchausen syndrome all over the place and how our great docs in the US would know if it's real and they ALL say it's not a real disease!!!
I'm still fuming and so down b/c I've battled this for 22 years.
Don't try to post there b/c 2 years ago I tried to explain our battle and was attacked right and left for being her stooge. Don't bother unless one person contacts the site administrator and asks to write a response that is informative for these nasty know-nothings who react to her illness like a pack of jackles. Horrifying..
The sad part is that she says she is doing this for awareness but if this is the response she gets, I wish she would stop as it seems to be hurting all of us now.
Sorry if I'm not able to do it myself but it has to be succinct and to the point, no links to other sites etc....
I just got out of the hospital b/c of lyme+ and all the great doctors and all their great men couldn't find or fix what was wrong w/me AGAIN even though I brought my lyme documentation, including microscopic pics of the disease in my blood. THEY NEVER EVEN LOOKED AT IT!!
Ah, just had to get it out there..not start a war or anything. Peace and love to all of you here who educated and comforted me all of these years.
Maybe she should stop blogging if all it attracts is hate mail from vicious morons. She does not need this kind of upset while dealing with lyme. We appreciate her efforts but peace of mind is important to her.
Posted by Keebler (Member # 12673) on :
- My advice would be to go quiet, just say she's working on her health . . . but post the links for the top key organizations like ILADS and LymeDisease.org where anyone interested can learn more.
[It would have been nice had all her friends / media partners learned long ago.]
I would also stop all comments for any blog. Just post what she wants to say and it's just not open for anyone to deny her that right to say it. Always have links where readers can learn more, but she should not have to fend off rudeness. Omit the comment section.
Some find it's good to just disconnect from all social media for extended periods of time.
If she is required by contract to keep up appearances or blogs, she can still be there, as best she can, not pretending but also not as the teacher.
She can still shift the focus to where others can learn more from the experts -- then to a different point of view about, oh, finding beauty in life or something like that. That could open up a whole new world, really.
Shift focus from her getting hit with gossip to where can those who can't get out much, etc. find beauty? And that shifts from outer to inner beauty and appreciation of senses & art. All this will come from how she's navigating her path just shifting the focus.
She should not have to be put in the position of "teacher" as she works to get better. No one can do that.
It is very sad that there are so many harsh criticisms by those who have not bother to learn the basics. It seems to come down to spreading hatred, through, with such harsh hits. A better control system is surely required. -
Posted by Tincup (Member # 5829) on :
Hey healthy, etc.
First, so sorry to hear you've been so ill lately. Hoping you get feeling better soon. Also sorry you had to see that trash and it has upset you.
2nd- You are absolutely right. That is a bunch of nasty people.
3rd- Sorry. I didn't listen to your advise. I couldn't let that trash stand as is.
Not to worry- I have been the volunteer who has allowed the "Kick Me" sign to be on her back for years now so others (our docs, groups and organizations) could move forward and wouldn't get the blow back from what we do, so they can kick me all they want.
Again, feel better soon!
Posted by Tincup (Member # 5829) on :
I finally got off the site after what seemed like a couple of hours of posting info. There were some nice people there and some who were asking questions and responding kindly. Hope this calms it down a bit for you Healthy.
Posted by Carol in PA (Member # 5338) on :
quote:Originally posted by Tincup: I finally got off the site after what seemed like a couple of hours of posting info.
Tinny, I went to the site to read your comments. Your profile said 15 comments, but I only saw three.
Why would they have been deleted?
Posted by Jordana (Member # 45305) on :
No one is going to accept the existence of this disease without argument. We didn't, I didn't. Its awfulness is beyond description and I'm glad this woman is out there showing the public what it looks like.
What these people who are denying the existence of Lyme don't know is that they could be next. Given the numbers, eventually enough people will get how serious it is. Until then I figure it's less stressful to excuse denial.
Posted by Tincup (Member # 5829) on :
Hey Carol in PA,
Probably because I had no clue how to post there and was replying to one person here and there, then to another somewhere else? Then under my own posts.
I had to apologize to the posters there and they knew I was having trouble keeping up.
I still don't "get" the blog thing and it moves so fast. I don't think (?) any were deleted, no one objected and it was all factual stuff, but could be? Sorry, I just don't know.
Oh, I did breakup some web site addresses and did put my email address there in the event anyone wanted to chat further on Lyme issues, so maybe that is a reason?? I did it like this so it could be read, but it could not be clicked on as a direct link.
After The Bite @ gmail. com
Jordana- I agree!
Posted by glm1111 (Member # 16556) on :
Doesn't help the situation when her soon to be ex David Foster said on www.radaronline.com that he thought she was faking the fact that her lyme was chronic and that she was cured a long time ago.
He said he thinks she just wants the attention!! So infuriating. Funny, people don't say that about aids and other diseases that are chronic. Good job TC for trying to inform folks that are so ignorant.
Gael
Posted by Tincup (Member # 5829) on :
G said... "He said he thinks she just wants the attention!! So infuriating."
Uggggg! You are right! I agree, if it were any other disease this wouldn't be happening. I did mention something about cancer being the "diagnosis" and this wouldn't happen in that case, but it was pointed out Ms. Foster's actions and behaviors had to be seen.
I don't know about that at all, but I stuck to the topic and had some very nice responses as a result.
Posted by glm1111 (Member # 16556) on :
Most people just don't understand the waxing and waning of this disease. There were times when I was able to get dressed up, go to a function and then collapse in bed for two weeks.
That's what I guess is happening with Yolanda and it is puzzling to most people and hard for them to understand. Glad you had some nice responses TC.
P.S
It's almost like people saying they were abducted by aliens and taken aboard a space craft and not being believed.They would have to be in their body flying through the air and going through Walls. It's the old saying "You would have had to have been there to understand" Posted by Muscle Car55 (Member # 34707) on :
What I don't like about our society is how a disease doesn't get any publicity till a celebrity gets it.
I'll admit, I was bit harsh on her on my blog, of course I never thought she was embellishing her disease, I just thought she received too much attention. And I didn't like how a rich housewife from some kind of materialistic show became spokesperson for the disease, it's not what people who have this disease deserves.
She kind of makes the disease look bad, her breast implants, way she acts on the show, etc...
But now I honestly think, more attention the better. Even if it may be bad publicity for the disease! Publicity is publicity, this disease needs to be known!
Everything what she's going through, middle and lower class people are going through with their own Lyme!
Healthywealthywis, if you're furious what people said in the comments section, have you read anything her x-husband has said?
Claiming she's embellishing the disease, paid for all her medical treatment and wants the money back. I'm assuming it's impossible living with a person who doesn't believe you are sick, that's gotta be super hard!
David Foster will probably just find a new young model, just like Trump did. I'm not a fan of the 1%ers and how they live their lives! But I guess it's just the type of capitalistic society we live in.
I really want David Foster to get Lyme.
Posted by Muscle Car55 (Member # 34707) on :
Ahhh Jordana, I feel you!
I went through what she's been through and lost a friend because of the same situation!
He told me I was milking my disease, it was his tax money that was paying for my medical bills. Even thought I sold my cars off, along with other things that actually paid for my medical bills...
Our friendship is broken, never will be mended.
People are just harsh! And I'm assuming women on this forum will feel a lot closer to what Yolanda is going through, because I've read posts where their husbands have left them. Or have gotten a divorce!
In Under Our Skin 2 Emergence, you see how many marriages that didn't last....
I always tell people to hang in there, if people aren't willing to shed any sympathy or empathy for you. Even though you've worked hard all your life, well losing them as a friend or husband shouldn't be much of a loss....
My girlfriend has stuck with me through toughest times, even some of my friends...
Posted by poppy (Member # 5355) on :
Keep reading this forum over the years and you will see it isn't just spouses who are unsupportive, even mean. Families, friends. You are lucky, muscle car, to still have support. And it looks like men are more likely to have it than women in a marriage.
And really, men are usually looking for the youngest woman they can catch, and she was past the age limit even though she looks great. Why do you think she had implants?
Posted by randibear (Member # 11290) on :
unfortunately, maybe she should shut up, back away, and start taking care of herself and tell the rest of them to go to heck...
Posted by Catgirl (Member # 31149) on :
I suspect her husband is cheap and just doesn't want to pay for treatment anymore even though he has money. People can have money but still be cheap with it. That and the fact that she had 2 foot worms may have freaked him out especially if he's a shallow person. You're right Poppy, her husband wants a trophy wife, not a sick one (what a d).
I can't believe her idiot friends are so ignorant that they are talking about munchausens. What is it with these b-----s that they don't trust what their sick friend says so they analyze the situation and pigeon hole it into whatever they believe is true? They are not alone though, many people only believe mainstream docs.
Let's face it, we've all had docs who only believe the old and incorrect info they were taught. They have no idea that the info the idsa puts out is wrong, so they ignore their patients and think the patient is making it all up.
I guess that's what some people do when it comes to lyme. Yolanda is no different. Clueless fans, friends and family just cannot fathom it, so they think it's anything else but the actual and correct multi faceted animal: lyme and company.
I think part of the problem too is that lyme is different for everyone, so it's not easy to accept. Our medical community diagnoses everything by the exact same symptoms they were taught to identify things. Lyme and company have so many different symptoms, only the LLMDs know its actually lyme, not munchausens or in the patient's head.
Yolanda's kids have lyme too, so are her idiot friends going to say her kids are making it up as well? Let's hope not.
I am just so very proud of Yolanda for showing the world what lyme is like. Right on Yolanda!!!
Posted by Robin123 (Member # 9197) on :
Oh well, I guess some of us should pay them a visit over there - thanks for starting that, TC -
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