posted
Hi. I'm still pretty new here. Have already met a few from my first post.
I live in Austria.
Had a lab test come out Igm Westernblot positive.
Of course it wasn't a lab specializing in Lyme tests because there isn't one here.
Also done some research and don't see any local LLMD's. Well possibly one in another city but not sure if he's really one.
The Dr. I visited said he doesn't think my case is Lyme and the tests are anyways unreliable.
Usually they will only start antibiotic treatment here after taking a spinal tap and it being confirmed as Lyme (?), then they put you on the antibiotics.
The Dr. felt bad for me though so he gave me a recept for Doxy (w/out spinal tap) and said I could try it for 3 weeks on my own..if I wanted to.
I still suspect from my symptoms that it could be Lyme.
I was considering trying some things on my own . Getting out of Austria is an option but just wanted to ask first.
I've read a few success stories here of people combining Samento w/Banderol.
Read that Samento drops aren't allowed in Austria so it would have to be in tablet form.
Wondering if anyone here has also self treated.
Posts: 128 | From California | Registered: Apr 2012
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nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
I sent you a PM. Look at upper left for "blinking" sign to get to it.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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susank
Frequent Contributor (1K+ posts)
Member # 22150
posted
I also sent you a PM.
-------------------- Pos.Bb culture 2012 Labcorp - no bands ever Igenex - Neg. 4 times With overall bands: IGM 18,28,41,66 IND: 23-25,34,39 IGG 41,58 IND: 39 Bart H IGG 40 Posts: 1613 | From Texas | Registered: Aug 2009
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posted
After almost two years working with an LLMD, I went from the US to Germany and after learning from the doctor there for three weeks, I self-treated after that with the same process he uses (photon treatment ... light).
I also did a lot of detox, parasite treatment, rebuilding mineral levels, etc.
If you go to Oct. 2008 on my blog listed below, you can read about the German treatment.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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You can see the speakers listed. Click on their names and you may find some close to you.
Beyond that, you might contact ILADS and ask if they can give you some LLMD suggestions in your country.
I can�t tell if this is open to anyone, or just doctors. I have to stop but do explore this as an opportunity to attend, get your doctors to attend, too.
If you can�t attend, get some local link for yourself. Maybe make an "informational" appointment with the conference organizer.
See if they need any volunteers and if there are any scholarships, or partial scholarships to even attend one session.
If you can't get there, see if you can obtain a DVD of the conference. Still, it would be fabulous if you could attend.
It would be best if your current doctor could attend? Any chance of that? Push for it. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- You may need to forget your current doctors and they seem to be dropping your care.
They are obviously not lyme literate and even if by some miracle a spinal tap would be positive, they would not know HOW to properly treat you. It's not a cookbook recipe as they think.
Even JUST DOXYCYCLINE now can make the lyme become harder to treat - especially as you have chronic lyme already. Doxy cause the spirochetes to go into cyst form. Doxy does not work on the cystic form. You'd also need flagyl or similar.
DO NOT DO THE SPINAL TAP -- too tired to explain but just be aware that is NOT a good test for lyme. Very inaccurate and often then used to deny treatment.
You already had TWO positive lyme Western Blots (IgM was positive first), you have classic symptoms but it's clear that you will need to look elsewhere for treatment.
If you do not have funds to find a LLMD or a LL ND (naturopathic doctor) you might want to look over the details below in books and articles.
THE BIONIC 880 treatment in GERMANY ? Maybe check that out as it's the way I would go were I to be so close.
A RIFE MACHINE might also be a good path. Under the guidance of an naturopathic doctor. Not sure if MDs in your country are allowed to talk about lyme but the NDs might.
Otherwise, for an overview: -----------------------------------------
Links to many articles and books by holistic-minded LL doctors of various degrees who all have this basic approach in common:
Understanding of the importance of addressing the infection(s) fully head-on with specific measures;
Knowing that support supplements are important, but NEVER enough alone. And knowing which supplements have direct impact, which are only support and which are both.
You can compare and contrast many approaches.
BASIC HERBAL EDUCATIONAL links, and
BODY WORK links with safety tailored to lyme patients,
RIFE links (you might consider this but be sure to get professional guidance)
BIONIC 880 (& PE-1) links, and
LOW HEAT INFRARED SAUNA detail. -
[ 05-04-2012, 02:42 AM: Message edited by: Keebler ]
Posts: 48021 | From Tree House | Registered: Jul 2007
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sparkle7
Frequent Contributor (5K+ posts)
Member # 10397
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Yes, some of us do selftreat here. Mostly, out of necessity. It depends if you are inclined toward self experimentation & being able to research on your own. Some people are OK with that.
I think I've gotten farther on my own than with a doctor & I've seen alot. It's hard to find good medical care for Lyme & related illnesses. It comes down in alot of cases to killing pathogens & detox, detox, detox.
You can get alot of great support here. You really have to do the studying on your own, though.
Posts: 7772 | From Northeast, again... | Registered: Oct 2006
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sparkle7
Frequent Contributor (5K+ posts)
Member # 10397
posted
PS - many doctors are "experimenting" too - it's really just about study & having an educated guess as to what to try.
Good luck!
Posts: 7772 | From Northeast, again... | Registered: Oct 2006
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. Getting out of Austria is an option but just wanted to ask first. 
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