Topic: Ivermectin and do we all herx? Not me and its working!
springshowers
Frequent Contributor (1K+ posts)
Member # 19863
posted
Poll - How long it took you to herx on Ivermectin ?
For those on or have taken drug would like to hear about dosage and timeframe and when and how herx reactions occurred. As well what you did to clear it and was it same type of herx you have felt in past or different ? Did you stop med to clear herx or not?
Any other useful info to share for drug neewbies
Thanx
[ 01-18-2012, 01:34 PM: Message edited by: springshowers ]
Posts: 2747 | From Unites States Of America | Registered: Apr 2009
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posted
Sorry I don't have an answer to your question.
Today I went to my naturopath's office and discussed ivermectin a bit with him. He said it works very well in some cases. He mostly deals with cancer so I didn't press him further. Apparently people take it and they feel better which appears to let the body heal more effectively.
Today I got an email from a woman on the low dose naltrexone Yahoo group. I'd asked whether anyone with lyme had been helped. Here is her response:
I have Lyme and took doxy for 4 months alongside LDN with great results. As all us Lymies know, even when symptoms are better, Lyme isn't always gone from your body, however so far I am feeling super, better than I have in a decade. Give it a try.
My out-of-state LLMD has been treating me for lyme but I asked my naturopath whether he had a plan for dealing with lyme. He said there are a couple of female naturopaths in Chicago that are having success with it and that he will look into their protocol for me.
Posts: 705 | From WA state | Registered: Jul 2011
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posted
Ivermectin and LDN are super different types of drugs for very different types of things.....I'm actually kinda confused how they are related?
I've taken both. LDN at the begining of my illness to see if it would help improve CFS symptoms and it didnt really help at all, and now Ivermectin to as part of a parasite treatment.
Ivermectin is used often with cancer patients as their immune systems are so low that they are also highly susceptible to parasites.
Spring showers--- I'm only on day 4...or 5 with the Ivermectin and I'm not herxing much at all. Small change in bowel habits and more tired but nothing major. PM me....Dr K's protocol recommends you take another prescription at the same time as the Ivermectin, i think thats important too (u prob already know that :-)).
Posts: 844 | From CA | Registered: Apr 2010
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GiGi
Frequent Contributor (5K+ posts)
Member # 259
posted
I have taken plenty of anti-parasiticals during my Lyme years, including Ivermectin, Pamoate, Albendaole, Biltricide, and Alinia --- never had a reaction that I would call a herx or bad reaction. I hardly felt them. My hunch is if you don't feel too chipper when doing them, it is that much more important to treat the parasites.
Take care.
Posts: 9834 | From Washington State | Registered: Oct 2000
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MichaelTampa
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Member # 24868
posted
I've gotten a bit of a headache, not terrible, perhaps within 12-24 hours, on these types of meds. Don't remember if I had that with ivermectin, though. I do remember biltricide doing that.
Posts: 1927 | From se usa | Registered: Mar 2010
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linky123
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Member # 19974
posted
I can't remember the dosage, but I took both Ivermectin and Alinia. The Ivermectin was tougher, had lots of stomach pain, and the Alinia just made me feel kind of yucky.
-------------------- 'Come to me, all you who are weary and burdened, and I will give you rest.' Matthew 11:28 Posts: 2607 | From Hooterville | Registered: Apr 2009
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sparkle7
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Member # 10397
posted
I was taking Parastroy for a while. Maybe 6-9 months prior. Before that I took various herbal anti-parasite combos & Humaworm. So, all in all, I was treating for about a year & 1/2.
I had some kind of extreme bowel movements about 3 days in to taking the ivermectin with praziquantel (horse paste). I had some stomach gurgling, too. Not too bad, though.
I added pyrantel pamoate & started alternating the ivermectin with praziquantel. One day both, one day one or the other, one day nothing for about 3 weeks as per dowsing. The day after I added the pyrantel - I saw about 10 worms that looked like roundworms or hookworms in the toilet.
So, after doing the herbs for a long time - I still had stuff that needed to be treated. Everyone is different. I think it depends on how infested you are. The anti-parasite treatments - either drugs or herbs - have been the most insightful for me. I had no idea...
I never "herxed" on the antibiotics. I took then for at least 9 months. Just my experience. I have seen things that look like flukes, threadworms, various eggs & who knows what in my bowel movements. It was definitely not just food remains or mucoid plaque...
I think you really have to look at what comes out - even though it's not plesant. I don't think the testing is accurate & it's best to just look at what comes out right after it happens.
Dr. K says the parasite remains decay within 20 minutes of the bowel movement. Seems eyeballing is best if you know what you are looking for. Not everything is something parasite related, though. I guess it takes some time studying & practice.
Posts: 7772 | From Northeast, again... | Registered: Oct 2006
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canefan17
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posted
Can't some of these anti-parasitic pharmas hit bartonella (Ivermectin) and Babesia (Alinia) too?
Posts: 5394 | From Houston, Tx | Registered: Aug 2009
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lymetwister
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Member # 19590
posted
Tried to PM you about Ivermectin, can't get in touch with you ???????
Posts: 1227 | From District of Columbia | Registered: Mar 2009
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karenl
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Member # 17753
posted
I also tried to pm you, are you still there?
Posts: 1834 | From US | Registered: Oct 2008
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nonna05
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posted
You can PM me...I'll be happy to get info..Thanks Nonna
Posts: 2563 | From Denver,CO | Registered: Aug 2011
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springshowers
Frequent Contributor (1K+ posts)
Member # 19863
posted
HI there.. I forgot people are not supposed to post dosages? Is that why everyone is saying to PM them? Working on clearing out my messages but should be working.
Posts: 2747 | From Unites States Of America | Registered: Apr 2009
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kelmo
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Member # 8797
posted
spring..thanks for reminding me of the policy.
I can only tell you that my daughter herxed hard. It was a different reaction from any other drug.
Someone mentioned stomach pain. My daughter had that, but it passed.
What we noticed, after many powows witht he doc, is that it hit the organisms hiding in the tissues.
So, if you ever had IBS or stomach problems, it will go to those tissues.
My daughter's herxing seemed to go for the places where she got her first illness symptoms.
For her, it was digestive, then brain. Now, it's hitting her hands.
I can tell you that I have seen a brightness return to her eyes that I have not seen in seven years. She woke the other morning and was laughing to the morning radio crew.
It comes in waves. She has had to start with microscopic dosage and pulse. So, as she increases, she gets hit.
Have you started it yet?
Posts: 2903 | From AZ | Registered: Feb 2006
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springshowers
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Member # 19863
posted
HI.
I asked this question because I was afraid of the big herx and yet I have not had a big herx But i am feeling better and better in layers as well like your daughter. I see it going to places where nothing as before and reversing things.
For me who has herxed severel y on every last thing except mepron.. Ironically... I was reluctant.
I am hopeful and but not to get ahead of the game and assume. But if this continues this can be the key for this protozoan which seems to be the hardest thing to treat by far for me.
I have been on it for about two months now and moving up in dose.
SO glad your daughter is responding and its nice to hear the words brightness in her eyes.
I have been told the same that my skin and eyes look different and clearer and more healthy ..and I am waking up feeling like a different person and I am just kinda going day by day thinking wow is this possible.?
I will say that leaving my home six months ago also took a big burden off my body and it was fighting against some enviromnetal issue I think. I was battling it hard and to keep gains in my treatment was a huge struggle as I had that issue to combat and push against me.
That is gone now too.. i feel quite free.
I feel Like I can treat this disease and I had not felt this way before. I used to be so jealous of those would sounded as if they could treat themselves and get a result or feel better or not go through so much severe herx and pain just to come out the others side no better off..
I am so grateful and my life and body is transforming. Its been a process over the past two years I think and this med has come at the perfect time to scope up and get into and at that bug that has buried itself in me that i was not able to get..
!!! : )
Posts: 2747 | From Unites States Of America | Registered: Apr 2009
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manybites
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posted
HI Springshower I Pm you.Do you still have twitches ?
Posts: 1379 | From disable | Registered: Aug 2011
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annxyzz
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posted
I definitely herx after day two . Then, I felt much better . I have taken it 5 days and have NO TWITCHING . NONE . Very unusual.
-------------------- annxyzz Posts: 1178 | From East Texas | Registered: May 2009
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annxyzz
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Springshowers , I believe you . Are you comfortable sharing your approach to this "experiment " , how you are specifically doing it . How long did you try it before noticing you were feeling better ?
Thank you !
-------------------- annxyzz Posts: 1178 | From East Texas | Registered: May 2009
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tick battler
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posted
My son just started ivermectin last night. Today he is very emotional. He tends to cry at the slightest thing when on parasite meds. Tonight I will add in pyrantel. We were told to take those together. Is anyone else taking those together?
I have also not given him the full dose yet. Glad to hear others have had to ramp up. My son is very sensitive to herbs/meds.
tickbattler
Posts: 1763 | From Malvern, PA | Registered: Jul 2009
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kelmo
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posted
There is a rollercoaster feeling with this drug. Feels great one minute, really bad the next.
The herx for her hit hard at week four.
Glad you are not hit hard. My daughter was told she was one of the sickest of the patients on it and will take much longer to work up to a theraputic dose.
So...as long as she still moves forward, there is hope.
Posts: 2903 | From AZ | Registered: Feb 2006
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springshowers
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Member # 19863
posted
Can't post the dosing and such I guess but everyone's different
I find now that I did avyears hard workmon detox unchanged my body tremendously and if I took this med prior to that it could be a completely different story and I am positive I would not be tolerating it as I am
So I encourage everyone I know yo push your limits on detox and never underestimate it's power and importance in treating this disease.
Without it o believe you just pile up mire and mire in yourself of toxins and all the stuff that should be going out just builds up to make you sicker and sicker Then you get discouraged and don't even have a chance to know if something is working at all a big waste of time and money and energy and also feeling worse all the time thinking it's just a herx yo get through
I know I must not be the only one who has had or has that scenario and problem and I say. Don't give up It tool me a long tine to realize and then to know how to fix it and it's not just what you do but how and I think most of us think we are doing enough but for me it was not near enough . So now I can handle treatments and it's like night and day !
Such as this medication. Amazing
Posts: 2747 | From Unites States Of America | Registered: Apr 2009
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annxyzz
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posted
Re :Ivermectin
There is a protol for parasites posted at Curezone - and personal experiences . I think member "ICU " started a thread. There is a lot of info on all of the particulars , dosage etc...
Also, if you google :"ivermectin lyme disease " "Ivermectin lyme disease Europe " "Lyme disease parasites Dr. Eva Sapi" " Lyme roller coaster ivermectin " "Jenna's lyme blog "
you will find anecdotal info that suggests this has inded helped some others and it is being used in other countries .
I AM NOT SUGGESTING ANYTHING . Do your own research and make your best educated choice .
Apparently , Dr Eva Sapi states, parasites are a significant issue , and the ticks she studies often are infected w/ worms . This might explain why a million ABX will never cure some of us .
Hopefully we learn more as people post their experiences . Blessings to all , and thanks to showers for sharing !
-------------------- annxyzz Posts: 1178 | From East Texas | Registered: May 2009
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glm1111
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I had the occassion to e-mail Dr. Sapi and asked her why her findings on Filarial Worms being in a large perecentage of the ticks she discovered while dissecting them was not being made more public.
She e-mailed me back and said it was because the findings needed to be published first in order to be recognized. REALLY??
In the mean time chronically ill people with Lyme are being given yrs of abx and not antiparasitics. Unbelievable.!!
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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gigimac
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Springshowers could you share or pm me some of your detox methods? I cannot stop herxing on abx and feel i am getting nowhere.
Posts: 1534 | From Greensboro NC | Registered: Aug 2011
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springshowers
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Hi I just put up to the top the Detox Support Thread gigi.
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