richedie
Frequent Contributor (1K+ posts)
Member # 14689
posted
Is this common with Bart? At one time I thought I was getting better...but now after 2.5 years of treatment.....I keep adding symptoms.
It used to be that I only had tightness and tingling in the mid back or upper back.....then suddenly two weeks ago it turned into full on spine pain in the thoracic region!
It is bad enough to make it difficult to look up or down, difficult to lay my head down because it is tough to support my neck in certain positons.
I haven't exercised in almost two weeks due to the spine/back pain. So I guess this is where I start to slowly go down hill, get out of shape, gain weight and continue to decline?
-------------------- Mepron/Zith/Ceftin Doxy/Biaxin/Flagyl pulse. Artemisinin with Doxy/Biaxin. Period of Levaquin and Ceftin. Then Levaquin, Bactrim and Biaxin. Bactrim/Augmentin/Rifampin. Mepron/Biaxin/Artemisinin/Cat's Claw Rifampin/Bactrim/Alinia Plaquenil/Biaxin Posts: 1949 | From Pennsylvania | Registered: Feb 2008
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posted
what are you taking right now? Did you just start something new?
I would get really bad lower back pain when on Rifampin and Levaquin... so I considered it may be bart. It was pressure pain, but also vibrations up the spine, and "shock" pain too. Could not really work out either. Whole lower half of spine affected.
I now wonder if I'll have to go back on them to tackle bart. Not sure if that's what causes it though for sure.
Posts: 453 | From TX | Registered: Aug 2008
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posted
Maybe you could incorporate one day a week of pilates into your exercise routine. Pilates is all about the spine. Joseph Pilates said you are only as old as your spine is flexible.
I know this is not the normal way for you to workout, but perhaps working a bit on spinal flexibility and proper spinal alignment in a workout format would help this problem you're having.
I wish I could teach you .... I have specific exercises that would help this problem. For example, lie on your back with your feet against the wall, legs bent at a 90 degree angle at both the knees and hips. Be sure your tailbone is down so that your lumbar spine is not imprinted. Be sure you keep your tailbone down throughout the exercise, pelvic stability is the key to stretching the thoracic spine in this movement.
Now, exhale lifting your chest off the ground (head and shoulders will also come up similar to a crunch, but do NOT imprint the spine). Hold for an inhale, then exhale and roll back down.
You should be using the muscles right under your breastbone down to your navel to lift you and it should stretch the thoracic spine. Do not lead with the head or neck, lead with the chest. Just do about five of them, don't overdo it.
You can do the same movement with a small ball under your thoracic spine and placing your feet on the floor. Keep your ribs gathered in this movement (and the other), don't flare the ribs. And do not move the pelvis, this is not an exercise for the lumbar spine, keep it stable (not imprinted, you want the natural curve in your back to be there).
These two exercises helped my thoracic spine stiffness quite a bit. I'm not suggesting you quit weightlifting, I'm trying to help, so no need to try to debate your workout vs. mine (again).
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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posted
I get really bad pain in my spine too. It's usually on my spine between my shoulder blades. It hurts so bad at time it almost takes my breath away.
I don't have it all the time, but I still have it after years of antibiotics.
Kathy
-------------------- You never know how strong you are until being strong is the only choice you have. Posts: 807 | From South Dakota | Registered: Jul 2005
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Bugg
Frequent Contributor (1K+ posts)
Member # 8095
posted
I had this pain as well..
Aiden424, I have pain in that EXACT LOCATION...In fact if I do any repetitive task such as painting a cabinet, it definitely aggravates this area...It's like I want my husband to massage the muscles that literally sit on top of the spine...
At its worst, I would ask my husband to pull/push the muscles away from my spine as they felt like they had drawn-up underneath it...this helped!
For me, it was ALL ABOUT getting the levels of inflammation down....Over time, as I combated the inflammation (still am) the pain/stiffness/tight muscles across my back got better...
I would ask your doctor about some of the most effective ways to target inflammation besides the abx...Also, please remember that if you "go off" abx if you've been on them awhile, it can really do a number on your body's immune system (which creates your inflammatory response)...
I think it's important to keep in mind that some of these abx are acting in lieu of our immune systems...So people may feel worse upon initially stopping them.....I only mention this in the event you have already gone off them and you've seen an increase in pain....
Also, in my humble opinion, I think some of the long-term use of some of these abx deprive our bodies of certain minerals which can create inflammation as well...
Sorry you're hurting...
Posts: 1155 | From Southeast | Registered: Oct 2005
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posted
I get chiro and massage, which can relieve muscle spasms and also put the spine back in place if it's being pulled out.
Also there's a tool called the Equalizer that vibrates and can ease spasms when I run it up and down the back.
Posts: 13116 | From San Francisco | Registered: May 2006
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glm1111
Frequent Contributor (5K+ posts)
Member # 16556
posted
Riche,
If you're still taking the Parastroy, the pain could be from the parasites dying. I have gotten this in the past when they start to move down the G. I. track.
Some warm water enemas may help eleviate this and also drinking more water. Dehydration and pain are synonymous.
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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posted
i have this too. its been terrible for 8 years. my mid back is like cement. you could roll a truck over it and id yell "harder!"
deep tissue and chiropractic helps but that crap gets spendy. and even my chiropractor considers me "special" because he just cant seem to get that 1 spot adjusted.
water and laying down with heat help for me. i hope you get better soon.
posted
Consider that it isn't from infections, but from injury, or sitting at a desk all day, or possibly a little arthritis setting in from getting older (which may be genetic).
It's very important to stretch the hamstrings and other leg muscles daily in order to keep alignment and relieve stress in the back. You might consider inversion therapy.....you can get a used table pretty cheap on craigslist...check out these links:
posted
Myriad bacteria have a proclivity for neural or spinal tissues, this is well documented on this forum or even pubmed. Just spend some time searching and you will be astounded.
Though spinal diseases can be multifactorial, microbes ultimately cause the degeneration. Particularly the gram negative types.
-------------------- My biofilm film: www.whyamistillsick.com 2004 Mycoplasma Pneumonia 2006 Positive after 2 years of hell 2006-08 Marshall Protocol. Killed many bug species 2009 - Beating candida, doing better Lahey Clinic in Mass: what a racquet! Posts: 830 | From Mass. | Registered: Aug 2006
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