I was just reading a post somewhere about someone's viral meningitis. The poster wrote that after her time in the hospital, a couple weeks later her fingernails started shedding.
"Coxsackie B...maybe 2 or 5..." I muttered under my breath.
This is my life now, lol.
Posted by Blymey919 (Member # 47424) on :
Nice...
Hells yeah, I do! Even have 2 doctor friends that call and talk to me about medical stuff like I'm one of their peers.
I did go through pre-med courses (for studying medical illustration) but Lyme research has me constantly in 'medical' mode since hyper aware of the body/symptoms all the time.
Posted by Lymetoo (Member # 743) on :
No kidding .. One of my friends refers to me as Dr ____ (first name) Posted by randibear (Member # 11290) on :
well isure as heck feel feel like I know more than these doctors.
Posted by Jordana (Member # 45305) on :
I was never interested in medicine. I assumed the fact that we had doctors meant that if I ever got sick there were these professionals who would know how to fix me.
Hahahahahahahahaha.
Posted by Lymetoo (Member # 743) on :
I've said for years that I got my medical education on Lymenet. Now I'm learning even more on various Facebook groups. Sadly, I NEED to learn more.
Posted by Jordana (Member # 45305) on :
Apparently we all do, Lymetoo. Since doctors don't seem to be able to help 85 percent of the time. I spent a year chitchatting with specialists and finally came away grateful none of them had managed to kill me yet.
Posted by MannaMe (Member # 33330) on :
I've had people tell me I should go for a medical degree.
A couple friends will call and ask "Is the doctor in?"
I really didn't set out to learn so much about health and healing / sickness and disease, but had to learn in order to help my husband on his journey to regaining his health.
I used to think the doctors knew it all - after a year of seeing doctors and nothing was better, I realized it was time to dig in and learn for myself.
I'm still learning - Thanks for all the schooling we get here on Lymenet!!
Posted by Nula (Member # 38409) on :
Yeah, I do.
I recently told my little niece what to do about a health problem.
She asked, facetiously, "Are you a doctor?" (Knowing, of course, that I'm not).
My mother looked at me and said: "Yes, she's almost a doctor".
God knows I want to read other stuff. I'm sick and tired of reading about Lyme.
quote: I used to think the doctors knew it all - after a year of seeing doctors and nothing was better, I realized it was time to dig in and learn for myself.
MannaMe, same here!
Posted by Keebler (Member # 12673) on :
- Well medical colleges are sure not teaching about lyme / TBD. And the pressure is also on to get doctors to put down and even shame patients with complex cases. They are taught more "how to deal with difficult patients" - to shut them up and move them out - than to learn about the reality of it.
I've always said (after learning this the hard way) that since most doctors are not at all educated in the matter of tick borne infections then it falls upon the patient to learn all they can (whether or not they are so lucky to be able to find or afford a LLMD).
Most of us have learn so fast and so much because proper medical guidance is not available. Sigh.
Having tick-borne and chronic stealth infections is like being air dropped into the last semester of an advanced science in masters degree program -- without having even gone through the prerequisite undergrad preparatory work and be expected to be up to speed . . .
all while feeling like having the worst exhaustive & painful flu forever along with pop-up dysfunctions & disabilities that turn our world upside down.
Not only might vertigo lunge a person into a whole knew reality but many even loose ability to decipher words. Twice, I had to learn to read, write, talk and talk all over again.
Through all that, most patients are still left not just to figure it all out but to find the solution and pull themselves up with nearly nothing, including being deprived of the understanding of those around them.
Because the media generally does such a terrible job, most who don't have lyme just can't have a clue.
All those I've know with lyme / tick borne infections have been remarkable people who do what it takes to learn what they can. Cheers to all them, Cheers to all of you !
If not _______, then what else?
If can't access _______. then how else?
These two zipper questions have been of great help to me. May they be to others, too. -
Posted by TxCoord (Member # 9204) on :
Just going through eye surgery to save my eye (eye sight shot, but kept the eye) I've learned "bleb" (kind of like the face of a clock where the fluid exchanges in your eye about every 90 minutes) and "Vitrectomy" ("Wait a minute doc - you're going to do WHAT?!?!?!?!") - eye surgery.
Silver and I also learned about "tigroid fundus" - that was a fun one because
When the doc first said it, Silver and I both though he said, "typhoid FUNGUS"?!?!?! Which made him laugh. Then he explained that the back of the eye, the "fundus", can have white and yellow striping (hence "tigroid" meaning "tiger-like").
So I asked, "Does that mean I have the 'Eye of the Tiger'?"
Brought the house down.
Posted by Razzle (Member # 30398) on :
Yeah, no kidding.
This journey we are all on is certainly life-changing...
I've found the best doctors are the ones who have actually been ill themselves. Those who haven't, just don't "get it."
TxCoord - thanks for the funny, I needed the laughs. :)
![[Big Grin]](biggrin.gif)