This is topic One More Day- CHRONIC Lyme Disease in forum General Support at LymeNet Flash.


To visit this topic, use this URL:
https://flash.lymenet.org/ubb/ultimatebb.php/topic/3/38559

Posted by Tincup (Member # 5829) on :
 
From the Lyme Disease Association (with my comment below it).

LYME PATIENTS, LAST DAY TO BE HEARD!

Tomorrow, June 24, is last day to send in comments to HHS Working Group (even a paragraph) telling them persistent Lyme (chronic) needs to be acknowledged and addressed by the federal government.

Countless thousands of patients are being discriminated against--46 years of Lyme & no help has ever been provided!

CDC & NIH need to be held accountable! Thanks to those who have already sent comments.

See LDA wbsite for information & details of where to submit comments.

https://lymediseaseassociation.org/government/federal-government/govt-departments-a-policies/hhs-tbd-working-group/agencies-deny-persistent-lyme-at-wg-take-action-now/?fbclid=IwAR1 nInQ8Hf1K3jkw2wHY4789sMyqhXa4PkrNXCxIovlMUQMB8Thjk7FWnXo

MY COMMENT...

Please help us fight for YOU! LDA has worked so hard to try to make things better and rarely asks for you to do anything towards that goal because they know you are sick and struggling.

BUT, they are asking now.

If nothing else, please simply write something like this... "Please address CHRONIC Lyme disease"... and send it to:

[email protected]

Thank you! ❤️❤️❤️
 
Posted by terv (Member # 29410) on :
 
Bump.
 
Posted by Ann-Ohio (Member # 44364) on :
 
Done! Easy peasy1

Here is what I said:

"Please address chronic Lyme Disease.
It does exist and people are suffering long-term effects
as well as loss of livelihood, and proper care and treatment, - and hope.
You are there to find ways to help.
Please!"

Thanks, TC!

And LDA is doing a great job,

https://lymediseaseassociation.org/government/federal-government/govt-departments-a-policies/hhs-tbd-working-group/agencies-deny-persistent-lyme-at-wg-take-action-now/?fbclid=IwAR1 nInQ8Hf1K3jkw2wHY4789sMyqhXa4PkrNXCxIovlMUQMB8Thjk7FWnXo

[ 06-24-2020, 04:59 PM: Message edited by: Ann-Ohio ]
 
Posted by Bartenderbonnie (Member # 49177) on :
 
Lyme sufferers;

I know you are in pain today.
I know you are bedridden today.
If you are able, e-mail to the link Tincup provided, and let your voices be heard. Take care. We are all in this together [group hug]
 
Posted by Ann-Ohio (Member # 44364) on :
 
BE SURE TO ADD A STATEMENT SAYING HOW YOU WANT YOUR POST IDENTIFIED. (Your name, anonymous, group you represent or other.)
 


Powered by UBB.classic™ 6.7.3