This is topic i wish Pam W would answer the Slate artical by Helmuth in forum Activism at LymeNet Flash.


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Posted by lpkayak (Member # 5230) on :
 
i dont know how to reach her

(see touched by lyme post to read artical)
 
Posted by beths (Member # 18864) on :
 
Try finding her on Facebook and send a message
 
Posted by poppy (Member # 5355) on :
 
So many articles took this same approach, looks orchestrated, doesn't it. That is what comes of mixing elections with lyme.

If Romney wanted to help, he could have done it in MA as governor. If Obama wanted to help, he would have had his people talking to those who decided that more than 20K signers on petition against IDSA guidelines could be ignored. Has this ever happened with a disease treatment before? No. It is unprecedented. And ignored.
 
Posted by lpkayak (Member # 5230) on :
 
i dont know how to use facebook...can someone else let her know? i havent heard from her in awhile. i hope shes ok
 
Posted by lpkayak (Member # 5230) on :
 
did you guys see what phyllis(calda) is saying? i just saw it on another site...it might be on LN and i didnt see it yet

http://lettersforlymeproject.blogspot.com/2012/10/letters-for-lyme-ignorance-will-not-be.html
Phyllis Mervine
LymeDisease.org
 
Posted by dbpei (Member # 33574) on :
 
I just messaged Pam on FaceBook and did not see any reference to these harmful articles on her website. I also provided Phyllis's information and asked if she was in any way involved in helping to undo some of the damage done.
 
Posted by poppy (Member # 5355) on :
 
I think this would be good for people to do, write these publications, but be sure to pick the ones that trashed lyme patients. Not all these stories did that. For instance, Huffington Post just reported that Romney was raising the lyme issue in VA. It did not say anything about anti-science, etc.

So pick the ones that did wrong.
 
Posted by RDaywillcome (Member # 21454) on :
 
Pam did mention it but is asking now for all story's that don't have to do with lyme disease.
 
Posted by lpkayak (Member # 5230) on :
 
oh. well what phyllis did is good
 
Posted by Paul Mall (Member # 27581) on :
 
the above letters campaign is by Kenneth M
 


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