This is topic Finally! CDC reports 2019 reported Lyme disease cases in forum General Support at LymeNet Flash.


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Posted by Ann-Ohio (Member # 44364) on :
 
The CDC just got around to reporting the cases of Lyme disease in 2019
Ann

https://wonder.cdc.gov/nndss/static/2019/annual/2019-table1.html

Lyme disease
Total 34,945 rate per 100,00 [people] 10.69

Here is the Lyme disease Association article
And a ranking of CDC reported cases in 2019
plus the probable actual number based on the CDC estimate that there are probably ten times the reported numbers.

https://lymediseaseassociation.org/about-lyme/cases-stats-maps-a-graphs/delayed-cdc-lyme-final-lyme-case-numbers-for-2019-finally-released/

LDA State Ranking by Reported CDC Lyme Cases
Show entries
State Ranking Reported Cases Actual Cases (10x = actual cases)

1 Pennsylvania 8998 89980
2 New York 4243 42430
3 New Jersey 3619 36190
4 Wisconsin 2178 21780
5 Maine 2167 21670
6 New Hampshire 1710 17100
7 Minnesota 1528 15280
8 Maryland 1417 14170
9 Connecticut 1233 12330
10 Virginia 1199 11990
11 Vermont 1064 10640
12 Rhode Island 971 9710
13 West Virginia 885 8850
14 Delaware 641 6410
15 Ohio 467 4670
 
Posted by Ann-Ohio (Member # 44364) on :
 
https://lymediseaseassociation.org/about-lyme/cases-stats-maps-a-graphs/delayed-cdc-lyme-final-lyme-case-numbers-for-2019-finally-released/

Reporting Delay Explained

Final Lyme disease case numbers are usually reported in the fall of the next year (for 2019, should have been reported in 2020).

The CDC has responded to LDA inquiries over time that reporting was delayed due to the pandemic and thus to shortages of resources/personnel at many government levels, which was no surprise to anyone following the numbers’ delay.

CDC also had a note on the reporting page that “Due to the coronavirus disease 2019 (COVID-19) pandemic, data from some jurisdictions may be incomplete.”

Past Estimates of Underreporting
In the past, CDC has reported that only 10% of cases are actually reported─ that translates into 349,450 actual new Lyme cases in the US in 2019.

However, in 2021, the CDC announced that
“A recently released estimate based on insurance records suggests that each year ~ 476,000 Americans are diagnosed & treated for Lyme disease(1,2). ”

Prior Lyme estimates based on claims data had indicated “~300,000 people get Lyme disease each year.”

It appears clear from the number of patients culled from insurance data as being diagnosed and treated annually for Lyme disease in the U.S. that cases are vastly under-reported.

(1)• Schwartz AM, Kugeler KJ, Nelson CA, et al. Use of Commercial Claims Data for Evaluating Trends in Lyme Disease Diagnoses, United States, 2010-2018. Emerg Infect Dis. 2021;27(2).
(2)• Kugeler KJ, Schwartz AM, Delorey M, et al. Estimating the frequency of Lyme disease diagnoses —United States, 2010-2018. Emerg Infect Dis. 2021;27(2).
 


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