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» LymeNet Flash » Questions and Discussion » Medical Questions » Alinia

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Author Topic: Alinia
Larae30
LymeNet Contributor
Member # 35220

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My dr. wants me to start this drug and I haven't heard too much about it.

Any of you on it or have tried it? Do you do a pulse-type thing with it? I get so nervous starting new meds, I am on so many already.

--------------------
Treating lyme, bart and babs

Posts: 506 | From NE | Registered: Dec 2011  |  IP: Logged | Report this post to a Moderator
birdie67
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I have taken Alinia. I had absolutely no side effects from it at all.

I had to stop taking it because it is very expensive and my insurance would not cover it. (1700.00 a month)

My Doctor actually prescribes this first as a cyst buster because it does not have any known cancer risks.

I did not pulse it, I took it for a month straight before I had to stop it. 2x a day.

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Larae30
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Yeah, looks like it's about $25/pill for me, gross. I think I am going to do small pulses and see.

--------------------
Treating lyme, bart and babs

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Tammy N.
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It depends on your germ load. I'd start low, then ramp up. If you have a lot of parasites, you will feel it. I had difficulty with Alinia, but I learned my dose was too high for my slight frame. I plan to do it again in about a month and a half, after I've completed several weeks of other parasite meds.

Good luck.

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seibertneurolyme
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Hubby took this at half dose for 4 months and then at full dose for another 4 months. He was using it for babesia -- took in combo with bactrim. It may have been bacteriostatic but was definitely not bacteriocidal.

His LLMD told him that alinia was a combo of flagyl and another chemical so it may have mild cyst busting properties. But it is not nearly as strong as flagyl.

Hubby did not really have any side effects from this med as far as I remember.

He was also on low dose minocycline, low dose zithromax and rifampin while on the bactrim and alinia. That 5 drug combo was supposed to treat lyme, bart and babs all at the same time. Hubby did slowly improve on the combo but had to go to much higher and stronger meds to get rid of the bart and we are stil working on the babs.

Bea Seibert

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