posted
I am wanting to know how you cope and afford treatment. I would love to talk with anyone in the same situation. Also my husband is in denial even though he was sick first. thanks
Posts: 433 | From new york | Registered: Dec 2004
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nonna05
Frequent Contributor (1K+ posts)
Member # 33557
posted
Hey,,,so sorry to hear this..
How many?? How long?
In any treatment?? LLMD?
Little more info????? Several have families that are fighting this in whatever stages..
-------------------- HERX is a Four Letter Word! Posts: 716 | From If you're going through hell, keep going......Winston Churchill | Registered: Apr 2007
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Lymedin2010
Frequent Contributor (1K+ posts)
Member # 34322
posted
Cleo I am in the same boat here. My wife is in denial and she just had a biopsy done. They found H Pylori and she was given 10 days of strong ABX and she had felt worst afterwards.
After that she had stomach pain and nausea, a yeast infection and some woman bodily fluid oozing. There is no getting through her and so I just give up. I have a hard enough time getting her to even buy a clue as to the horrors of this.
My daughter has been bit 2-3 times and is in treatment. My sister had it, her youngestnews in treatment as well as her two older ones. My mom got bit 2-3 times and just last week had to have fluid removed from her knees. I warned my mom last year when she told me she had many headaches and "some" joint pain/disturbances.
My niece on my wife's side and her mother got bit, with only one of them showing signs of skin and yeast issues. 16 people in 6 houses right next door to me we're either sick or bit and some multiple times.
Posts: 2087 | From NY | Registered: Oct 2011
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ktkdommer
Frequent Contributor (1K+ posts)
Member # 29020
posted
Cleo- so sorry this is hitting you hard. I think for many of us once one person was diagnosed, others followed. For me it was my youngest, myself, my oldest, my sister and my nephew. My husband will not get tested despite my 30 year old infection and our 20 years together. He has some signs that could be other things.
Financially, I have been fortunate enough to work and hold good insurance. It doesn't cover Dr. appts or a ton of supplements. It has been an adjustment. I have one in college. My husband was able to start working from home when my sickest was bedbound. That was a blessing, too.
Have you tried Lyme Aid for kid grants for treatment? There is also needymeds.org and someone said that Easter Seals will help family's with medical care.
We wouldn't be struggling so bad if this disease could be fought in 6 months or even a year.
There are other Lyme forums you could try also for support.
Take care!
-------------------- Things are never dull. After 3 fighting Lyme, 2 are in remission. Youngest is still sick, age 22. He has new diagnosed Chiari Malformation and Ehlers Danlos Syndrome. Posts: 1366 | From Perrysburg, Ohio | Registered: Nov 2010
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posted
3 of the 4 in this house, two currently in treatment, one getting tested (but known infection many years ago. The finances are tight, but we're lucky in that insurance is covering a fair portion and we have been able to keep working so far, we just have to adjust with the rest of the costs.
Toughest to deal with our 9 year old not feeling well - he should be excited to get out and run around, rather than just want to lay down half the time! We'll all get through eventually though - another one of those bumps in the road - a big one.
-------------------- Wendy Posts: 253 | From Near Albany, NY | Registered: Jan 2009
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I'm NOT coping very well. My daughter and I had undiagnosed Lyme for many years. Now my other kid was bit the last day of school (in the school yard) and has been on mino or doxy since. IGenex of tick positive. WB positive and CD-57 28. Holy crap!
I have to watch the kids take their meds or they will "forget" after I set the pills next to their meal. I am officially the med police! supp police and probiotic police. I'm going crazy.
If not for this site, I would truly feel alone. I don't know of ANY other family going through what I am going through in my area. MANY people get it early and it goes away so they think it's no big deal. My husband is no help at all, except for financially, and he is the only one that doesn't have it (that we know of.) He has not read anything to learn about what the kids and I are going through. I feel unloved but know my other family members make up for it. He's a workaholic almost 24/7 and has "No time to read that kind of stuff". I think he's in denial. I've thought about leaving but can't. He has symptoms like uveitis (sp?) several times, sleep apenia, but he says they are unrelated. Next time he gets bloodwork, I will have him do the CD-57.
I've thought about seeing a therapist but what the heck do they know about what I'm going through?? It would probably be a waste of money. EVERYONE in the medical field thinks lyme is all in your head, except for our LLMDs. I used to work out 5 times a week and looked great for my age. Now I really can't do anything.
Sorry I'm not feeling very positive right now. I'm not feeling well.
I'm sorry you and others are going through this also and hope you have a better support system.
"LAXlover (Debbie Downer tonight!)
-------------------- LAXlover Posts: 371 | From Northern Baltimore Area | Registered: Apr 2010
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