posted
Can someone explain this to me? Is this related in any way to Lyme? A friend had some blood tests ran and this was a possible diagnosis. C-reactive protein was @ 2.56. SM/RNP Antibody was 3.4. Some of her symptoms are joint swelling and pain. Thanks for any input.
Posts: 182 | From North Carolina | Registered: Apr 2011
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posted
I'm not sure. They called it connective tissue disease. No name. That was it.
Posts: 182 | From North Carolina | Registered: Apr 2011
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ktkdommer
Frequent Contributor (1K+ posts)
Member # 29020
posted
CTD is a catch all disease, in my opinion. It is often given out when it seems to be auotimmune but not all requirements for lupus or RA fit.
Is this on top of Lyme? Caused by Lyme?
-------------------- Things are never dull. After 3 fighting Lyme, 2 are in remission. Youngest is still sick, age 22. He has new diagnosed Chiari Malformation and Ehlers Danlos Syndrome. Posts: 1366 | From Perrysburg, Ohio | Registered: Nov 2010
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
sounds like multi joint disease-the name they give that is a little fancier but means the same thing which is nothing
it is true that Bb(lyme) like connective tissue much more than blood and muscle and bone
probably lyme-but i know i'm not supposed to say that
were they tested at igenex?
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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posted
They haven't mentioned Lyme. They are looking elsewhere. Did have ELISA test. Came back >9.1 but said Lyme was negative
Posts: 182 | From North Carolina | Registered: Apr 2011
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Razzle
Frequent Contributor (1K+ posts)
Member # 30398
posted
Point them to Roadback Foundation (roadback.org).
A false-positive ELISA Lyme test is really, really rare...false negative ELISA and Western Blot Lyme tests are very, very common.
I too have been told I had "Undifferentiated Connective Tissue Disorder" and then upgraded to "Secondary Lupus-Like Syndrome" before getting diagnosed with Lyme.
My Lyme doctor says I have Lupus that is secondary to Lyme, and the Lupus may or may not go away once the Lyme is under control.
It is a strange Lupus though - it does not affect my organs, only my joints, mucus membranes, and skin.
I've seen some improvements in both the mucus membranes & joints since starting Lyme treatment.
I never got any help from steroids or plaquenil for the Lupus symptoms.
-------------------- -Razzle Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs. Posts: 4166 | From WA | Registered: Feb 2011
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canefan17
Frequent Contributor (5K+ posts)
Member # 22149
posted
I'd load up on the turmeric/curcumin and knotweed
Posts: 5394 | From Houston, Tx | Registered: Aug 2009
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