One of my first issues was swallowing difficulties. This has not improved at all since I have been treating 14 months with a great llmd. I have done a search on this and asked about this before, and have read that this is often a babs symptom. Anyways, I did test positive for babs and I just starting treating for it.- Rocephin, Zith, Malarone, Plaquenil. This is my third day on Malarone. My llmd started me with a high dose these first three days and then tomorrow I am supposed to back down to a more normal dose and continue that daily.
So anyways, I am feeling like the swallowing problem is a lot worse right now since I started the Malarone. Is this a herx and has anyone experienced anything like this with regards to the swallowing issue? Any advice would be greatly appreciated. Thank you so much,
Posts: 200 | From Boston | Registered: Sep 2010
| IP: Logged |
nonna05
Frequent Contributor (1K+ posts)
Member # 33557
posted
does it hurt or is it more muscle not cooperating
Are other issues getting better?/
I had difficult swallowing for a short time,,,it was when Babs was really worse and treating,,
Think it just pi___d them off ...For me there is a cough syrup I use for the dry cough that goes with this, or throat is tight..
Also muscle,reminds me of magnesium.. Doesn't sound connected.
It's just that lot's of muscle issue and pain has been helped with Mag, or D3,or potassium >I go low on that often<
Hope you're better soon.. What did LLMD say??
Were you sick long? Is treatment going well, other than this??
Posts: 2563 | From Denver,CO | Registered: Aug 2011
| IP: Logged |
ktkdommer
Frequent Contributor (1K+ posts)
Member # 29020
posted
How much malarone is a high dose? Any artemesia in your future?
-------------------- Things are never dull. After 3 fighting Lyme, 2 are in remission. Youngest is still sick, age 22. He has new diagnosed Chiari Malformation and Ehlers Danlos Syndrome. Posts: 1366 | From Perrysburg, Ohio | Registered: Nov 2010
| IP: Logged |
I am taking 4 pills a day right now. I don't know what a high dose is for everyone else but that is a high dose for me. My well-known llmd says everything needs to be proportionate to one's body weight...
Thanks nonna, I tAke all those supps.
Anyone have any experience with this ...PLEASE????
Posts: 200 | From Boston | Registered: Sep 2010
| IP: Logged |
I am taking 4 pills a day right now. I don't know what a high dose is for everyone else but that is a high dose for me. My well-known llmd says everything needs to be proportionate to one's body weight...
Thanks nonna, I tAke all those supps.
Anyone have any experience with this ...PLEASE????
Posts: 200 | From Boston | Registered: Sep 2010
| IP: Logged |
posted
Hubby never really had problems swallowing, but he has episodes where he could not talk. It was usually as a result of severe muscle tightness.
These episodes were always very neurological in nature and went along with the Parkinsonian tremors and myoclonus and dystonia. Most of the worst episodes were due to either babs or bart herxes.
I do not think his symptoms had anything to do with magnesium issues. Pretty sure they were due to either brain inflammation or hypoperfusion (lack of sufficient oxygen to the brain).
Bea Seibert
Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004
| IP: Logged |
posted
Well, I def have acid reflux in addition. What did your swallowing issue feel like and how long did it go on for? I am having a motility study done next week. Has anyone ever had one of those?
Posts: 200 | From Boston | Registered: Sep 2010
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic