This is topic Hope for Lyme disease "long-haulers" in forum General Support at LymeNet Flash.


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Posted by Ann-Ohio (Member # 44364) on :
 
This article is from the fall issue of a Columbia U. (in NYC) magazine.
So glad this new center is there to treat.
https://magazine.columbia.edu/article/complex-legacies-lyme-disease
 
Posted by Ann-Ohio (Member # 44364) on :
 
"It is the first in New York City dedicated solely to treating Lyme and similar conditions, like anaplasmosis, babesiosis, and Rocky Mountain spotted fever.

Fallon says that the Cohen Center, while providing clinical services to patients in all stages of disease,

will specialize in helping those who suffer from chronic health problems that appear to be the result of infections contracted months or even years earlier."
 
Posted by hiker53 (Member # 6046) on :
 
I hope they can help a lot of people.

They need more of these types of clinics throughout the nation as it is hard for some to travel that distance.

Thanks for posting this.
 
Posted by bpeck (Member # 3235) on :
 
I am a Lyme long hauler. And I am still here and functioning quite well. I was infected in the mid 70's ( by blood transfusion and Lyme was one of several infections from that transfusion) I was sick/debilitated at times from 1976 to 2001 when I was Lyme dx'd by PCR at Medical Diagnostics lab in NJ ) . I never tested positive on an antibody test until 2002 ( until after I was treated).

As you can see from my member # and date I joined ( 2002) I've been a member for quite a while, but haven't posted in about 3 years.

I am functioning and doing very well, and have been collecting my IgM IgG Western Blot data ( from Igenex) since 2002.

I've been IgM/IgG tested 9 times (Igenex) in 20 years, and have been steadily IgG positive since 2010. The last time I was IgM positive was 2012.

I treat with various abx when I have 2 or more obvious symptoms and think I'm having a relapse, or after having a tick bite. I live in northern VT, and we only started have ticks prevalent in the last 5 or 6 years.. now there abundant here.

I hope this site can stay functioning.

Barb Peck
 


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