posted
My son and his 2 year old brother both have lyme and asthma.
I was under the assumption that ALL steroids were bad, unless life threatening situation.
My son's step mom is getting a lot of pressure to put the 2 year old on a steroid inhaler, as a preventative measure against future attacks. His asthma is moderate, not severe.
Any thought?
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Ellen101
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posted
I a on a steroid inhaler and my LLNP said to definitely stay on it.
Posts: 1748 | From United States | Registered: Dec 2011
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Just sharing my experience, I am not a doctor. Posts: 2682 | From Colorado | Registered: Oct 2009
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TF
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Member # 14183
posted
I think you should ask your lyme doctor as this is such a very important question. As you know, there can be serious consequences to steroids.
I got rid of lyme in 2005. Then, 2 years ago, my PCP gave me a steroid nasal spray to use every day (Nasonex?). After 3 months of using it, I was catching every disease that came down the pike.
So, for me at least, it lowered my immune system and I began catching a lot of illnesses. I stopped using it and started doing the Burrascano weight lifting exercises as he recommends, and my problems with catching many illnesses stopped.
So, the doctor will likely consider all of the circumstances in your son's case before giving an answer. My read of Burrascano is that ALL steroids should be avoided by lyme patients.
Posts: 9931 | From Maryland | Registered: Dec 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- I had terrible reactions to even just one puff of a steroid inhaler. Severe anxiety that would not let up for 6 months. It really clobbered all systems in my body (which, then, had not yet been diagnosed with various tick-borne infections).
IMO, ONLY each patient's ILADS educated lyme literate doctor can guide.
Many LLMD say: absolutely no steroids, even inhalers or topical ointment.
Unless a life-threatening emergency and then ONLY with specific antibiotic treatment. Even then, just temporary.
Some say: yes, but that is based solely on each individual's case.
There are MANY safer alternatives. Many. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
. . . Even a single dose of acetaminophen can reduce the body�s levels of glutathione, a peptide that helps repair oxidative damage that can drive inflammation in the airways, researchers have found. . . .
Identifying Environmental Illness and Mold Exposure in Patients with Persistent Lyme Disease.
Lisa L. Nagy, MD Video $15.
(She is NOT A LLMD, however, she understands the kind of toxicity issues faced by many with lyme. She did not have lyme but overcame very serious MCS. She spoke at the recent ILADS conference.
It's a great presentation to see. The DVD can be ordered. Great detail about toxicity issues also here:
Safe Home for Health, Happy Families -
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Razzle
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posted
Singulair is a non-steroidal asthma maint. drug. It is safe for those with Lyme and may even help with other seasonal allergies, and some also say it helps with herxing.
-------------------- -Razzle Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs. Posts: 4166 | From WA | Registered: Feb 2011
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Keebler
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posted
- An ILADS educated lyme literate ND (naturopathic doctor) should be able to get to the CAUSE (or sort out all the variables)
and they will have many good options, too.
Perhaps diet needs a bit of a change? Additives? -
Posts: 48021 | From Tree House | Registered: Jul 2007
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posted
Two different ILads doctors said topical steroids are okay. Inhalers, eye drops too. This may also be an individual case by case decision but I have been told by both LLMD's that topicals are okay.
No shots or pills.
-------------------- Faithful
Just sharing my experience, I am not a doctor. Posts: 2682 | From Colorado | Registered: Oct 2009
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Carol in PA
Frequent Contributor (5K+ posts)
Member # 5338
posted
quote:Originally posted by canadianmama: My son's step mom is getting a lot of pressure to put the 2 year old on a steroid inhaler...His asthma is moderate, not severe.
Have you considered using a salt pipe/inhaler? This is dry salt crystals in a tube. You inhale air that passes over the salt and picks up salt ions.
The salt ions reduce inflammation in the lungs and kill bacteria. Several people here who have used a salt inhaler said that they were able to reduce or stop using their asthma inhalers.
posted
Thanks for of the info folk! You all rock. I'm passing it along.
Personally, I think a dose of oral steroids made my son(age 11) WAY more symptomatic. Since treating for lyme his asthma is pretty much gone.
Little guys mama suspects that an inhalled steroid dose given at the hospital(croup cough) may be the cause of his increased symptoms.
She's super grateful for advice to help her with her research and choices.
Thanks again for all the help!
P.S. For all those wondering, we are one of those "crazy" families that all get along after divorce, so it may be confusing, but little one is not my son, but my son's brother through his dad and step mom. : )
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Ellen101
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posted
One thing to keep in mind is that asthma does have to be kept under good control otherwise if it gets out of control you could then potentially end up having to do oral or IV steroids in order to breathe. An asthma attack can be life threatening.
This is why my LLNP said to absolutely continue taking mine. I am allergic to animals and we have 2 dogs and a rabbit. Without my inhaler I would not be able to breathe.
Posts: 1748 | From United States | Registered: Dec 2011
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posted
Thanks for the reminder Ellen, yes asthma is very serious, and if needed a steroid inhaler is the way to go.
Just trying to gather info to help his mama make the "right" choice. Or at least a choice she feels she has made with lots of good info on hand.
Posts: 372 | From british columbia | Registered: Feb 2012
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Marnie
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posted
Steroids given BEFORE abx = MAJOR problem.
My sis (in order to save her eyesight)...could only see the big "E" on the chart...uveitis caused by lyme...
HAD to resort to steroid shots directly into her eyes...twice.
They did save her eyesight!!!
Ya gotta do what you gotta do to breathe...to take in oxygen and rid CO2.
But...she was misdx'd originally and was given steroids BEFORE abx. = Bb loved that situation!
She quickly ended up bedridden in tremendous pain and ONLY Dr. B's supplements (and abx.) sort of helped.
But...she has now had 6 joints replaced...knees first, then shoulders and now both hips.
13 years from onset.
MgCl is used to prevent status asthmaticus.
Mg levels absolutely DIVE at the outset of lyme....documented...Romanian docs figured out.
Berberine suppresses inflammatory agents-induced interleukin-1beta and tumor necrosis factor-alpha productions via the inhibition of IkappaB degradation in human lung cells. (Lung inflammation is not good.) PMID: 17681786
Berberine chloride looks to be the best form.
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kidsgotlyme
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posted
My DD has no choice but to take her Pulmicort daily. Otherwise she would have an attack and that would be much worse!You have to be able to breathe
-------------------- symptoms since 1993 that I can remember. 9/2018 diagnosed with Borellia, Babesia Duncani, and Bartonella Hensalae thru DNA Connections. Posts: 1470 | From Tennessee | Registered: Dec 2009
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TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
Look at what was posted on the "symbicort" thread today. This came from a top lyme doc:
posted
I have copd and asthma and am on an inhaled steroid for 4 years now. I really need it to breathe . It functions as an anti inflammatory.
They have many, many, side effects,- severe bruising, infections, eye damage, fungal infections in the mouth and intestine. heart problems etc. I have had all of these over the 4 year period.
Most people with Asthma have a "Rescue inhaler" such as (Proventil) If they have a problem they use it . It's not a steroid. Maybe if they are severe a steroid may be needed but I would consult a Pulmonary doctor. Lung function test may be needed. Also a test for antitrypsin deficiency (it runs in families)
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