LymeNet Flash: Please write to Dr. Oz

This is topic Please write to Dr. Oz in forum Activism at LymeNet Flash.

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Posted by T2JRW (Member # 10663) on :

I heard the entire Dr. Oz interview with Andy and Kathy Fowler, and Dr. Oz specifically requested e-mails from Lyme patients at the end of his show.

He said something like, "We'll see if we get ten or if we get five hundred."

Obviously, numbers matter, so please share your Lyme story ASAP.

He specifically requested information as to what treatments worked for you, especially whether long-term antibiotics helped.

It is my understanding that you must e-mail him via Oprah's Dr. Oz Site

You can also e-mail XM Radio (make the subject "Programming") to thank them for doing a show on Lyme. XM Feedback Page But I'm NOT sure this route will reach Dr. Oz like the Oprah one will.

If someone knows a better place to e-mail him, please let us know.

Thanks for your time.

Posted by bettyg (Member # 6147) on :

thanks for both links; i had sent to the 1 other night after listening to 9 minutes only since i could NOT FIGURE out how to listen to oz on 1st airing of it!!!

not user friendly for us neuro lyme folks.... [Frown]

Posted by bettyg (Member # 6147) on :

please separate PROGRAMMING comment from link; i did not see that at all and sent as FEEDBACK....thanks!

Posted by ellenluba (Member # 1707) on :

PLEASE DISTRIBUTE:

Hi folks,
To listen to the entire show that Dr. Oz did on Lyme disease and Under Our Skin, click on http://www.zshare.net/audio/51988431783ad036/

At the end he asks for letters from us telling him if we had long term antibiotic treatment and were cured by it.

Well, he's still learning, so we need to educate him that even those of us who were not cured were helped by long term antibiotics. We need more research so we can have a cure.

This is a huge opportunity for us. With Dr. Oz's popularity, winning him over could be the tipping point for us. Please, please write to him so he gets an idea of how many chronic Lyme patients there are.
https://www.oprah.com/plugform.jsp?plugId=495&referer=

Thanks,
Ellen

Posted by slappy2779 (Member # 12193) on :

Here is what I sent

I have been diagnosed with Chronic Lyme since 1993 probably had it since 1991. I was diagnosed with Lyme Menengitis. The doctor that finally diagnosed me with it in '93nsaid I had it for at least two years before I was diagnosed. My white blood cell count was over 200.
Within the past four years I have been in relapse, (who knows maybe even longer), and the doctors where I live treated me like an idiot who is simply a hypochondriac.
Two years ago, when getting up to go to work, I fell straight to the ground. My wife forced me to go to the hospital, and I eventually lost all strength in my legs and can no longer walk. The first time I went to the hospital before this incident, they took my blood work and gave me antibiodics. When I went back a week later after this happened, they lost my blood work.
They said I had Conversion disorder, Never mind the fact I was about to get married in a year and I loved my job.
I tried to pull up information on the web for them, showed them my Aunt's book on Lyme, "Coping with Lyme Disease," by Denise Lang. One doctor went so far as to say I should go see her then.
They discharged me in a wheelchair with no treatments, and almost a year later I finally got them to redo my bloodwork. Surprise of suprises it came back with antibodies for Lyme. Great! finally the proof I need, they can't deny it now!
My doctor tells me it just means my body has built an immunity to lyme. You can't build an immunity to lyme, hence the reason you can get reinfected! I tried to tell him this, but no again I don't know what I"m talking about. They simply dropped me off at Social Services doorsteps with no where to go (the apartment I was living in before going into the hospital was a second floor with no elevator).
As a result of the failure of the health care system, I am bound to a wheelchair, detieriorating daily. Me and my wife just had a baby, and I am worried that my condition may limit me in caring for her.