This is topic Help! DR JONES needs $150K to continue defense ASAP or we lose him! in forum Activism at LymeNet Flash.


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Posted by nikkib (Member # 10016) on :
 
I am moving someones post from yesterday up because this is important. We are in fear of losing Dr. Jones. He needs our help. My kids need him and we all need him. If they take his license, all of the LLMDs will go down quickly. Please make an effort to do whatever you can. He is such a sweet and gently man who cares about us all! Rather than retire he is fighting for us! Please see below:


posted 11 March, 2007 07:29 PM
--------------------------------------------------------------------------------
HELP! Urgent Update from Dr. Jones - Please distribute!!!

CHARLES RAY JONES, M.D.
Madison Towers
111 Park Street, 1st Floor
New Haven, Connecticut 06511
Tel (203) 772-1123 Fax (203) 772-0682


March 10, 2007


Dear Friends,


Your tremendous expression of support continues to overwhelm me. I cannot put into words my heartfelt joy, appreciation and love for you all. The charges against me have provided great challenge, but I remain optimistic. I know that my approach to treatment is sound, and maintain my belief that justice ultimately will be served. I also have tremendous confidence in my legal team, which has been working diligently to enable me to prevail.

We have just entered the second year of legal hearings, however, and my legal defense fund is nearly depleted. My ability to mount an appropriate defense, from a financial perspective, is now in jeopardy (legal expenses have been averaging $1000 per day), and will depend on my ability to continue to meet the high cost of this lengthy and complex process. I currently need a fund of $150,000, to be in a position to fight the charges. In order to achieve this, I need your financial backing, in the form of as generous a donation as your circumstances will allow. It pains me greatly to have to ask this of you, knowing the tremendous burdens that Lyme disease already has imposed on so many. It is critical, however, that I retain my license, in order to preserve timely access to appropriate, comprehensive treatment for the children who are so very ill.

Checks should be made out to the ``Charles Ray Jones, M.D. Legal Defense Fund'' (write ``gift'' in the memo section), and mailed to the CRJMDLDF c/o George Heath, III (CPA), 26 Fairlawn Drive, Wallingford, CT 06492.

Alternatively, credit card donations to the legal defense fund may be made through a PayPal account: www.DefendLymeDoctors.com

Thank you for your continued support, your prayers and good wishes. Regarding your many letters of encouragement, please know that I read and appreciate every single one.


Sincerely,

Charles Ray Jones, M.D.

[ 14. March 2007, 10:10 AM: Message edited by: nikkib ]
 
Posted by Lymetoo (Member # 743) on :
 
I agree. I'm sending more money tomorrow. Every little bit helps.
 
Posted by bettyg (Member # 6147) on :
 
i agree 100%.
 
Posted by fatigued15 (Member # 6437) on :
 
We need to help Dr. Jones. If everyone donated a few dollars it would all add up.

Fatigued
 
Posted by fatigued15 (Member # 6437) on :
 
Trying to keep this to the top. We all need Dr. Jones. Please consider helping him.
 
Posted by justag (Member # 11145) on :
 
http://www.healingwell.com/community/default.aspx?f=30&m=754328&p=1

Someone reported on healingwell lyme board that she just had a healthy baby boy and she's grateful for Dr's Jone's consult...

[loco]
 
Posted by Boomerang (Member # 7979) on :
 
Bumping
 
Posted by fatigued15 (Member # 6437) on :
 
Found this on page 3. Please consider helping Dr. Jones. He has 3 hearings in the near future. He has helped and continues to help so many. We need him.
 
Posted by breathwork (Member # 567) on :
 
Up
 
Posted by dmc (Member # 5102) on :
 
bump
 
Posted by Lymetoo (Member # 743) on :
 
up
 
Posted by chiz (Member # 10301) on :
 
Dr J is an amazing man. Apparently he says that he could not sleep if he turned someone away who he could help.

He helped my son and I am indebted to him. I never thought I would send money to medico-legal lawyers. But we in the lyme community cannot afford to lose this man.
 
Posted by chiz (Member # 10301) on :
 
Dr J is an amazing man. Apparently he says that he could not sleep if he turned someone away who he could help.

He helped my son and I am indebted to him. I never thought I would send money to medico-legal lawyers. But we in the lyme community cannot afford to lose this man.
 
Posted by HEATHERKISS (Member # 6789) on :
 
Even $25.00 adds up.
 
Posted by HEATHERKISS (Member # 6789) on :
 
What's going on?
 
Posted by CaliforniaLyme (Member # 7136) on :
 
Anyone in CA who wants to hear Doc J can go to the Autism/Lyme LIA conference in Irvine in June!!! And if you don't know if you want to support him financially in this trial, go hear him and you wilL!!! He is a good man, a great doctor and thanks to his protocol my daughter has been in full remission for 5+ years!!!
Best wishes for Dr. J-
Sarah
in CA
 
Posted by FightFireWithWater (Member # 5781) on :
 
Any other support groups that would like to follow National Capitol Lyme's example and raise money for Dr. J. by sponsoring a special shopping day? Nat Cap raised around $1000! See their recent thread on General Support.
 
Posted by bettyg (Member # 6147) on :
 
i sent dr. jones $50 last week; finally got my 1 page letter typed and put in mailbox today; in mail headed to conn. tomorrow!

every couple of dollars add up. we have 10,500++ members; if each of them & their MULTIPLE nicknames gave FIVE DOLLARS PER NAME & FOR EACH MULTIPLE NICKNAME TOTALS

$52,500 a good start; 33% of total needed!

too bad we don't know celebrities who could donate very generously to this cause!!! [Frown]
 
Posted by Mo (Member # 2863) on :
 
if we each started a mini-campaign among our own close circles, neighbors, friends ..
and coordinated small "collections" with a note on the situation, we could fund this rather quickly and painlessly.

it's more than necessary.

mo
 
Posted by nikkib (Member # 10016) on :
 
up
 
Posted by DolphinLady (Member # 6275) on :
 
Every little bit helps. Please send whatever you can. Children suffering with lyme and cos need this wonderful and caring doctor.
 
Posted by FightFireWithWater (Member # 5781) on :
 
Individual contributions are important. I also think it would really help us get going if we can do more fund-raising for Dr. J. as part of a group such as Nat Cap Lyme with their shopping day. Sometimes people get energized for fund-raising around the funniest things. One group (non-Lyme)I've heard about is sponsoring their men-folk in a Wax-a-thon. The men get bids to have portions of their legs waxed and the women sit back and chuckle at the men's "wimpiness" about how much it hurts. The good cause receives the proceeds.

[ 02. April 2007, 07:03 PM: Message edited by: FightFireWithWater ]
 
Posted by HOPE4290 (Member # 7926) on :
 
Since last year my family has collected soda cans from family members and donated the money to Dr. Jones. It adds up. Recently we made the decision to forgo our charitable contributions to other sources and to church and earmark that money to Dr. Jones fund. I wish we could do more, but that is it for now, but it is something each month.
 
Posted by FightFireWithWater (Member # 5781) on :
 
Hope,

Thanks so much for sharing this imaginative and practical way of personal fundraising for Dr. Jones. That is really empowering!

Reserving refunds from recylcable bottles for Dr. Jones would also be something that many of us could consider doing.
 
Posted by shazdancer (Member # 1436) on :
 
I am coordinating this year's Walk Against Lyme Disease. My pledges raised will go to Dr. Jones' defense fund (unless they are designated to go to a non-profit, then they go to LymeAid4Kids).

Can you walk around the block? Then you can do this fundraiser with us. We need people all across the country to walk!

Please sign up at
Walk Against Lyme Disease

Walkies,
Shazdancer
 
Posted by sizzled (Member # 1357) on :
 
Any update on to this situation?? [confused]
 
Posted by bettyg (Member # 6147) on :
 
since the 8th/FINAL HEARING was done may 31, 07, did dr. jones receive enough money to cover the lawyer's expenses thru that date???

i hope so!! please advise! [group hug] [kiss] [group hug]
 
Posted by mjbucuk (Member # 843) on :
 
We were at the trial on May 31st, and saw Dr Jones the next day. He said there are 5 more meetings. This was just the close of one phase of the trial. [cussing]
 
Posted by bettyg (Member # 6147) on :
 
"He said there are 5 more meetings. This was just the close of one phase of the trial. " [cussing] [cussing]

that is disgraceful for all the BS they have put that man, his many kid lyme patients/parents, and our entire lyme community! [tsk] [tsk]

talking about sticking it to this gifted man who has devoted to gettin SICK LYME KIDS CURED, OR IN REMISSION! [rant]
 
Posted by sizzled (Member # 1357) on :
 
Update???
 
Posted by Dancer (Member # 11039) on :
 
For hearings synopses and updates see:
http://www.lymesite.com/drjones.htm

There is a note on the site that says -

Closing arguments were heard at the May 31st hearing. We are awaiting the finding, due by September.
 
Posted by daystar1952 (Member # 3255) on :
 
I certainly think that Dr. Jones needs to be supported but why does legal defense cost 1,oo0 dollars a day?. Doesn't that seem excessive? Or is that the going price? Maybe someone can update me (I haven't read every post here).

Last I heard the trials were over and they would let us know in Sept. as to whether he was considered guilty or not. I couldn't understand that delay either. Can someone explain the legal process to me.....Legal process 101? :-) Who is drawing out this almost...not even a misdemeanor... into an OJ Simpson trial? Is it that more money is needed for the future charges against him? Is all the money being used for the proposed purpose of helping Dr. Jones? There just seems to be alot of questions that we need to answer and not just shovel out the money. I am not at all questioning the need to keep Dr. Jones in operation. He is most loved and valuable.
 
Posted by sometimesdilly (Member # 9982) on :
 
1. All of the money goes to Dr Jones' legal defense.

2. why is this process being dragged out? Because the CT medical board is intent upon driving him out of practice.

3. Dr. Jones is waiting to hear back from the Board about the first case the Board is using to persecute him. If he survives that charge they have others lined up to keep him tangled up and to drive him into bankruptcy.

4. If we lose Dr. J- which is unthinkable- without fail medical boards in other states will successfully drive less well known LLMD's out of practice.

Dr. J is staying and still standing ONLY because he cherishes children with Lyme and wants to give them a chance to live.

He deserves every last penny every last one of us has to give him.

dilly
 
Posted by daystar1952 (Member # 3255) on :
 
Seems as if there should be some way to publicly challenge this obvious misuse of the law. I'm wondering what some of these other charges are and if they are senseless and should be thrown out of court? I think I'm going to try and start looking into this a bit deeper
 
Posted by sometimesdilly (Member # 9982) on :
 
daystar-

dr. jones is not being prosecuted in a court of law. If he were, the charges would have been thrown out long ago.

Unfortunately for him and for us, he is being persecuted by a medical board that makes up its own rules as it goes along and that is accountable to no one.

if you live in CT or you know anyone there, one place to start to is write/have them write the governor to protest this travesty.

And when you're mailing that letter, how about sending a check of whatever amount you can afford to Dr. Jones? He needs your support.

dilly
 
Posted by sizzled (Member # 1357) on :
 
The Medical Board should be investigated.
 
Posted by cbb (Member # 788) on :
 
The last I heard, the Medical Board would announce their decision in Nov instead of Oct.
 
Posted by sizzled (Member # 1357) on :
 
Well, it is November.

Has anyone heard about our beloved Dr. Jones????

The Dept . of Health in Connecticut is responsible for this witch hunt.

THEY should be investigated!!!!! IMHO!!!! [Mad]
 
Posted by ldfighter (Member # 9405) on :
 
Dr. J was found guilty of several charges, including diagnosing Lyme in a patient who basically didn't meet CDC criteria.

The panel has made a recommendation for penalty, with full hearing of the board on Tues. Dec. 18. The public is invited to this hearing!

More information:

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=061113

http://flash.lymenet.org/ubb/ultimatebb.php?ubb=get_topic;f=1;t=061101

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=061138
 
Posted by kay mass (Member # 206) on :
 
Links to information regarding Dr. Jones
PLEASE share, Thank you.

Portal: http://lymesite.com/drjones.htm

Time, Date & Directions: http://lymesite.com/Dr_Jones_hearing_dates_directions.htm

Travel: Rides available & needed, free rooms and hotel info: http://lymesite.com/Dr_Jones_buses.htm

Letter writing campaign details and updates: http://lymesite.com/Jones_updates.htm

Letters from the good Doctor: http://lymesite.com/drjones.htm

DONATION info: http://lymesite.com/Dr-Jones_please_send_a_contribution_to_th.htm

Synopses of all hearings & letters from Sandy: http://lymesite.com/hearing_1_synopsis_by_sandy_bere.htm

Reasons to support Dr. Jones: http://lymesite.com/Dr%20Jones%20why%20give%20support.htm

Misconceptions: http://lymesite.com/MISCONCEPTIONS_JONES.htm

Fundraisers: http://lymesite.com/LLMD_FUNDRAISER.htm

Advocacy: http://www.lymeinfo.net/advocacy.html
 
Posted by Peacesoul (Member # 13709) on :
 
I was just made aware of this dr's situation. I read the story and the bottom line is, he dx people by phone. Whether it be lyme, cancer, bronchitis, no dr should ever dx or give meds to a patient they haven't seen.
Do I think he needs to be charged, yes, but not as hashly as he is. He made a mistake, but that could have been a mistake that may have killed someone.
 
Posted by sometimesdilly (Member # 9982) on :
 
"peace"-

uninformed self-righteousness benefits no one.

dilly
 
Posted by lymie_in_md (Member # 14197) on :
 
Ultimately it is the political process which needs to be influenced. State representatives need to be influenced to recognize lyme and the science. A similar way the IAOMT has influenced the FDA to change its position on mercury amalgam safety. The IAOMT has used science, court, legislative persistence, and some dedicated congressional leaders to affect change.

Lyme has to be very much on the minds of those in Connecticut. It might be a good idea to know which candidates support chronic lyme as a condition and what can be done to support them. Also, how to present the science so it can speak volumes.

So one could look at these medical boards similarly to the FDA.

In the mean time, I hope my little bit helps Dr. Jones continue to help us.
 
Posted by lucy (Member # 7802) on :
 
I just tried to make a donation via paypal to Dr. Jones. It did go through but did not allow me to specify it as a "gift" as I was told to do.

There was no "box" or any other instruction as to how to offer any additional info.
 
Posted by pmerv (Member # 1504) on :
 
I have a funny story about donating to Dr. J.

I donated once and some time later thought about donating again, however I felt a bit reluctant because my husband says, "What's this expense for?" and I had already given once. But I kept the addressed envelope on my desk and kept bumping into it.

Finally I decided to donate again, but I wanted to look in my check register first. I thought I might have sent a second check and forgotten it.

When I looked, I found out this would be my 5th check!! Where was "I" when I sent off those other 3 checks? Was this Lyme brain? I can understand forgetting one check, but three? Was my better self sending checks that my practical self didn't know about?

I still don't know the answer, but it was for a good cause and my husband apparently hasn't noticed yet.
 
Posted by bettyg (Member # 6147) on :
 
phyllis, thanks for the great humorous, personal story! neuro lyme is for the birds!! [lol]
 
Posted by bettyg (Member # 6147) on :
 
WOULD BE NICE IF THIS 3-7-08 LETTER COULD BE POSTED AT THE TOP ABOVE YOUR 1ST POST SINCE IT'S CURRENT, changing the date showing a current letter here with all his updated info!! thanks!
**********************************************

Topic: Letter to you from Dr. Jones

author Tincup
Frequent Contributor
Member # 5829
posted 19-03-2008 12:28 AM
-------------------------------

CHARLES RAY JONES, M.D.
Madison Towers
111 Park Street, 1st Floor
New Haven, Connecticut 06511
Tel (203) 772-1123 Fax (203) 772-0682

March 17, 2008

Dear Friends,

I am writing once again to update you regarding the status of the charges which have been brought against me by the Connecticut Department of Public Health (CT DPH).

As most of you know, on December 18, 2007, the hearing panel made recommendations for sanctions that would have severely restricted my ability to treat Lyme patients, and would have set a dangerous precedent for other Lyme-treating physicians.

Those of you who were fortunate enough to hear Attorney Pollack's oral argument in response to the hearing panel's proposed decisions and sanctions (``Proposed Memorandum of Decision''), or who read the transcript published in the Lyme Times (Winter Edition), can speak to his professionalism and keen grasp of key issues pertaining to Lyme disease and the controversy which surrounds it.

Although the Connecticut Medical Examining Board (CMEB) went on to adopt the recommendations of the hearing panel with little change, I remain confident and extremely grateful to my legal defense team, headed by Attorney Pollack, and assisted by his associate Christine Collyer, Lorraine Johnson and others.

They have been engaged in a flurry of critical legal activity since December 18 to prevent the CMEB's determination from becoming final.

For example:

1. With the help of a skilled appellate lawyer from his firm, Attorney Pollack has filed an appeal and an Application to Stay the Connecticut Medical Examining Board's Decision in the Superior Court.

This was successful, because it resulted in a Court decision to stay, or stop, the application of a four part standard for the diagnosis of Lyme disease, pending appeal.

Although the Court did not remove the requirement for a monitor, this means that I cannot be penalized for treating Lyme if:

1) there is low risk of exposure,

2) the symptoms are what some call ``non-specific,''

3) the history is ``non-specific,'' and

4) the Lyme test is negative.

This change resulted from one ground in the appeal, which pertained to the fact that the hearing panel imposed this standard AFTER the trial, so that we had no opportunity to defend against it during the hearing, which most lawyers would consider a breach of due process.

2. Another ground for appeal filed by my attorneys pertained to the inconsistent position taken by the CT DPH Commissioner Galvin.

In a hearing on Lyme disease held in CT in 2004, as well as in other public statements, the Commissioner has stated that there are two standards of care for Lyme disease and that it is too early to ``call the science.''

He then contradicted these statements by bringing action against me predicated on the IDSA standard of care. In so doing, Galvin denied me due process and fair notice.

3. Yet another ground for appeal was based on the question of bias of one of the three panel members, Dr. Senechal.

Following the December 18 hearing, two parents who had not attended previous hearings came forward and expressed horror that Dr. Senechal had expressed extremely biased views regarding physicians who treat Lyme, referring to them as ``quacks.''

Dr. Senechal's remarks, documented in their affidavit, formed the basis for a motion to
reconsider, filed with the CMEB. The CMEB denied this motion, but Dr. Senechal's bias
provided another element which strengthened our appeal.

4. My legal team also was successful in getting the Connecticut Superior Court to stay the reprimand and the two years probation ordered by the CMEB.

Also, the civil penalty, $10,000, was placed in a trust account pending appeal.

It is very important to note that, although the monitoring factor remains in place, the monitor's scope has been limited with regard to the 4 part standard of care (see above) - very good news not only for my practice, but also for that of other physicians who treat Lyme disease comprehensively, and for the patients who seek their care.

5. My attorneys have had to become involved in defending my failure to obtain a monitor by the deadline set by the CMEB, in order to prevent them from holding me in contempt, a finding which, at the worst, could result in an automatic suspension of my CT medical license.

Here are some of the circumstances which led to their involvement in this matter:

The CMEB order stipulates that I must find (and pay for) a board certified pediatrician licensed in Connecticut.

The monitor must be willing to review thirty patients' charts every three months, for a period of two years.

I have had a great deal of difficulty finding a monitor in the allotted time, particularly one who understands how to treat Lyme disease comprehensively.

Some are too busy with their practices to take the time to serve in this capacity.
Many are involved in group practices which often object, because of the time and resources this activity would divert from the collective work of the partners.

Some may not want to take on this role due to the controversial nature of my case.

The CMEB has refrained from providing a monitor; perhaps as a strategy to avoid the accusation that they have installed someone who is hostile.

They have, however, threatened to hold me in contempt, asserting that I have not
exhibited sufficient effort with this matter.

My office continues to aggressively search for a monitor, while my attorneys are dealing with the legal issues involved.

6. As you may have heard, the DPH has brought additional charges against me pertaining to three new cases.

Initially, they intended to introduce these cases into the prior, ongoing hearing, but my attorneys were successful in preventing these cases from being joined with the case already being heard.

New hearings on these three cases will be scheduled in the near future at the
Legislative Office Building in Hartford, CT (watch for future announcements
with more details).

These are expected to be scheduled over a period of at least several months, which my attorneys already have begun to prepare for by
contacting potential experts, compiling legal research and drafting legal pleadings.

Two out of three of these cases, much like the previous case, involve divorced parents engaged in custody and other marital/parental disputes.

One case in particular has ominous implications for the Lyme community, if the DPH charge is allowed to prevail:

I am accused of falsifying an illness in
a child in order to justify his absences from school, essentially colluding with the mother, who has been accused of Munchausen's Syndrome by Proxy.

This charge, if upheld, could set a dangerous precedent for the Lyme community, endangering parents and their sick children who are accused of truancy. It must be defeated.

We have some reason to hope, based on the merits of the appeal, that the CMEB and the CT DPH could decide against prosecuting these new charges.

Once again, my legal team has been extremely busy, attending CMEB meetings, drafting
motions, writing memos, conferencing with both the DPH prosecutor and the Assistant Attorney General and more.

I continue to be impressed by their commitment to my case, as well as their sincere concern for what it represents for the children, who are so ill with Lyme disease.

All of this, unfortunately, also has been quite costly, which leads me, with some apology, to the second part of my message to you.

Without the support of the Lyme community, it would not have been possible for me to engage this top-notch legal team and to fight these charges.

I have thought long and hard about the wisdom of continuing this fight, in part because I hesitate to impose any further hardship on so many of you who already have contributed so much, and who are contending with stressed resources.

I have decided, however, that it is essential to continue to oppose the charges brought against me and want to explain why:

1. I am dedicated to the principle of providing appropriate treatment to the
children of Lyme, and to training other physicians to treat pediatric patients through the various preceptor programs currently available.

2. I am gravely concerned that an easy, unchallenged ``defeat'' will send a dangerous message, and that those physicians who depart from the IDSA guidelines in their treatment of Lyme disease will be left more vulnerable.

3. I am strongly opposed to the ominous precedents that will be set if the current charges against me are allowed to prevail.

The two cases that I mentioned above exemplify this danger: namely, the imposition of a restrictive standard of care, as well as the unfounded persecution of families whose children are ill, with accusations of Munchausen's Syndrome by Proxy, malingering and truancy.

4. Because fundraising efforts were suspended over the holidays, when my legal
team was engaged in an intensive flurry of activity, the defense fund is in dire straights: currently, we owe more than $80,000 in legal fees.

All outstanding bills for services rendered must be paid immediately in order for me to retain my legal counsel, and we also must demonstrate that funds will continue to be forthcoming as needed.

With all of this in mind, I must ask you once again to consider making a financial contribution to my legal defense fund, in whatever amount your
circumstances will allow.

If you are able to contribute, I hope you will do so as soon as possible. Instructions for making donations to the legal defense fund are provided at the bottom of this letter.

Additionally, many of you have suggested ideas for fundraising, some of which could draw on resources outside of the Lyme community (e.g., a concert).

I welcome and deeply appreciate this kind of creative effort to raise money for the legal defense fund.

On Friday, March 14, I reached my 79th birthday.

Someone asked me recently if I ever dreamed that I would find myself in this position at this stage of my life.

I replied that, no, I didn't, but if I had the chance to do it over, I would do it all again.

It is largely because of the considerable support and concern that so many of you have conveyed in so many ways that I have been able to maintain my determination to see these charges through to a successful resolution.

Please accept my heartfelt appreciation for your ongoing support.

With very best regards,

Dr. Jones
Charles Ray Jones, M.D.


HOW TO DONATE TO THE LEGAL DEFENSE FUND:
**************************************

Make Donations payable to "The Dr. Charles Ray Jones Legal Defense Fund."

Mail to:
***********

C/O George Heath, III (CPA)
26 Fairlawn Drive
Wallingford, CT 06492

Note "gift" in the memo field
*********************************


2) A WEBSITE FOR DR. JONES IS NOW READY TO TAKE PAYPAL CREDIT CARD CONTRIBUTIONS TO THE DEFENSE FUND.

http://www.defendlymedoctors.com/

If you are a patient of Dr. Jones and would like to write in his support, please send your letters to him at:

Charles Ray Jones, MD
111 Park Street, 1st Floor
New Haven, CT 06511

To view fundraisers already in progress for Dr. Jones, go to

http://www.lymesite.com/LLMD_FUNDRAISER.htm


Sheila M. Statlender, Ph.D.
Clinical Psychologist
53 Langley Road - Suite 330C
Newton Centre, MA 02459
617-965-2329
--------------------
If you get the choice to sit it out or dance...
Having one of those Lyme days?
http://tinyurl.com/yvkthd
------------------
Posts: 5747 | From: The Moon | Registered: Jun 2004 | IP: Logged


bettyg
Frequent Contributor
Member # 6147
posted 19-03-2008 02:43 AM

thanks for posting the current update on dr. jones.

i'll forward the entire letter to all on my LYME GROUP LIST at home; i hope all of you will do this too, and ALL boards you are on!!
****************************************

thanks so much for helping dr. jones defense expenses; but most of all....LYME KIDS NATIONWIDE and international get into remission, and many of them ....hopefully CURED!
Bettyg, Iowa activist
 
Posted by bettyg (Member # 6147) on :
 
i decided to look for my note about amazone books, and here it is so it can be found later on the board again!!
************************


Note from Kay Lyon: Kay's email is write above her note! Betty


[QB] If you plan to buy P.J.'s books (OR ANYTHING ON AMAZON.COM) using Amazon, please click on one of these 2 links to get to Amazon.

Just using these links will donate 4% of your purchase to Dr. Jones' defense fund. Thanks! [/b]


http://www.amazon.com/gp/homepage.html?ie=UTF8&%2AVersion%2A=1&%2Aentries%2A=0

OR: http://tinyurl.com/3atkvx
 
Posted by CapriceMom (Member # 4942) on :
 
Please help me understand... What effect has the Connecticutt Attorney General settlement had on this legal action? I just did a new Lyme search on the new search engines "cuil" and found the IDSA website where they claim that they are the obly website with Lyme in the title who are accurate. So these, so called doctors are still actively waging war on Ly,e patients and the doctors who are willing to help us.
I understand supporting and helpng Dr. Jones. But is there nothing we can do to stop the ones attacking our doctors???
I am back in treatment after a serious relapse after "they" closed dowm my doctor temporarily. He too is still battling an attack from a major insurance company. I just don't get why we can't stop the attacks.
 
Posted by bettyg (Member # 6147) on :
 
a reminder, and i just copied this for someone else wanting to give money and didn't know how/where to send this ....


If you would like to send a letter of SUPPORT or thank you to Dr. Jones, please send to: Dr. Charles Ray Jones
111 Park St., 1st floor
New Haven, CT 06511


HOW TO DONATE TO KIDS LLMD DR. JONES LEGAL DEFENSE FUND:

Make Donations payable to: " Pullman & Comley
Trust Account-for Dr. Charles Jones"

Mail to:

Elliott Pollack
c/o Pullman & Comley, LLC
90 State House Square
Hartford, CT 06103-3702


Note "gift" in the memo field
http://www.youtube.com/watch?v=MNGnsAgKT8s
 
Posted by Kathy622 (Member # 14077) on :
 
My kids are under the care of Dr. Jones. He has physicians from all over the country visit with him for a week ("preceptorship")

We have seen him twice and have been amazed at his knowledge of LD and coinfections and his dedication to sick children.

Perhaps just as amazing is the dedication of the physicians who join him during a week of preceptorship.

These doctors are young, relatively speaking, and are so incredibly knowledgable themselves and dedicated to helping their patients. They look up to Dr. Jones because of his vast knowledge of LD and co-infections and his steadfast resolve to treat his young patients based on his vast clinical expertise rather than an artificial model put forth by a "doctor" in an ivory tower.

If Dr. Jones was prevented from treating sick kids, the ramifications would be devastating, both for the children he treats and for these wonderful like-minded physicians who treat sick kids.

Dr. Jones is incurring legal expenses to the tune of $1500 a day. He is a modest man practicing medicine in a modest office. He works 7 days a week to help sick kids.

If you would like to read more about the character of this man, please read "Cure Unknown" by Pamela Weintraub. In her book there is a section on Dr. Jones and his affiliation with Martin Luther King Jr, with whom he attended school. You will see that Dr. Jones is a man of principle who has lived his life standing up for what he believes in.

There are few, if any, times in life when we are touched by greatness. History will surely look upon Dr. Jones as someone who affected the world simply because he stood up for what he believed in, regardless of what others thought and regardless of the consequences he would face. Throughout his journey, he has helped thousands of children.

I urge every single one of you reading this to please consider making a donation to Dr. Jones' legal fund. No donation is too small.

Your check can be made payable to "Pullman & Comley, Trust Account for Dr. Charles Jones" (please put "gift" in the memo field).

You can mail it to:

Elliott Pollack
c/o Pullman & Comley, LLC
90 State House Square
Hartford, CT 06103-3702

And, in case you're wondering, I have no financial interest in this at all, nor have I been asked to post anything on any website either.

I'm just a mom with sick kids, like so many of you.
 
Posted by bettyg (Member # 6147) on :
 
KATHY,

great post from a mom w/lyme kids treated by dr. jones!!


i, too, have no financial interest, etc. as she pointed out.


i DO have this interest in seeing and helping parents get to kids llmds like our outstanding DR. JONES!!!


another suggestion since Christmas is coming and your yearly typed email/snail mail letter will be sent out.

how about putting a suggestion in there with info from my post above kathy's...


it has dr. jones home address for letters of SUPPORT/THANKS to him...

it has dr. jones DEFENSE FUND ADDRESS TOO...


one other thing i'd add would be UNDER OUR SKIN LYME DOC. TRAILER and encourge folks to watch it!

http://www.underourskin.com/watch.html


perhaps you have some family members, friends, or neighbors who are well to do, please mention dr. jones situation to them, and ask them to water trailer of UNDER OUR SKIN.

thanks and love to you! [group hug] [kiss]
 
Posted by 22dreams (Member # 17846) on :
 
If you have meager means, are too in debt to

donate or too ill to donate your time, there is

an easy and FREE way to support Dr Jones.


Over 700 online retailers work with igive.com,

including priceline.com and vitaminshoppe. com,

so whether you're holiday shopping, traveling or

buying supplements, a small part of

your purchase price will go to your cause. For

more information and to see their extensive list

of participating retailers, please visit http://www.iGive.com.


When you register, then shop, at igive.com, a

small percentage (2%) of your online purchases

will be donated to the Dr Jones defense fund

account.


Igive.com automatically tracks purchases and

issues a quarterly check (once profits

are $25.00 or more) to the Pullman & Comley Trust

Account to help with Dr Jones' legal costs.

The only thing you need to do is register at

igive.com by following these easy steps:

1. Visit http://www.igive.com/ and register for free

2. Choose your cause by searching for "Dr Jones"

3. Select "Pullman & Comley Trust Account for Dr Charles Jones"

4. Follow prompts to download the igive.com toolbar (optional) which generates a few cents more every time you perform a simple web search!(for those of you without $$ to help)

Please Note: Since the trust does not have 501(c)-

3 nonprofit status, no tax writeoff is available.


Important Bonus: Make your first purchase within

45 days to receive a $5 bonus donation for your

cause.


Please note one exception to shopping on igive is

with AMAZON.com:

If you want to buy from Amazon.com, it would be

better to access it through the Amazon link at

www.lymesite.com which gives 4% to Dr. Jones'

legal defense fund. Order Here

This is a better deal than shopping with

Amazon.com through igive, which gives only 2% of

the Amazon.com sale price.

Make igive's Search Page your homepage (Use this) and

utilize for every internet search you make to

benefit Dr. Jones!

Every little bit helps!

[ 08. December 2008, 02:55 PM: Message edited by: 22dreams ]
 
Posted by gforce (Member # 18211) on :
 
MORE ATTENTION ABOUT 'UNDER OUR SKIN' WOULD HELP

THIS CAUSE!

PLEASE TAKE A MOMENT TO COMMENT ON OPRAH.COM. DR.

OZ IS VERY INTERESTED, BUT WE NEED 100's OF COMMENTS

TO CATCH THEIR ATTENTION. OPRAH COULD BRING LIGHT,

HOPE AND $$$$ TO DR. JONES CAUSE!

I know you probably have had enough lyme talk for a lifetyme! So please feel no obligation... I just think this is so important and so much bigger than anyone realizes!


http://www.oprah.com/article/oprahandfriends/moz/20081126_oaf_moz
 
Posted by gforce (Member # 18211) on :
 
MORE ATTENTION ABOUT 'UNDER OUR SKIN' WOULD HELP

THIS CAUSE!

PLEASE TAKE A MOMENT TO COMMENT ON OPRAH.COM. DR.

OZ IS VERY INTERESTED, BUT WE NEED 100's OF

COMMENTS TO CATCH THEIR ATTENTION. OPRAH COULD

BRING LIGHT, HOPE AND $$$$ TO DR. JONES' CAUSE!


http://www.oprah.com/article/oprahandfriends/moz/20081126_oaf_moz
 
Posted by bettyg (Member # 6147) on :
 
for those of you ORGANIZING UNDER OUR SKIN shows in your local cities, please remember that dr. jones still needs $$$$ MONTHLY to meet his lawyer costs for his MONTHLY hearings.

please prepare a handout about dr. jones info on how they can contribute to defense fund and send LETTERS OF SUPPORT to him.

below is what i put together when i held IOWA'S 1ST SHOWING OF UOS:


adding this to help others on additional suggestion.


i typed this up and printed off and given FOR EACH ATTENDEE to let them know about dr. jones legal situation and his bill costing $90,000 - $100,000, and a plea to donate money for this cause.


Dr. Burrascano's most recent "Diagnostic Hints and Treatment Guidelines for Lyme and Other Tick Borne Illnesses" @ http://www.ilads.org/burrascano_0905.html
suggests that you discuss with your doctor continuing treatment until you are symptom free for 2 months.

this link, making the most of your LLMD visit, may help you also
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic&f=1&t=020605#000005

please see BettyG's newbie package info on the link below; click on link at bottom of my package. Check it out as time permits for you! 149 pages of good info !!
@ http://tinyurl.com/58eyou
IGENEX ``Lyme diagnostic'' lab, Calif., 1.800.832.3200; www.igenex.com and ALL 15 protein bands are shown on lab results!! CALL THEM FOR CURRENT $$.

If you would like to send a letter of SUPPORT or thank you to Dr. Jones, please send to: Dr. Charles Ray Jones
111 Park St., 1st floor
New Haven, CT 06511
HOW TO DONATE TO KIDS LLMD DR. JONES LEGAL DEFENSE FUND:

Make Donations payable to: " Pullman & Comley
Trust Account-for Dr. Charles Jones"
Mail to:
Elliott Pollack
c/o Pullman & Comley, LLC
90 State House Square
Hartford, CT 06103-3702

Note "gift" in the memo field
http://www.youtube.com/watch?v=MNGnsAgKT8s
 
Posted by bettyg (Member # 6147) on :
 
do any of you know how the cash flow is coming in for dr. jones defense fund expenses?

i've been hoping with all the showing of under our skin that folks are handing out my suggested 1 page of info giving dr. jones defense fund address

and his home address for letters of thanks, encouragement, etc.

anyone know? big thanks [Smile] xoxox
 
Posted by bettyg (Member # 6147) on :
 
a reminder to all have SCREENINGS OF UNDER OUR SKIN....***************************************


for those of you ORGANIZING UNDER OUR SKIN shows in your local cities, please remember that dr. jones still needs $$$$ MONTHLY to meet his lawyer costs for his MONTHLY hearings.

please prepare a handout about dr. jones info on how they can contribute to defense fund and send LETTERS OF SUPPORT to him.

below is what i put together when i held IOWA'S 1ST SHOWING OF UOS:

adding this to help others on additional suggestion.
i typed this up and printed off and given FOR EACH ATTENDEE
--------------------------------------------------------------

Dr. Burrascano's most recent "Diagnostic Hints and Treatment Guidelines for Lyme and Other Tick Borne Illnesses"
http://www.ilads.org/lyme_disease/treatment_guidelines.html

PAGES 17-19 discuss ADULT & KIDS MED TREATMENTS!
http://flash.lymenet.org/scripts/ultimatebb.cgi/topic/1/80440?#000006

suggests that you discuss with your doctor continuing treatment until you are symptom free for 2 months.

this link, making the most of your LLMD visit, may help you also: http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic&f=1&t=020605#000005

IGENEX ``Lyme diagnostic'' lab, Calif., 1.800.832.3200; www.igenex.com and ALL 15 protein bands are shown on lab results!! CALL THEM FOR CURRENT $$.

Treepatrol's NEWBIE LEARNING LINKS: http://flash.lymenet.org/ubb/ultimatebb.php/topic/1/29917

Dr. Jones defense fund is costing $90,000 - $100,000 per MONTH.

If you would like to send a letter of SUPPORT or thank you to Dr. Jones, please send to:

Dr. Charles Ray Jones
111 Park St., 1st floor
New Haven, CT 06511

HOW TO DONATE TO KIDS LLMD DR. JONES LEGAL DEFENSE FUND:

Make Donations payable to: " Pullman & Comley
Trust Account-for Dr. Charles Jones"
Mail to:

Elliott Pollack
c/o Pullman & Comley, LLC
90 State House Square
Hartford, CT 06103-3702

Note "gift" in the memo field
http://www.youtube.com/watch?v=MNGnsAgKT8s
--------------------
 


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