About those with rare illnesses and what they will do to try to get well.
Posted by Mashieniblick (Member # 50588) on :
from what reports and reviews say, the film is all about painting the picture that these sufferers are faking their illnesses and that it's all in their head. I haven't watched it yet, but want to.
Posted by Lymetoo (Member # 743) on :
I haven't seen it myself.
Posted by map1131 (Member # 2022) on :
I refuse to watch anything that gives the indication that chronic illness is all psycho.
Ignorance is not understanding the head/mind are connected to the entire body.
Find the root cause of illness whether mental or other physical ailments. What a concept!!!!!
Pam
Posted by Lymetoo (Member # 743) on :
That wasn't the vibe I heard on the mast cell site, but I could be wrong.
Posted by map1131 (Member # 2022) on :
The folks they used (didn't pay them to do it) are furious that they snipped, cut, pieced together and changed their message.
Dr K(actually in the documentary) has withdrawn his support due to the way they portrayed the chronically ill.
The doctors and patients in this were lied to about what their intent was in producing this film. Don't waste your time or effort watching this.
Pam
Posted by Mashieniblick (Member # 50588) on :
I watched the first 15 minutes of this last night. They actually have Horowitz on film saying something like "If I can't help you, it probably all is in your head"
yeesh
In the first 15 minutes of Seas 1 Ep 1
Posted by Mashieniblick (Member # 50588) on :
Oh geez... I couldn't even read all of the review without getting steamed up!
Posted by Lymetoo (Member # 743) on :
This was on the mast cell site today:
"There’s a new show on Netflix called “Afflicted.” They’ve basically taken people with real chronic illnesses and made a mockery of them. The majority of those featured in the series have Lyme disease. They made it appear as though their symptoms are all in their heads, and it sheds a bad light on those who actually suffer with chronic illnesses. This show needs to be taken down. All it’s doing it making a mockery of people with real diseases and disorders."
Wow. I just watched the first episode after seeing these comments.
That said... I would love everyone to watch at least one episode too and not give up on it before you do.
My bet is watching it could change some of the comments here based on what people have only "heard" about it. (It did for me.)
Gotta say I 100% believe the patients and family and the caregivers and see some serious disabilities that people are suffering from.
It's like what Lyme patients are going through, and it is breaking my heart.
Nothing seems fake or distorted and in my opinion these people's problems are clear in the story and evident to all because mainstream medicine is ignoring them and not offering anything hopeful.
And by ignoring them mainstream medicine is also insulting them (giving the impression they are crazy) and making a mockery of them, not the film. I feel they need help and feel bad I have nothing to offer.
I may change my mind if I watch more episodes, but for now I am fine with it. And after seeing these comments I'd really expected NOT to like it. Just saying...
Posted by Mashieniblick (Member # 50588) on :
What did you think about the Dr H* comment in the first 15 minutes of the first episode? I had to watch something else at that point. Why do you think producers would drop that gem in there randomly? I am going to get back and watch the rest at some point. I guess I am doing it backwards and read the reviews before watching it, so I am going into it with a bias...
*edited name of LLMD*
[ 08-22-2018, 05:34 PM: Message edited by: Lymetoo ]
Posted by Lymetoo (Member # 743) on :
I don't have Netflix, so I guess I won't be able to see it.
Posted by Tincup (Member # 5829) on :
Hey Mash,
I'm not going back to watch that episode right now- not enough time- but from what I remember, he didn't say what was mentioned above.
I specifically remember thinking it wasn't bad as I'd expected after reading comments here earlier, but I can't remember his exact words. Sorry!
Maybe you can hear it and quote it for us. I very well could be wrong. It happens! ~smile~
Posted by Tincup (Member # 5829) on :
Tutu,
I don't get tv stations (cable or satellite) so Netflix, a friends and family plan thing I'm attached to, is all there is when I want to listen to something!
The bad part about all that is on Netflix there are hardly any commercials. I do so miss the commercials! NOT!
Posted by map1131 (Member # 2022) on :
TC, I recommend you read the patients in this film and LLMDs in this film/series reaction to this piece. Their disappoint/outrage is all over social media.
After all they are the victims of chronic illness that were told they were making a film to help bring awareness to their disabilities.....
then they are made to look like they are psycho. Sound familiar?
Pam
Posted by ishandraaa (Member # 51610) on :
I am in the middle of watching this. I started watching without even knowing it has ties to LYME. I was stunned because I just recently started to have testing done for it.
I was hoping that it would give me sort of answers, but from reading reviews on it I am sad to say that a lot of things are being left out and changed.
Posted by TX Lyme Mom (Member # 3162) on :
My daughter (the recovered Lyme patient in our family) and I watched it a couple of weeks ago, but it was so poorly done that I decided not to post about it for fear that it would be too upsetting to other Lyme patients who have not yet achieved a successful recovery.
It reminded me of the "bad old days" several decades ago before we knew very much about the underlying causes of CFS, and it was a very good description of the dilemmas that they faced in those days of not being believed and nor being able to find adequate treatment.
My estimate of the film is that it is so out-dated as not to be worth the time to view it. Also, it does not offer much hope for successful treatments. That's why I called it sloppy editing.
I sensed that the film makers were well-intentioned but that they didn't have enough in-depth understanding about their subject to undertake such a project.
Posted by Lymetoo (Member # 743) on :
A "healthy" friend of mine watched the first two episodes and she better understood what I go through.
I still haven't seen it. I heard there is a lawsuit by the participants. They are suing the producers for defamation.
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