quote:

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Originally posted by Christopher J:
You've got a drug problem. And I would say it is clouding up everything else including your Lyme treatment. I have to say, its a little bit jarring to hear your listing off of opiods, pain killers, and alcohol in one long sentence. And then heroin. Who is giving all you this stuff? Now if you're serious about killing viruses quickly, cut off all arginine in your diet for a week. Arginine feeds viruses, and Lysine reduces Arginine. Eat dairy products, cheese, yogurt etc. No beans, seeds, nuts, legumes etc

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Respectfully, before accusing someone of a drug problem, especially someone in a fragile state, it may be better to ask.

Jordana stated the oxy is *leftover* from surgery, and I'm sure many of us have alcohol in the house even if we don't drink. There is alcohol in my home and I haven't had a drop in years.

I don't think she meant she would literally take heroin--I think she was expressing she is in major pain and needs it to stop. But I don't know exactly what she means; however, it's not helpful to accuse her.

Jordana is clearly in pain and in a fragile state and doesn't need added stress.
 

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Posted by Bartenderbonnie (Member # 49177) on :
 
Dear Jordana,
I m so sorry you encountered an online name calling bully.

Dear me,
Well put !

Dear Christopher,
You were out of line. Please retread Jordana s post.
She clearly states her first line of defense was herbal. Also,she is suffering something awful and is scared. I believe her mentioning heroin was her way of sarcasist humor of how dire she feels.

And to answer your question as to who is giving her all her meds ... Ask any Lyme sufferer how many prescriptions and herbal remedies they have accumulated over their journey and you would learn they could open their own pharmacy.

Because that's what the health care system and medical doctors do... throw drugs at symptoms and not getting to the reasons why a body reacts the way it does.

We are all God s creatures. Show mercy. Be humble.
 

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Posted by me (Member # 45475) on :
 
Thank you, BartenderBonnie.
 

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Posted by Jordana (Member # 45305) on :
 
. Hey Christopher:

The vodka doesn't belong to me. The painkillers are leftover from a surgery. The heroin was a joke. Just kidding, heroin=imaginary.

Thanks for your concern; I wish I had a drug problem instead of a Lyme problem. I also wish I had effective drugs for these symptoms because believe me if they existed I would take them.

I'm not offended, and thanks for your advice.
 

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Posted by randibear (Member # 11290) on :
 
hey y'all, I have vicodin, norco, ativan, prednisone, and gosh knows what'll you find in my medicine cabinet.

leftover from my colon surgery. I don't take it tho.

and, man, I've got so much alcohol, let's see, kahlua, wine, port, gin, bourbon, whiskey, rye, rum, scotch, you name it, I've got it. husband's friends drink. alot I bought cruising. cheaper.

I am not an alcoholic. I am a teetotaler.

but to look at my bar and medicine cabinet, you'd probably call me a downright drunk.

all of us have a stock of meds. I jus cant throw them away cause I spent sooooo much money.

and there are days when I'm having migraines I'd take anything I could get my hands on, but I don't. I jus tough it out.

I know exactly how you feel.

for flu, it's tough cause I have high blood pressure. nyquil is out. I'd ask the pharmacist. we have lyme so we'll react different than most people.

and remember, no flu shots.
 

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Posted by Jordana (Member # 45305) on :
 
Thanks -- no flu shots. I'm coughing today; worried this is going to turn into bronchitis. I've herxed on every abx I've taken and I'm sort of "herxing" now.

Lyme makes everything tricky, eh.
 

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Posted by randibear (Member # 11290) on :
 
another thought, my bronchitis turned into asthma.

am now on ceftin and an inhaler. I'm 67 and now have asthma....

like you, mine all started with a cold.

so watch for asthma.
 

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Posted by Silverwolf (Member # 9196) on :
 
Hi <<<<< Jordana >>>>>,

I am so sorry to hear you are feeling so cruddy,weary and weak.

Dear Lord, Jordana is tired,in pain,coughing,quaking,and aching. Please help her symptoms to calm. Let her know that you care about her,and ease these symptoms so she can get restful and restorative sleep.

And perhaps you could send some Angels just to watch over her extra while she rests. We give Jordana to you,and ask for healing Mercy! In Jesus Name Amen!

To many of us, know this utterly exhausting weariness from Lyme and Co's,and a host of symptoms and herxing troubles.

A lovely soft blanket/quilt[not to heavy tho'], Or if it is a hotter climate, a soft cool set of sheets,always feels wonderful.

I'll be keeping you in mind,and hope you feel better soon, Jordana!

Jus' Silverwolfi here
 

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Posted by Jordana (Member # 45305) on :
 
That's what's really horrible about this disease. When it starts it's just a little odd but then it just keeps moving in and taking territory.

When I started my back was fine; now I have cervical spondylosis and all kinds of slipped discs everywhere.

I have an underpneumatized mastoid. I have an adrenal adenoma, left cardiomegaly, multinodular goiter, iron deficiency anemia, and then when I was in hospital they found "bibasilar atelectasis" --

because I when I slipped the disc my ribs went spastic and the bottom of my lungs collapsed.

I have bladder pain every day and have no intention of going to get a dx of interstitial cystitis because I know I'm peeing flagellin.

This is ON TOP OF the neurolyme, double vision etc I've had for two years and so on. I was perfectly fine two years ago and I just keep picking up dysfunctions.

Asthma, never had it in my life, but why not.

. Thanks for the prayers, Silverwolfi.

(breaking up the post for easier reading for many here)

[ 11-20-2016, 04:21 PM: Message edited by: Robin123 ]
 

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Posted by ilovedogs (Member # 48866) on :
 
There is nothing worse than a cold, flu or whatever on top of lyme!!

Thinking of you and hope you feel better soon
 

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Posted by WPinVA (Member # 33581) on :
 
So sorry about the flu. It's so demoralizing to get sick on top of Lyme but it WILL pass. When I'm sick, I take lots of vita C (buffered), elderberry and takuna. As well as lots of fluids, chicken broth, etc.

On the up side, at least you know what it is since you know where you got it from.

You had another post out there that I've been meaning to respond to in which you were looking for general direction, wondering why you just get more sick on abx. You strike me as someone who doesn't detox well at all, probably due to genetics. Also, there very well may be other factors contributing to the toxic load, like mold.

If this is in fact the case, you don't want to just keep hitting stuff and getting worse and worse, as the cytokine storm it induces can be damaging your body. You would need some major detox and would need to be under the care of a doctor who really gets how to tailor this to you.

If you can travel, I can PM you the name of a doctor who understands all of this. Sadly, too many of them, even really good and well-known ones, don't.

And don't worry, we ALL have enough drugs on hand to be accused of a drug habit. My allergist nearly fainted when I brought in my bag of meds and supplements. It was almost funny.
 

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Posted by Jordana (Member # 45305) on :
 
Thanks WpinVA, I'll keep it in mind. I'm actually going to see a Big Wizard tomorrow to see what he thinks of my Lyme so far.


Yep. On a plane with the flu and NO BENZOS. I hope I don't cause some kind of medical incident .
 

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Posted by Jordana (Member # 45305) on :
 
I also want to tell you that I think detox is always an issue but I think my problem is autoimmunity, specifically neuroimmunity. For a long time i didn't think so because I started with a positive ANA that went negative and the anti-achr antibodies dropped from 25 to 18.

But...my "herx" last month was some crazy ****. I walked into the ER and told them I was dying. Once I stopped the meds the worst of the reaction lasted a full week and I'm still not back to baseline. Minocycline is documented to cause all types of autoimmunity including vasculitis and lupus; again I didn't think that was going to happen to me because AI is nowhere in my family even. .


However, the more I thought about it the more I realized I was in way over my head and I needed to see someone who *really* knows what they're doing or I might end up in a diaper.

I made an appointment with a doc in DC and in the meantime I'm swallowing a ton of turmeric and p enzymes trying to get back to baseline. Only mildly successful; I'm not back to where I was before the mino/rifampin the doc I was seeing prescribed. I'm better, but...not there. After a month it's probably not detox; might be but I think there's more going on.
 

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Posted by me (Member # 45475) on :
 
Good luck on your flight, Jordana. I have an appointment with him in a few minutes. Let us know how the appointment goes. Hugs!
 

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Posted by WPinVA (Member # 33581) on :
 
Just sent you a PM, Jordana.
 

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Posted by Jordana (Member # 45305) on :
 
Awesome. I am in a hotel.

I am really glad I made it and really pissed at medical science for making me get out of bed to see a special doctor a couple thousand miles away.

I'll let you guys know what they say.
 

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Posted by me (Member # 45475) on :
 
Rightfully so. Be sure to ask him about IV glutathione pushes.
 

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Posted by HW88 (Member # 48309) on :
 
Jordana, before I figured out I had lyme, every time I got sick I would crash.

I'm not sure if it's because our immune systems kick in or out or what, but I could count on at least a 2 week crash every time I got a simple cold.....

I think it's an overload of some sort. Not really sure. I feel your pain. Hang in there one day at a time.

I have no helpful tips, except some people say alka seltzer gold.

Know we are thinking of you.
 

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Posted by me (Member # 45475) on :
 
Good luck today, Jordana. Let us know how it goes.
 

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Posted by bluelyme (Member # 47170) on :
 
rooting for you ..keep us postd lomatium and iv vit c helped me with lots of propolis, also the enzyme maybe breaking up biofilm , i stopped on days i dont treat ..

.for my vasculitis which didnt have a high esr ,was clearly there via livedo ,i did iv curcumin and rocephin helped some .i think the bugs in the endothilial lining get killed and the immune sx is like there they were...whaalaa inflammation of the veins ...
 

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