My story is a long one so I will keep it short. I was diagnosed with multiple sclerosis December 2015.
At that time I had 22 lesions on my brain. Underwent treatment with rebif injections, thought I was going to die,
after almost a year, went to UAB was tested for Lyme tested positive for 3 or four bands I honestly can't remember.
Was sent to an infectious disease doctor in Huntsville Alabama who told me that I would always have lime because it was chronic could late-stage, is tomato have had it for at least 14 years,
was treated with 5 grams of Rocephin through a PICC line for 4 weeks. Went back to the doctor she said that you're cured! WTH??
Of course I was not thrilled and didn't understand why she contradicted herself and I questioned her about it.
Have not been on treatment for Lyme disease since nor am I on treatment for multiple sclerosis.
I need help finding a Lyme literate doctor near me that will actually listen and actually knows what they're talking about!
I would also love to be in touch with others who are unfortunately suffering with this horrible illness, just to have someone to talk to that understands.
What others don't understand that are not suffering from Lyme disease is that it takes Who You Are away from you and they can't understand how you feel because, thank God, they are not experiencing what you are on a daily basis.
Any info would help and be greatly appreciated thanks.
***edited for easier reading***
[ 02-04-2018, 03:27 PM: Message edited by: Lymetoo ]
Posted by Lymetoo (Member # 743) on :
Welcome, Marcy!
You may want to copy and paste this over to the Seeking a Doctor forum for more help in finding a doctor.
I would say off-hand to stay away from a supposed "LLMD" in Mobile.
Probably the best doctor "near" you is in Missouri.
Posted by Tincup (Member # 5829) on :
Happy Super Bowl Sunday Marcy!
Welcome to LymeNet!
So sorry you are having such a rough time of it and yes, some doctors do suck! Sorry that you've had more than your share of them!
At www.MarylandLyme.org in the "Doctor Referral" section (see menu on the left) you will find lists by state of Lyme friendly health care professionals, along with their contact information.
The state pages have listings for MD’s, PA’s, pediatricians, naturopaths, holistic doctors, chiropractors, chiropractic neurologists, speciality labs, alternative care providers, alternative dentists, acupuncturists and those treating mold exposures, Morgellon's/Lyme and MTHFR and more.
Additional information that may interest you is listed by topic (lab list, alternative professionals, ALS/Lyme, treatment guidelines, ticks and diseases, NOT recommended, etc.).
As for support groups, LymeNet is quite active and you can chat with folks here. Saves you the time and effort of traveling too!
Many of your every day questions can be answered here by those who have "been there, done that".
If you'd prefer an "in-person" meeting LymeNet has some of the groups listed here.
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