I have had chronic lyme since 2000 and am largely symptom free but have recurrent troubling symptoms waking at night.
About an hour or so after I fall asleep I wake with a smothering restless feeling and try to relax but it increases and my head feels like it's not getting oxygen, my heart rate is elevated and I feel clammy (hands/body).
I get out of bed and sit in a chair taking deep slow belly breaths, but it often gets worse where I feel tingly in my head and about to pass out. I take my BP and it is mildly elevated (130's/80's) and my heart rate can be anywhere from 80's-100 or so. Eventually this passes after 10-15 mins and sometimes I will feel cold, twitchy or shaky afterward. This always happens an hour or so into my sleep cycle and last night it happened twice in a row, which scared me.
I checked my symptom diary and have had these episodes since 2005 or so, so I imagine it if was dangerous I would be dead by now.
I do have lingering Supraventricular Tachycardia Episodes a few times a year, but this is not an irregular heart beat, it's different.
I am thinking nocturnal panic, babesia (though I don't sweat or flush during the day or at night) or some type of progressive ALS Neuro problem (no diagnosed ALS).
Anyone have this? I would be grateful to hear from you and get some thoughts on solutions. I am largely symptom free and can workout and live daily life fine now, so am not eager to begin treatment with ABX unless I have to.
Thank you!
Posted by Myco (Member # 9536) on :
PS - These episodes happen in cycles a few times a year or more but not nightly.
Posted by Lymetoo (Member # 743) on :
I would see your cardiologist and run it by him/her.
Might also be a panic attack??
Posted by Myco (Member # 9536) on :
quote:Originally posted by Lymetoo: I would see your cardiologist and run it by him/her.
Might also be a panic attack??
I did get an echo last year and it was normal as was the stress test. I am in shape, doesn't happen with exercise.
The only thing they found was SVT (Supraventricular Tachycardia) and I defiantly know when I go into that arythmmia.
Posted by Lymetoo (Member # 743) on :
That's good.
I also thought of the possibility of high histamine levels, but that normally wakes someone between 1-3 a.m.
Posted by Myco (Member # 9536) on :
quote:Originally posted by Lymetoo: That's good.
I also thought of the possibility of high histamine levels, but that normally wakes someone between 1-3 a.m.
That is usually when I wake, around 1-3am. I go to bed around 12am.
My other thought was Brugada but no family history or anything relevant on the ECGs but SVT and benign PVCs.