CherylSue
Frequent Contributor (1K+ posts)
Member # 13077
posted
I am having a difficult time the past 10 days. I've been in a relapse since April with good/bad days. Now every day is a bad day with flulike malaise, anxiety, crying jags, fatigue, insomnia, and heaviness in the chest.
Are these symptoms of herxing and/or babs? How long do they last when being treated? Should I back down from the malarone?
I've been on 1 malerone a day per the last 18 days. I suspect I have babesia, although never tested, but that may change when I go to see a new LLMD tomorrow. Two years ago I tried malarone 1/day for 3 months. I don't know if it did anything, but I didn't relapse for 18 months. I don't remember any side effects from that time.
Thanks for your input.
Posts: 1954 | From Illinois | Registered: Aug 2007
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Jane2904
Frequent Contributor (1K+ posts)
Member # 15917
posted
Up
Hope you feel better.
DD just started Malarone tonight. I would like to know what to expect.
Posts: 1357 | From Massachusetts | Registered: Jun 2008
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posted
All these symptoms can be babesia. Hope it gets better. One malarone is a pretty low dose. I read others doing up to 6 a day!
You could try to stop it for a few days to see if it is a herx. If you feel better than it probably was. Not sure of what kind of side effects malarone has. Hopefully someone can tell you.
Posts: 323 | From Michigan | Registered: Sep 2006
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posted
I always knew when I was herxing from Malarone, I had flu like symptoms and terrible fatigue.
Your dose is very low but better to start low and work up.
Hope you feel better soon.
Posts: 671 | From Fort Myers, Florida | Registered: Jun 2009
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Jane2904
Frequent Contributor (1K+ posts)
Member # 15917
posted
anyone experience nausea and dizziness on Malarone?
I believe both are listed as side effects. Does it go away after your body adjusts to the meds?
Thank you.
Cheryl,I do not mean to take over post, just thought it may be helpful to keep the info all together.
Posts: 1357 | From Massachusetts | Registered: Jun 2008
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bcb1200
Frequent Contributor (1K+ posts)
Member # 25745
posted
Yes..I have gotten this. I don't know if it is a side effect of the meds, or a die off reaction for Babesia as the dizziness is the same type I had when I first got ill.
-------------------- Bite date ? 2/10 symptoms began 5/10 dx'd, after 3 months numerous test and doctors
IgM Igenex +/CDC + + 23/25, 30, 31, 34, 41, 83/93
Currently on:
Currently at around 95% +/- most days. Posts: 3134 | From Massachusetts | Registered: May 2010
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posted
I did fine on Mepron but recently tried to switch to Malarone.
The Malarone made me feel nauseous. I kept taking it, hoping I would adjust, but finally stopped when I couldn't keep it down.
I think for me, it was a side effect.
My daughter switched from Mepron to Malarone with no problems. She hated the Mepron and said it made her nauseous. She hasn't had any complaints about the Malarone.
Posts: 984 | From US | Registered: Dec 2007
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MannaMe
Frequent Contributor (1K+ posts)
Member # 33330
posted
My husband has been on Malarone for a month with no problems. He's seeing his LLMD again tomorrow.
Posts: 2252 | From USA | Registered: Aug 2011
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nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
It sounds like you are herxing but one pill is a very low dose. I was taking 6. Malarone has similar side effects to the symptoms of babesia.
When I started to experience side effects they came within a couple of hours of taking it in the morning and then went away in the evening (I didn't take a second dose). I had extreme dizziness, nausea and headaches.
When I was herxing, it was all the time dizziness, depression, extreme fatigue and mental confusion. I took mepron and then malarone for a total of ten months with no problems.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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CherylSue
Frequent Contributor (1K+ posts)
Member # 13077
posted
Thanks for your responses. I didn't take the pill yesterday, and I was functional today. I did have a night sweat last night. I expect it is all a herx.
I get my test results back next week. I'll know for sure if I have babs. My doc seems to think so.
CherylSue
Posts: 1954 | From Illinois | Registered: Aug 2007
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