posted
well we finally got clearance from cardiologist + vascular surgeon. So Friday he will install it. My husband found a knowlegeable male nurse who will come to house to help us lear how to use the "ball" for daily Rocephan. After 24 yrs I am praying that it works and I can at long last do the things I have dreamed about for so long. I am a bit nervous!
any advice???
-------------------- DOCTOR: "I don't think you are sick." PATIENT: "We are all entitled to our opinions. I don't think you are a doctor." Posts: 697 | From Northern California | Registered: Jul 2009
| IP: Logged |
posted
I have port so I would assume the surgery is similar. It is a breeze. Yours should be easier than mine as you are just having the line put in and I had to have a pocket made for the port.
Using the rocephin ball is extremely easy. Sometimes it takes 3 months to see results. I felt very tired when I first started rocephin. The nurse will make sure you are comfortable using it.
The fatigue passed after 6 weeks and then I started noticing subtle improvements. Everyone is different in how they react to treatment.
Praying that you will get good results from the treatment.
-------------------- Faithful
Just sharing my experience, I am not a doctor. Posts: 2682 | From Colorado | Registered: Oct 2009
| IP: Logged |
AuntyLynn
Frequent Contributor (1K+ posts)
Member # 35938
posted
After 24 years it sounds like you are finally going to get the right help! God Bless!
Posts: 1432 | From New Jersey | Registered: Jan 2012
| IP: Logged |
posted
Thanks for the input and support. I did have a port for 6 years for IV pain meds so I am glad that I did not have to do that again.
Now I guess I have to find the patience and faith to wait for the results. Hope to hear from more of you who had positive responses!!!!
-------------------- DOCTOR: "I don't think you are sick." PATIENT: "We are all entitled to our opinions. I don't think you are a doctor." Posts: 697 | From Northern California | Registered: Jul 2009
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/