posted
How was it decided or how will it be decided for you when you ended/or will consider ending antibiotic treatment for lyme and/or bart?
Were or will decisions be made based just on symptoms and/or what lab tests??
I have an appt w/ my LLNP on Tues and have a feeling she will want to discuss ending abx treatment and maybe focusing on candida overgrowth and heavy metals (although I did do the IV chelation test when I still had my amalgams in so question how accurate it even is).
I have been on 3 abx (Ceftin, Flagy and Rifampin) for the past few months and have been on abx for almost 5 months. I am not considered chronic lyme but did go undiagnosed probably a couple of months (know that can still cause havoc).
Since starting to treat candida (diet/supplements) I am feeling more clear. I still have afternoon fatigue but it is less. I am exercising more again too.
I do believe my immune system needs work still but starting to feel like maybe I can do that work w/ supplements/detoxing at this point.
Any thoughts of what I should ask for in terms of labs? Thanks.
Posts: 376 | From New York | Registered: Jan 2011
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posted
So tough in my case because I really did not have symptoms at the time I started treatment (I had a lot of fatigue a couple months before that but I was also pregnant at the time and had a m/c).
I am on high does of Ceftin and Flagyl (think my dose for Rifampin is normal) and I did not experience herx at any time during treatment.
My CD57 went from a 48 to a 60 to an 80 and I just had it retested again the other day. I was hoping for it to be in the 100-200 range before stopping abx. I know it isn't the most reliable indicator but it has helped me to see it go up each time I have been tested.
Any other thoughts?
Posts: 376 | From New York | Registered: Jan 2011
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chiquita incognita
Unregistered
posted
Hi Anna If you have Candida, you almost certainly have a leaky gut. Though I can't diagnose of course. But can only offer info based on which you ask your doctor further questions. Here it is:
This action in which Candida affects gut lining integrity via its implanted rhizomes (hair-like roots), will affect immunity, fatigue, and the nervous system (often, not always).
As the Candida implant rhizomes into the gut lining, it becomes more permeable.
There are capillaries feeding into the gut lining.
So foods and part-digested molecules get through the leaking gut lining and make it into the bloodstream, where normally they could never do that.
This sets up a hyper-alert in the immune system, which goes on attack mode.
As the foreign particles in the blood attach to the body' s own cells, the immune system now thinks that these cells are "non-self" .
So the immune system now begins to attack the body's own tissues, wherever these blood-born molecules are attached.
Other things can cause auto-immune attack too.
Some practitioners debate whether it's the Candida which causes symptoms, or the leaky gut syndrome resulting from it.
Candida treatment and nutrients can seal up the gut lining. Once Candida is gone, to take care of leaky gut can often be quick, but it will vary with each person. (Thereafter it takes a longer time for organs and offshooting disorders to rejuvenate).
Mainstream doctors won't have heard of leaky gut syndrome. It' s an alternative medical diagnosis. Mainstream labs won't have heard of it, let alone have a billing code or anything of the sort.
So...leaky gut syndrome requires an ND's diagnosis and an alternative medical lab.
An ND told me the tests for it are very accurate and sensitive.
What are not so sensitive or accurate, she said, are the food allergy tests.
WIth leaky gut and/or Candida, you are bound to have tons of food and environmental allergies aplenty.
The best test for food allergies, said the ND, is to remove the foods from the diet and then reintroduce later to test for relapse.
I would be tackling the Candida and the leaky gut first.
It's simple to heal the gut lining with certain herbs, supplements and avoiding food allergens. But clearing up Candida, a root cause, will take time.
Test for leaky gut and check into it!
Also if you have a lot of allergies ask for adrenal and thyroid testing to be done.
Adrenal and thyroid balancing were key in the specialist's protocol who healed me of environmental illness more than 25 years ago.
Further reading:
Leaky Gut Syndrome by Elizabeth Lipski, CCN MS
Best wishes, CI ps this is not a diagnosis, but I write this based on my own personal experience. It absolutely changed my life to take care of this, it was not a small matter at all at least in my case. Everybody is different.
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nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
I am only babesia right now. The zithro is supposed to keep the lyme in check. I am going to start plaquenil (see if I can tolerate it) because it is antimalarial and also kills cysts.
When my CD-57 jumps I will consider it safe to quit treating Bb. From what I have read, you are less likely to relapse when it is over 100. Last time it was tested it was in the high 50's.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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